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#81 From: Dawnn <sxymama_1@...>
Date: Wed Mar 17, 2004 1:45 pm
Subject: Re: my brother john latecki
sxymama_1
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Nice to meet you Julie and welcome to the group. Glad to see your up and running online and are able to join us. God Bless
 
~ Dawnn ~

julie mcafee <jul44628@...> wrote:
  Hello group my name is julie and i have ms My brother is john latecki iam happy to be joining this group i love my brother very much for all he has done and will be doing for people like you and me with ms keep my brother in your prayers thanks julie

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#80 From: julie mcafee <jul44628@...>
Date: Wed Mar 17, 2004 11:45 am
Subject: ms and vitamin D
jul44628
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  Hello everyone last night on the news in the health report they said that they found people with ms were lacking vitaminD and this could be a great help in fighting ms.i wanted to pass this information on to you. hope you all have a great day happy saint patricks day  julie

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#79 From: "Dawn" <dawnsmspage@...>
Date: Wed Mar 17, 2004 3:39 am
Subject: Hi Julie...
dawnsmspage
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Nice to "meet" you! John is an awesome person and he loves you so
very much!! Welcome and I cant wait to chat with you!
XXXOOO
Dawn

#78 From: julie mcafee <jul44628@...>
Date: Wed Mar 17, 2004 3:04 am
Subject: my brother john latecki
jul44628
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  Hello group my name is julie and i have ms My brother is john latecki iam happy to be joining this group i love my brother very much for all he has done and will be doing for people like you and me with ms keep my brother in your prayers thanks julie

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#77 From: "alice_clear" <alice_clear@...>
Date: Fri Mar 12, 2004 1:28 pm
Subject: Invitation Received for this group
alice_clear
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Good Morning All,
I received an invite for your group so I've been checking it out
some. Looks like there is some very, very talented fund raisers out
here! That is awesome and I can see your wonderful spirits shine-
doing something of service can bring that out.

I'm guessing that I was found in the yahoo group "DrClarkMSrelief",
one of several natural healing groups where MS, Cancer, Hiv, and
those "incurables" are being cured! I would imagine that you all know
MS is caused by fluke parasites and that there is ALWAYS
environmental toxins in your household containing xylene or toluene
found in EVERY MS case. "Xylene and toluene are industrial solvents
used in paint and thinners. It is also a pollutant of certain
carbonated beverages (I found it in 7-Up(TM), ginger ale and others
that I tested). Stop drinking them." excerpt from Dr Clark book.

Many have cured or are in the process of curing MS by removing the
toxins and doing parasite cleanses. And also by zapping, rifing, etc,
a field I'm just learning about.

There is a lot of free support and guidance on the internet
available. My interest and research was sparked by the people that
had no financial interest and had actually cured MS.

My excitement was overwhelming and I naturally thought that this must
be a fairly new thing, curing MS and other incurables, and that once
people brought their findings to MS Org's it would only be a matter
of time before it swept the world.

Well that was my second surprise.  Plenty of folks did and these
organizations DID NOT WANT TO HEAR IT. Why? I was shocked about this.
I come from this place of an open heart like you all, truly wanting
to see people heal and have much more than good health in their life.

But most organzations are funded by pharmaceutical companies and they
want their millions from the drugs they promote. Period. Furthermore,
drug studies are often written by medical ghostwriters, and guess who
pays their salaries? Drug companies. Here's a link from CBS news
about that:
http://www.cbc.ca/consumers/market/files/health/ghostwriting/

I know I found all of this shocking~ and I needed to be shocked out
of relying on the "medical" field, and directed to seeing what was
really working. Afterall all we want to do is heal ourselves or
someone we love.

I hope you all find your way to healing and certainly way way beyond
that. To the life you can Start dreaming about when health is no
longer your primary focus.

Think of the ways your expertise could be used in fundraising and
supporting fellow humans with their heart in the right place, rather
than companies with their heart drowned in $$.

Blessings and Health to you All, Alice

#76 From: "John latecki" <john@...>
Date: Fri Mar 12, 2004 4:26 am
Subject: Re: Well said John...
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Hello Peggy,

I don't know Montel personally, so yes  when I say I "like" him it is
mainly for what he does in the fight for MS.

It is sometimes hard to tell how people come across online because we
are just reading words and there is no voice or feeling to the print.
I  had people tell me I was coming across rude before and some people
have misunderstood  the meaning of my words online. If they would of
heard me say the words they would of understood the meaning.
I am with you on wanting to find a cure for MS!
John

--- In fightingms1@yahoogroups.com, Ice Princess
<iceprincess77.geo@y...> wrote:
> Hi John,
>
> I get your point. Is that the only reason why you like him? I'm not
trying to be mean or rude or anything like that. If I came across
that way, then I owe everyone an apology. I hope he or someone else
finds a cure for MS real soon!
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Search - Find what you're looking for faster.

#75 From: Ice Princess <iceprincess77.geo@...>
Date: Fri Mar 12, 2004 3:59 am
Subject: Re: Re: Well said John...
iceprincess7...
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Hi John,
 
I get your point. Is that the only reason why you like him? I'm not trying to be mean or rude or anything like that. If I came across that way, then I owe everyone an apology. I hope he or someone else finds a cure for MS real soon!


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#74 From: "John latecki" <john@...>
Date: Fri Mar 12, 2004 3:45 am
Subject: Re: Well said John...
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Peggy I think your missing my point. My whole point behind the fight
against MS is to win and find a cure like they did for Polio. It
matters not if the cure is found in America, Canada, or any other
country in the world. We are all on the same team in this fight
against MS.

So when you said "What about fighting for MS here in Canada? Has he
ever done anything for us? NO!"     You might think different if some
of that money Montel's MS foundation donated for MS research was the
test that found a cure. Montels whole entire focus is to find a cure
for MS and he will do what ever it takes and it is very transparent
to see. What exactly would you like to him do for Canada?

  If you think about Montel's MS foundation should have donated ALL
the $470,000
to American MS researchers, but no he had to send some of the money
to another country. Why? Montel looks for what he feels is the best
chance of finding a cure even it means in another country than the
one he lives in.

Montel has so much money he could pay someone to wipe his butt. With
all that money he has unlimited options with what he could do in life
and yet he spends so much time fighting for MS. It is very easy to
tell I like Montel because of what he does for MS.  We should just
agree to disagree on liking Montel. However like him or not he does
so much to help in the fight against Multiple Sclerosis.

John



--- In fightingms1@yahoogroups.com, Ice Princess
<iceprincess77.geo@y...> wrote:
> I said I DON'T LIKE MONTEL and I mean it. So don't come down on me
just because I do not like him. As I also said and you all know that
he is in the States. What about fighting for MS here in Canada? Has
he ever done anything for us? NO!
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Finance: Get your refund fast by filing online

#73 From: Ice Princess <iceprincess77.geo@...>
Date: Fri Mar 12, 2004 3:33 am
Subject: Re: Re: Well said John...
iceprincess7...
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I was not rude. I just said I do not like they guy.


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#72 From: "Dawn" <dawnsmspage@...>
Date: Fri Mar 12, 2004 2:08 am
Subject: Re: Well said John...
dawnsmspage
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Yes you are entitled to your opinion, as are the rest of us.
No one was rude to you, or "came down on you"...so lose the
attitude. John has created a positive & friendly place here...I'm
sure he wants it to stay that way.

#71 From: Ice Princess <iceprincess77.geo@...>
Date: Fri Mar 12, 2004 1:34 am
Subject: Re: Well said John...
iceprincess7...
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I am entitled to my own opinion!


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#70 From: Ice Princess <iceprincess77.geo@...>
Date: Fri Mar 12, 2004 1:33 am
Subject: Re: Well said John...
iceprincess7...
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I said I DON'T LIKE MONTEL and I mean it. So don't come down on me just because I do not like him. As I also said and you all know that he is in the States. What about fighting for MS here in Canada? Has he ever done anything for us? NO!


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#69 From: dawn ryan <dawnsmspage@...>
Date: Thu Mar 11, 2004 8:49 pm
Subject: Thanks Lori!!
dawnsmspage
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I appreciate it!!
:)
Dawn

Lori <cdnlady31@...> wrote:


Dawn <dawnsmspage@...> wrote:
Regarding the Montel comment...I was trying to think of a way to
reply without coming off rude, because that would not be my
intention...and you said it very well.
:)
Dawn


Dawn,

I too wanted to say something without coming across as being rude. I agree with you both

Lori


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#68 From: Lori <cdnlady31@...>
Date: Thu Mar 11, 2004 8:29 pm
Subject: Re: Well said John...
cdnlady31
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Dawn <dawnsmspage@...> wrote:
Regarding the Montel comment...I was trying to think of a way to
reply without coming off rude, because that would not be my
intention...and you said it very well.
:)
Dawn


Dawn,

I too wanted to say something without coming across as being rude. I agree with you both

Lori


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#67 From: "Dawn" <dawnsmspage@...>
Date: Thu Mar 11, 2004 6:54 pm
Subject: Well said John...
dawnsmspage
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Regarding the Montel comment...I was trying to think of a way to
reply without coming off rude, because that would not be my
intention...and you said it very well.
:)
Dawn

#66 From: "Patch Landers" <druidprince13@...>
Date: Thu Mar 11, 2004 12:59 pm
Subject: Newbie
druidprince13
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Hi, thanks to John for inviting me, although I haven't had an
opportunity to read many of the posts, the canoe trip sounds
fantastic as a way to raise awareness and interest in the cause of
MS. My wife was diagnosed in Dec. 2002. I don't have to tell you the
effect it has had on our lives, and thus, I won't waste the space
here to tell you right now. I'm just glad to know there are people
out there who care, and who work together to help destroy this evil
disease once and for all!
I look forward to chatting with everyone in the future, I have
returned to college pursuing a medical degree, so I may be hard to
reach occassionally, but I will answer any e-mail or IM's! Thanks
again John!!!

Patrick Landers
druidprince13@...

#65 From: "John latecki" <john@...>
Date: Thu Mar 11, 2004 3:01 am
Subject: Re: health care in Canada
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Peggy wrote  "As for Montel, he is in the States and yes he has MS
but who cares about him?" Hello Peggy, I have to answer you because
you put a ? at the end of your statement.

A lot of people like and care for Montel because of his talk show. I
like Montel because of what he does in the fight against Multiple
Sclerosis. Do you know he has his own MS foundation?
www.montelms.org  So far his foundation has given $470,000 for MS
research. Montel himself finds the best research centers which he
feels has the best chance to find a cure for Multiple Sclerosis. Not
all of these centers are in America. Montel's MS foundation donated
money for research at the Karolinska Institutet (Institute) in Sweden
which is known for their trailblazing efforts to find a cure for
Multiple Sclerosis. In America we have something called the FDA (food
and drug administration) which I feel sometimes puts to much
restrictions and waits to long to give approval to test certain drugs.
  My point is since your husband has Multiple Sclerosis and Montel
William's is one of the biggest leaders in the fight against MS you
would care about Montel, or at least what he and his MS foundation
does for MS.  Who really has more of a vested interest in the fight
against Multiple Sclerosis than someone with MS?
Montel himself outside of his MS foundation also raises awareness for
Multiple Sclerosis at the national level because of his talk show and
his speaking engagements throughout the country. You not even from
Americia and you have heard of him so he is very far reaching.   What
you wrote about Montel makes him seem like just another person with
MS and not a leader in the fight against MS. In fact if I laid
everything out Montel has done for the benefit of Multiple Sclerosis
you would be hard pressed and to find  anyone from Canada who has
done more for MS than Montel.
Thanks John

--- In fightingms1@yahoogroups.com, Ice Princess
<iceprincess77.geo@y...> wrote:
> Hello,
>
> I do not know a lot about the medicare system here in Canada since
my hubby's work pays for his drugs. He has MS and he is on a trial
drug for that. He has been for the last few yrs. His blood pressure,
Glaucoma and cholesterol drugs are paid for. As for marijuana, it is
approved here as far as I know, for a certain amount a month. You can
grow so many plants and that's it. You have to carry a special card
with you showing that you are allowed to have it for medical purposes
only.
>
> There have been a lot of million dollar drug busts here lately for
marijuana.They watch people and immediately follow up extensively if
they get any tips of anyone using, growing and selling it.
>
> As for Montel, he is in the States and yes he has MS but who cares
about him?
>
> Take Care,
> Peggy
>
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Search - Find what you're looking for faster.

#64 From: Ice Princess <iceprincess77.geo@...>
Date: Tue Mar 9, 2004 8:21 pm
Subject: Re: Re: health care in Canada
iceprincess7...
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Hello,
 
I do not know a lot about the medicare system here in Canada since my hubby's work pays for his drugs. He has MS and he is on a trial drug for that. He has been for the last few yrs. His blood pressure, Glaucoma and cholesterol drugs are paid for. As for marijuana, it is approved here as far as I know, for a certain amount a month. You can grow so many plants and that's it. You have to carry a special card with you showing that you are allowed to have it for medical purposes only.
 
There have been a lot of million dollar drug busts here lately for marijuana.They watch people and immediately follow up extensively if they get any tips of anyone using, growing and selling it.
 
As for Montel, he is in the States and yes he has MS but who cares about him?
 
Take Care,
Peggy
 
 


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#63 From: Lori <cdnlady31@...>
Date: Tue Mar 9, 2004 4:24 pm
Subject: Re: Re: health care in Canada
cdnlady31
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Hi John,
Yes there are difference in America when it comes to health care, it should be the same everywhere. I once wanted to move from Canada but due to the health care system decided I can't afford to and decided I best stay here.
Has for the OHIP and Trillium programs the OHIP is applied to all, the Trillium is a choice. I just learnt that about 4 years ago when I found I couldn't pay for my medication, the family doctor informed me of Trillium. As for higher taxes that does not apply.
As for marijauna for medical use, I know a certain amount is okay to carry. The amount I do not know of.
Take care,
Lori


John latecki <john@...> wrote:
Hello Lori,

There are differences between Canada and America when it comes health
care. Now does the OHIP and Trillium apply to everyone in Canada or
do you have a choice to be a part of it? It sounds like a good idea,
but the down fall would be higher taxes or maybe the quarterly
deductible cover that. No matter what if the system can help you get
needed medication if you can't afford it that is great.

Since your from Canada you might be able answer this question as
well. My question to you and anyone else who lives in Canada is what
does your government say about medical marijuana? I have read some
conflicting stories some saying it is a serious crime while other
stories say Canada has almost completely legalized medical marijuana.
Below is some info on how the United States is dealing with medical 
marijuana.

In the Unitied States there has been a battle for years to legalize
medical marijuana and many people with Multiple Sclerosis are leading
the fight. California has taken the biggest steps by allowing local
companies to grow marijuana and city officials in Sana Cruz handed
medical marijuana out to people with special prescription cards from
doctors.
Montel William's who hosts a popular talk show here in America
speaks out against drugs, but he takes medical  marijuana, in fact he
was arrested at an airport in Detroit for having  marijuana. Montel
had a medical card authorizing him to have it. Under current law in
Michigan ANY amount of  marijuana can land you one year in prison
whether you have a card of not.  However in Ohio which has the most
lax drug law in all the fifty states when it comes to marijuana a
person can have up to 100 grams of  marijuana and it is only a fourth
degree misdemeanor which is the lowest civil infraction the state can
give with a maximum fine of no more than $100 and they can take your
driving privileges for six months with no possible jail time. It
varies greatly from state to state and to make things even more
complicated it is against federal law to posses marijuana. Montel was
taking medical marijuana under the advice of his physician for his
chronic pain due to MS. 

John


>
> Hi John,
>
> I am a Canadian so I can give you some help to your questions about
health care. Even though we Canadians often complain we really
shouldn't. I am on Copaxone and if weren't for the government and the
help of my neurolist explaining that we couldn't afford the drug I
would never be doing as well as I have been. We have OHIP which pays
for most of the medications but often we do have to spend some big
money. We also have a drug plan called Trillium which works according
to your wages. Every 4 months you pay a deductible again according to
your wages then each prescription is $2.00. So quartley payments
which yes are hard hit at once but afterwards it is $2.00. Again the
less you make the less your deductible is.
>
> Hope this helped answer your questions of health care in Canada eh!
=)
>
> Take care,
>
> Lori
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Search - Find what you're looking for faster.



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#62 From: "John latecki" <john@...>
Date: Tue Mar 9, 2004 5:43 am
Subject: Re: health care in Canada
john_latecki
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Hello Lori,

There are differences between Canada and America when it comes health
care. Now does the OHIP and Trillium apply to everyone in Canada or
do you have a choice to be a part of it? It sounds like a good idea,
but the down fall would be higher taxes or maybe the quarterly
deductible cover that. No matter what if the system can help you get
needed medication if you can't afford it that is great.

Since your from Canada you might be able answer this question as
well. My question to you and anyone else who lives in Canada is what
does your government say about medical marijuana? I have read some
conflicting stories some saying it is a serious crime while other
stories say Canada has almost completely legalized medical marijuana.
Below is some info on how the United States is dealing with medical
marijuana.

  In the Unitied States there has been a battle for years to legalize
medical marijuana and many people with Multiple Sclerosis are leading
the fight. California has taken the biggest steps by allowing local
companies to grow marijuana and city officials in Sana Cruz handed
medical marijuana out to people with special prescription cards from
doctors.
  Montel William's who hosts a popular talk show here in America
speaks out against drugs, but he takes medical  marijuana, in fact he
was arrested at an airport in Detroit for having  marijuana. Montel
had a medical card authorizing him to have it. Under current law in
Michigan ANY amount of  marijuana can land you one year in prison
whether you have a card of not.  However in Ohio which has the most
lax drug law in all the fifty states when it comes to marijuana a
person can have up to 100 grams of  marijuana and it is only a fourth
degree misdemeanor which is the lowest civil infraction the state can
give with a maximum fine of no more than $100 and they can take your
driving privileges for six months with no possible jail time. It
varies greatly from state to state and to make things even more
complicated it is against federal law to posses marijuana. Montel was
taking medical marijuana under the advice of his physician for his
chronic pain due to MS.

John


>
> Hi John,
>
> I am a Canadian so I can give you some help to your questions about
health care. Even though we Canadians often complain we really
shouldn't. I am on Copaxone and if weren't for the government and the
help of my neurolist explaining that we couldn't afford the drug I
would never be doing as well as I have been. We have OHIP which pays
for most of the medications but often we do have to spend some big
money. We also have a drug plan called Trillium which works according
to your wages. Every 4 months you pay a deductible again according to
your wages then each prescription is $2.00. So quartley payments
which yes are hard hit at once but afterwards it is $2.00. Again the
less you make the less your deductible is.
>
> Hope this helped answer your questions of health care in Canada eh!
=)
>
> Take care,
>
> Lori
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Search - Find what you're looking for faster.

#61 From: Lori <cdnlady31@...>
Date: Sun Mar 7, 2004 9:56 pm
Subject: Re: health care in Canada
cdnlady31
Offline Offline
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John latecki <john@...> wrote:
Hello Everyone,
I was planning on doing an update Monday about how things have been
going. The bowling went great I have another fundraiser (video game
tournament) scheduled for 11 hours on Saturday.
I have a couple of questions for people who live in Canada. How is
the health care for people with MS in Canada? Also what is the deal
with prescription drugs in Canada? I have heard of several people in
the states going to Canada to buy prescription Drugs? Just curious of
the differences between America and Canada on health care.
Thanks John

Hi John,

I am a Canadian so I can give you some help to your questions about health care. Even though we Canadians often complain we really shouldn't. I am on Copaxone and if weren't for the government and the help of my neurolist explaining that we couldn't afford the drug I would never be doing as well as I have been. We have OHIP which pays for most of the medications but often we do have to spend some big money. We also have a drug plan called Trillium which works according to your wages. Every 4 months you pay a deductible again according to your wages then each prescription is $2.00. So quartley payments which yes are hard hit at once but afterwards it is $2.00. Again the less you make the less your deductible is.

Hope this helped answer your questions of health care in Canada eh! =)

Take care,

Lori


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#60 From: "John latecki" <john@...>
Date: Sat Mar 6, 2004 4:20 am
Subject: health care in Canada
john_latecki
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Hello Everyone,
I was planning on doing an update Monday about how things have been
going. The bowling went great I have another fundraiser (video game
tournament) scheduled for 11 hours on Saturday.
I have a couple of questions for people who live in Canada. How is
the health care for people with MS in Canada? Also what is the deal
with prescription drugs in Canada? I have heard of several people in
the states going to Canada to buy prescription Drugs? Just curious of
the differences between America and Canada on health care.
Thanks John

#59 From: nancy piersma <arcadianancy@...>
Date: Sat Mar 6, 2004 1:05 am
Subject: Re: Fw: Housing for a Lifespan
arcadianancy
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Hi Laura:  I can still do  most things but one thing is I cannot stand for a long period of time and cannot walk very far.  I did not know that i had ms until I was about 47 years of age.  But only 10% of people with ms have progressive ms like I do.  I know that I take much longer taking a shower and getting ready to go out than others do.  I think that it is very important to have a restroom which is built for those who cannot function so well.  Nancy

Laura <Laura@...> wrote:
Hello all,
 
I am just curious.  As caregivers, so's and those fighting a debilitating chronic illness, what do you all feel about your housing?
 
Attached is a questionaire that was sent out locally, but was hoping some of you could take a minute and fill this out for me.
 
We are struggling with the difference between what is "handicap accessible" and what isn't.  My son is multi-handicapped and so wider doorways and a bigger bathroom just aren't the only thing he needs.
 
How do you feel about it???  What would you suggest to others that can help you function at a better capacity?
 
Laura L
 
 


> ATTACHMENT part 2 application/msword name=request for needs identification individual version.doc


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#58 From: "Laura" <Laura@...>
Date: Sat Mar 6, 2004 12:57 am
Subject: Re: Childhood MS = Trip to Canada = Luke is 7!
lauralfw
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My friend,
 
In no way was I trying to be negative on Canada...  I was trying to make light of a tense and scary situation to me.
 
Your Country (Canada) are the only people with open minds enough to realize that there is such a thing as Childhood MS and are willing to spend billions of $$ on it to make a difference in my sons life all in the name of Research!!  Because of their love and compassion for something that's not supposed to happen to kids, my son might have a chance.
 
Yes, there is another MS specialist in New York, however, after talking with both, I felt closer and more personal to Dr. Banwell in Canada.  (Now pu-lease, nobody in New York please email me that this is being negative against the state.)  The Specialist in New York is a Adult Neurologist that specializes in Pediatric MS and didn't seem as warm and friendly.  I trust her (Dr. Banwell) with my life, my son - I just don't like the drive and there is nothing wrong with that.
 
Peggy, thank you so much for the birthday wishes for Luke and his true courage he is showing fighting chronic illness.  We are very grateful for the support we have been given here on the list and from the Specialists at Sick Kids for all of their help for our family.
 
Laura L
 
 
 
-------Original Message-------
 
Date: Friday, March 05, 2004 18:14:56
Subject: Re: [fightingms1] Childhood MS = Trip to Canada = Luke is 7!
 
I was just being defensive of what you wrote. Anyone else would do the same thing. 
 
I have also driven in the States and I drive on the 401, 402, and other highways here all the time. No one is going to tell me how our police act or should act, or how people drive over here who does not even live here. If you have a friend that lives here, good for you.
 
You can lighten up also. I've been driving since I got my license at 16 yrs. old. Many yrs. ago. I'm not about to go into my driving history.
 
I do not want to sound mean but I am very defensive to anyone who runs down my country like you did from someone from the States.
 
Peggy
 

#57 From: "Peg & Ron" <ronpeg@...>
Date: Fri Mar 5, 2004 11:14 pm
Subject: Re: Childhood MS = Trip to Canada = Luke is 7!
iceprincess7...
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I was just being defensive of what you wrote. Anyone else would do the same thing. 
 
I have also driven in the States and I drive on the 401, 402, and other highways here all the time. No one is going to tell me how our police act or should act, or how people drive over here who does not even live here. If you have a friend that lives here, good for you.
 
You can lighten up also. I've been driving since I got my license at 16 yrs. old. Many yrs. ago. I'm not about to go into my driving history.
 
I do not want to sound mean but I am very defensive to anyone who runs down my country like you did from someone from the States.
 
Peggy

#56 From: "Laura" <Laura@...>
Date: Fri Mar 5, 2004 10:59 pm
Subject: Fw: Housing for a Lifespan
lauralfw
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Hello all,
 
I am just curious.  As caregivers, so's and those fighting a debilitating chronic illness, what do you all feel about your housing?
 
Attached is a questionaire that was sent out locally, but was hoping some of you could take a minute and fill this out for me.
 
We are struggling with the difference between what is "handicap accessible" and what isn't.  My son is multi-handicapped and so wider doorways and a bigger bathroom just aren't the only thing he needs.
 
How do you feel about it???  What would you suggest to others that can help you function at a better capacity?
 
Laura L
 
 

#55 From: "Laura" <Laura@...>
Date: Fri Mar 5, 2004 10:51 pm
Subject: Re: Childhood MS = Trip to Canada = Luke is 7!
lauralfw
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Hi,
 
This has been my third trip in about 7 months.   Rarely was there anyone going the posted speed limit.  I was on the 401 to 403 and QEW.  Where there were 4 lanes or more it was hairy.  I stayed out of the left lane and kept it moving slower.  Even so, cars were weaving in and out, all of a sudden right on my tail.  This doesn't matter what time of the day/night it seems.
 
I am not trying to be offensive, and it doesn't surprise me that I'd get pulled over quicker because I am from the states and yes I do know the difference between kilometers and mph.  We have travelled through Chicago and Detroit many times and it was definitely a little harried than there.  I have travelled in Canada many times, but not these particular roads.
 
BTW- one of my closest friends in Essex's sister in law is a cop. 
 
Lighten up.
 
Laura L
-------Original Message-------
 
Date: Friday, March 05, 2004 17:40:06
Subject: Re: [fightingms1] Childhood MS = Trip to Canada = Luke is 7!
 
You said:
 
>Wow!  Its like the audabon there traffic wise!  Kill or be killed.  I thought about calling a Canadian friend of mine to find out what the "real" speed limit was LOL...  You know, in the US you can usually go about 5 mph over but in Canada they weren't paying any attention whatsoever.... either slower or FASTER, like faster than the speed of light!!!<
 
No, I don't think so. Kill or be killed? Are you serious? You should have called some Canadian friend! You make that sound like it's a war over here on our highways! You can only go a little over the speed limit here also which would be about 5 mph. Our speed signs are in "kilometers" not MPH! If you are going to drive on our highways, learn what "kilometers" mean.
 
>but in Canada they weren't paying any attention whatsoever.... either slower or FASTER, like faster than the speed of light!!!<
 
>"they weren't paying any attention whatsoever...."< So? How fast were you going?
 
Do you know what our O.P.P. cop cars look like? We also have plain unmarked "cop/detective"cars! You are lucky that you did not get stopped and fined for speeding.
 
On your next trip to Canada, take notice and learn what km. are for the speed here, and of this message and watch yourself. THEY WILL NAIL YOU, especially when you have an American license plate! You will not get away so easy next time!
 
Peggy
Ontario, Canada
 

 
Artist unknown- No infringement intended
Letter created by
 

#54 From: "Peg & Ron" <ronpeg@...>
Date: Fri Mar 5, 2004 10:40 pm
Subject: Re: Childhood MS = Trip to Canada = Luke is 7!
iceprincess7...
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You said:
 
>Wow!  Its like the audabon there traffic wise!  Kill or be killed.  I thought about calling a Canadian friend of mine to find out what the "real" speed limit was LOL...  You know, in the US you can usually go about 5 mph over but in Canada they weren't paying any attention whatsoever.... either slower or FASTER, like faster than the speed of light!!!<
 
No, I don't think so. Kill or be killed? Are you serious? You should have called some Canadian friend! You make that sound like it's a war over here on our highways! You can only go a little over the speed limit here also which would be about 5 mph. Our speed signs are in "kilometers" not MPH! If you are going to drive on our highways, learn what "kilometers" mean.
 
>but in Canada they weren't paying any attention whatsoever.... either slower or FASTER, like faster than the speed of light!!!<
 
>"they weren't paying any attention whatsoever...."< So? How fast were you going?
 
Do you know what our O.P.P. cop cars look like? We also have plain unmarked "cop/detective"cars! You are lucky that you did not get stopped and fined for speeding.
 
On your next trip to Canada, take notice and learn what km. are for the speed here, and of this message and watch yourself. THEY WILL NAIL YOU, especially when you have an American license plate! You will not get away so easy next time!
 
Peggy
Ontario, Canada
 


#53 From: "Laura" <Laura@...>
Date: Fri Mar 5, 2004 10:03 pm
Subject: Childhood MS = Trip to Canada = Luke is 7!
lauralfw
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Hello,
 
We had a good trip to see Dr. Banwell last week in Toronto, Canada.  Luke was hooked up to electrodes for a few days as you can see in the picture.  His friend, "Buck" stopped by to visit.  Luke was a really good kid all week.  I was very grateful for that since it was just the two of us.
 
The drive there was long but uneventful, about 8 hours.  Wow!  Its like the audabon there traffic wise!  Kill or be killed.  I thought about calling a Canadian friend of mine to find out what the "real" speed limit was LOL...  You know, in the US you can usually go about 5 mph over but in Canada they weren't paying any attention whatsoever.... either slower or FASTER, like faster than the speed of light!!!
 
Luke was evaluated by a Behavioral & Cognitive Team the first day.  Bad news is that he scored even lower on the disability scale.  It's taken him 4 years to gain a year developmentally in some areas, in others there has been 0 gain.  They all met with me after we were admitted to the (Sick Kids) hospital and they were so funny.  Every one of them was beat!!  They said we now know what you mean when you say he exhausts you!!  HONESTLY!  There were a few that looked like their hair went through a wind tunnel. 
 
We are scheduling a tele-conference with our team of caregivers and all of the PT's, OT's, Docs, Specialists, Teachers....etc involved with our son with the Behavioral & Cognitive Assessment Team and the Nuerologist, Dr. Banwell.  Should be interesting!  They are going to share their evaluation and discuss other treatment options.  We have noticed another change in him this past three weeks.  A Lot of eye blinking, behavior problems, imaginary opening and shutting doors talking to people....  oh, and chewing.  Everything goes into his mouth....  the TV remote, his shirt, our shirts, blankets....  He also has been rubbing his head.
 
Luke is into month two of the Avonex shots.  Breaks my heart and ruins our weekend.  Sometimes his side affects are scary.  Horrible body chills, aches and pains, and his apnea monitors & pulse ox show a very high heart rate.  Sleeping it goes over 180 to 190's.  We do the ibuprofren before he gets it and then later at night.  We are grateful that the school nurse is really good about this.  We have a hard time giving him the shot.  I don't know what we are going to do in the summer.  Poor kid, he only gets 2 weeks of summer break and then he's off to summer school.  Our insurance doesn't help with nursing.
 
The weakness has spread up into his upper thigh and trunk area.  Although the hands are strong, the trunk isn't.  His gait has changed, they call it a Trendelenberg gait indicating hip weakness.  This comes and goes.  There is a bilateral foot drag with ankle inversion, right greater than left.  Basically, now his left foot drags too.  :0(
 
Through this all he is now a big 7 year old!  Luke turned 7 on Tuesday, March 2....  He had a good time.  As soon as my pictures develop I'll send them over.
 
Oh and last month, I pulled a muscle again lifting him.  The PT found a lump in my back.  The Hospital did a ultra sound and it looks suspicious.  I am supposed to have surgery on March 15, but will probably reschedule.  Can't imagine going through surgery right now and being laid up.  Just can't do it.
 
Laura L
Luke's mom
 
 
 
 
 
 
 
 

#52 From: "Laura" <Laura@...>
Date: Thu Feb 19, 2004 2:41 am
Subject: Re: Laura & Luke...
lauralfw
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 Thanks!
 
Laura L
 
And Little Man
 
-------Original Message-------
 
Date: Sunday, February 15, 2004 3:01:07 PM
Subject: [fightingms1] Laura & Luke...
 
HI...
 
I just wanted to let you know that both Jake and I are sending
(((((HUGE HUGS))))) Luke's way...and yours too! :)
XXXOOO
Dawn & Jake
 
 
 
 
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