Hi. I noticed last night that my son's button was sliding a lot further out of his stoma than usual, and he winces when it comes out that far. Actually, he has...
Hi, Angie Where do you live? If you lived in MN, I can give you one. But I think the best way to do is go to ER to have the doctor put in the new one. I hope...
Thanks. I'm in Indiana though, and two hours from the ER, but I think we will end up there tomorrow. There isn't anyone in the hospital right now that...
Angie, Does your son have a mic-key button??? If so when you get your kit there should be a small syrgine that only holds 6cc of water - you put that syrgine...
Hi, Angie Do you have syringe? If you do, put empty syringe in the Mickey, pull the syringe to see how much water left in the Mickey. If less than 5 cc, put...
Thanks. Unfortunately, a g-j tube has to be changed in radiology, which is why I have never been given the syringe out of the kit. They do everything...
No, they did not give me the syringe, so I do not have one. I do appreciate the offer of help though. I have a friend here in town that is one semester...
If it does come out because th balloon breaks you can still wash it off and stick it back in and tape it to him to keep the stoma from closing. We've never had...
FYI From: moderatorcentral@yahoogroups.com [mailto:moderatorcentral@yahoogroups.com] On Behalf Of Gordon Strause Sent: Wednesday, December 24, 2008 6:53 AM To:...
you don't even have a small syringe for medicine? That will work too. Any 12 cc less syringe will work. I hope i can help you out. I hate to see you drive 2...
Thank you. There is actually enough interior tubing, that I don't think it will come all of the way out. It threads to his intestines. We did have it...
Winni, Thank you for trying to help. Someone else told me (possibly on tubefeeding group) that a regular syringe would not work, so I did not try. I did...
I just wanted to let everyone know that we are on our way to the hospital to have it checked out in radiology. They said that IF it is out of place, they will...
Angie, You are right - a regular syringe will not work what you need is one that the tip is small - I believe they are called monjects, but I could be wrong -...
Good luck. Sounds to me as if yuo have not been given enough info about mic - key care and maintenance to do at home - i would not change them ( the hospital...
G C Haywood
gchaywood@...
Jan 2, 2009 8:18 pm
52831
Marilyn,  First of all, your husband sounds quite handy!  I am going to do one post so I do not have to repeat today's experience.  You are right about...
Well, what a day. Justin has been experiencing horrible pain. He cannot tell me anything, but he has been screaming (his painful cry), and wants us nowhere...
HI, So sorry you have to been through this today. I wish they found out what is going on with Justin before they sent you guys home. Do you think it might be...
Angie, I fell so bad that you had such a horrible day! I was hoping things would have turned out better. It definetly sounds like Justin's button is leaking....
It doesnt sound like you are being well served by the "experts" -i think you need to take him back to be seen again pronto - this does not sound like just a...
G C Haywood
gchaywood@...
Jan 3, 2009 5:50 pm
52836
I am so sorry to hear that you are having such a hard time with Justin. I hope you are able to get the tube fixed sooner than later. There is definitely...
Hi! My son has a Mickey too! When it becomes painful, it has been because the balloon needed to be refilled. Sometimes they leak when they get older. I ...
Tammy Vatthauer
tjvatt@...
Jan 3, 2009 6:58 pm
52838
thank you. I am speaking with her Tuesday To: feeding@...: moekurm@...: Fri, 26 Dec 2008 17:07:25 -0500Subject: Re: [feeding]...
"Feeding is the only activity that involves all your organs and all of your muscles," she said. "Everything goes into feeding, so everything impacts it." Â Â ...
Hi. I e-mailed my son's former pediatrician last week when the problem first started. Unfortunately, she did not check her e-mail over the weekend. ...
Hi- My daughter is almost three and had a laryngeal cleft repaired this past September. She has had issues swallowing her whole life and her feeding...
Hi Stacey, My only knowledge has to do with my son so hopefully it will help... My son DOES have alot of other issues, including Down Syndrome, sensory issues,...
So Angela, what is happening now? Have the hospital sorted things or is he still in pain? Thinking of you both - you shouldnt have to be going through all of...
G C Haywood
gchaywood@...
Jan 6, 2009 6:15 pm
52845
Hi Krissy- Thank you for your response. It does help. Our ENT trained under Dr Cotton. He did say that her swallow has been abnormal her whole life so the...
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