Hi, I have only just found this group and I am at the end of my tether!!! I should introduce myself and my little man first before getting into this too...
Thanks so much for the feedback - Regarding the rx for pedisure - We do not have medicaid. Is that based upon your income? How do we apply for that? Also,...
I have fought a feeding tube for Eli for a year now, but tomorrow I am going to tell the GI doctor that I am ready for him to have one. Eli's eating has just...
Erica, I remember those same feelings. We fought it for a long time too. We felt defeated at first. After we adjusted to the tube, we used a natural foods...
Dear Advocate, Yesterday, IL Governor Quinn proposed a version of the budget that COMPLETELY ELIMINATES FUNDING for critical services for young children and...
I added the food chaining blog to the links for this list. Don't forget to check out the links page for additional info on many things and send me any links...
Thank you so much for your encouragement, Rachelle! It helps me so much to hear your son's success story. I know that a tube is the right thing for Eli- I...
It was either on this group or the "children with failure to thrive"  group that I learned any child labeled by a doctor as "failure to thrive" will qualify...
It may not be really that he regressed but that he did not progress as fast as the typical kid. He is now being measured against older kids. So if he was say...
Hello. I'm sorry that you are going through such a hard time.  We can all relate to your frustration in our own ways.  Have you had any evaluations for...
Hi, What genetic disorder does he have? My son has Prader Willi Syndrome also a rare genetic disorder. He was hypotonic at birth and pretty much up til now...
I'm sorry I missed the NG part :( ________________________________ From: Gayle Dellow <gdellow@...> To: feeding@yahoogroups.com Sent: Monday, June 1,...
Hi Jayne, Thanks for the advice regarding the teats and bottles. We do use the NUK bottles and we do still try an oral feed before putting it down the tube!!!...
No problem; I definitely understand the frustration. These chromosome disorders are something else aren't they :). It used to take Hunter close to 35 to 40...
Gayle, Â Sounds like feeding is tough for little Alfie right now. Hang in there. I am a speech therapist who works with kids age 0-3 on speech and feeding as...
Hi Erica, I hope to have more time to reply tomorrow but just quickly to give you hugs! We first had a feeding tube suggested for Thomas about 16 months ago...
Have you found a support group for his specific disorder? That can be so helpful too. What are the docs and you doing to deal with the vomiting and hopefully ...
I guess I am kind of lucky that dd has food allergies. It has let me know about so many totally tube fed kids who are not slowed down by it at all. 1 little...
Hello – My son has finally made son progress with eating table foods at 19 months, however, he will only eat `sweet' table foods like: yogurt, donuts,...
michelle, If a remember correctly pedisure is nutrionally complete 100% of the daily requirements - check the can - that should take some of the pressure off....
Try sweet pototoes mixed with other foods. I buy a candied sp bran in a can - its high in calories but gets the vit C in him then I add other foods to it to...
Hello I am a speech/ feeding therapist and I have MANY packages of Simply Thick gel that is used to thicken liquids. I have nectar thick and honey thick. They...
Hi Erica, My daughter had the MicKey button placed rigt from the start. She was 2.5 years old at the time and it happended about a year and a half ago. It took...
Hello Gayle You have come to the right place - you will get loads of good advice and make good friends in this group. My own dd also would not feed - her...
G C Haywood
gchaywood@...
Jun 3, 2009 8:30 pm
53808
My son likes "sauces" and baked beans. He will dip just about anything in bbcue or ketchup, sounds gross to us but if green beans and carrots are eaten who am...
Thank you to everyone who offered advice and encouragement regarding my son getting a feeding tube! I felt uplifted, for sure, and not as scared about our...
Well more than a few tires for new foods, maybe like 20 or 30 tries. Not that many in the long run so don't give up too soon. Actually it doesn't sound a...
Yup, we've been in that position before :-( I had to fight to get Carissa her tube and it took quite a long time from the time other doctors said she needed it...
We finally got moved to our new house. It is big and beautiful and I still can't believe it is mine! The kids love it and the house isn't a wreck all the...
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