Hi all,
My name is Stephanie. I am new to this group and I would like to
introduce myself. I am from Missouri, and I have had MCS since i was
in third grade. I was expelled from my catholic school when I was
getting ready to enter my 6th grade year. They no longer wanted to
accommodate my sensivities. I then went to the public school, and
was fully accommodated I was even able to attend a "fragrance free
prom" how exciting huh. When I am exposed to chemicals I get a
headache, asthma, and it can even get as bad as anaphylactic shock.
Well, just a couple of weeks ago I was hired as the first MCS
information specialist at the Independent Living Resource Center here
in Mo, and I know how it is living with my MCS, but MCS is so
individualized for each person, and I was wanting to learn more about
other people's MCS. Along with learning about it I also want to know
the different things I can do to help other people in the MCS
community. I am really excited about this project. One of my main
goals is to bring the awareness level up. One thing we have already
done it is made a recording of two different teleconferences w/ a
package of accommodations made around the area. The first
teleconference was with people around the state of MO talking about
their MCS and problems they had with it and what it's like to live
with it. The second one was a national teleconference. If you have
any advice or answers to any of my questions please help me with my
project, thank you and feel free to contact me personally if you
would feel more comfortable
~Stephanie