Hi Eleanor! Ugh, I remember posting here about feeding the bed! Carissa's extension would lie flat against her tummy so we ended up using an ace bandage or ...
I'm sorry you are having this problem. I fed the fed my precious breastmilk many times and cried every time I cleaned it up because I worked so hard to make...
Do kiddos taking this ever get off it? How long have u all been giving it? Just wondering what to expect and what ur experiences have been with it. We just...
I think it depends on why they are taking it. If it is for appetite stimulate I think it's not used more than 8 weeks? My daughter takes it for motility, and...
My son has been using Periactin on and off since he was 2 for appetite stimulation. It only works for a short time for him to help appetite so it is...
I didn't know that Periactin is for motility too? My son has slow gastric emptying. His GI never mentioned Periactin as an option to give for that. (We...
Yes, Reiley had a motility study done - ADM and it showed that she has constant activity, and has a neuropathic motility disorder. I'm not sure if the...
Hi all Here I am again so frustrated and sad.? Benjie is not eating well once again.? The school's protocall, force feeding, and tasting new textures and new...
maia381@...
Mar 3, 2009 5:50 pm
53199
I'd introduce a drop of the new drink into his Pediasure and change very very very slowly. Would water be an ok drink after the surgery? If so I'd do that....
Maia, We have also had a bad experience with a feeding clinic. In fact, the OT that worked with him caused him to acutal eat LESS. He started losing weight...
Thx susan. Is it working for reiley? What are motility issues. I think someone else said it helps with dge? Eva ... From: Susan Lake <emhboo@...> Date:...
There are all kinds of motility issues. Hers is called a neuropathic motility disorder. She has constant spastic activity in her bowels. What that means...
My 19 month old takes Periactin as an appetite stimulant; we do three weeks on and one week off. This is the third month she has been taking it. I'm not sure...
I'm noticing that too. He zoned out and had 30 bites of steak on his own last nite and then out of nowhere he got really cranky and tired! Is she eathng better...
Glad to hear that she is growing though! ... From: Susan Lake <emhboo@...> Date: Wed, 4 Mar 2009 20:22:30 To: <feeding@yahoogroups.com> Subject: Re:...
Hello, Our DME company sent us the Enteralite 1000 mls bags which I DON'T like. If anyone would like to swap out our 1000 mls bags for 500 mls bags that would...
Pizza is a weird combo of textures. To start will he eat breadsticks( like the crust)? Then try breadsticks dipped in pizza/tomato sauce. Actually if he...
My son hates tomato sauce (any sauces for that matter). He only eats the crust off of pizza. I used to order a special sauce free cheese pizza just for him...
What doctors call supplements given to those suspected/confirmed of mitochondrial disorder. Depends on the patient on the "cocktail" Reiley receives...
Our GI just put my son Eli on Periactin today to hopefully increase his appetite some. I was reading about the side effects, and both "drowsiness" and...
Erica, Â Â Our GI prescribed it for my daughter a couple of months ago as an appetite stimulant. We use it sporadically, because while it does increase her...
Cereal can be a bit constipating in many kids. Maybe she is just super sensitive. I would ask the GI about "the oils going right thru" her and this but...
I just received awful news from my daughter's support coordinator. Arizona is going through some MASSIVE cuts in DDD, DES AzEIP (early intervention). My...
That is horrible it appears that your state takes from the most needy first. ... From: Susan Lake <emhboo@...> To: feeding@yahoogroups.com;...
maia381@...
Mar 6, 2009 6:50 pm
53217
So sorry to hear about your loses. Sounds like backwards thinking on the states part. Would make more sense to put money towards intervention I would...
This state would rather make sure that prisoners have adequate rehab services than the children who need early intervention, services and therapy. They would...
Hi there everyone, I'm Regina, mom to 13 mo old Eicca. We are dealing with severe food aversions since birth basically. He never seemed hungry and afte trying...
Susan,  Big hugs coming your way. I hope that in the end that things turn out right. Fight for her and fight for those hrs back for her. They don't...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
