I joined this group to get some insight and advice and read most of the postings but I really need help. My son is 2 years old as of yesterday and has never...
... too – ... Peter was ... – he ... still in ... them ... box from one ... – little ... I can only imagine. Sounds just like Danny was. It all probably...
(((HUGS))) and welcome. Sorry you have to be here, but you came to the right place :-) You are definitely not alone!!!!! I'd say at least half of our kids fit ...
Welcome to the group, and I know that everyone here will support you and help you out. We have each come across one or more things we have in common.  I...
I've been away awhile due to my son's bday, then him being sick...but your son sounds EXACTLY like mine!! Down to every last word of your post!! I'm very...
Bobbi, I've got to prepare for my Cub Scouts Pack Meeting, which is tomorrow (I'm in charge) so I have to be very quick. My son takes Risperdal because his...
well hernias can develop any time. And if the esophagus is being damaged of course things can change there. But I think you are asking reasonable questions ...
Well when it rains it pours!!! I'm waiting for GI office to call and give me dates for PH probe, endo, and motility clinic. Carissa has been getting stranger...
Oh hugs Michelle! It never really stops does it? We're in zombie mode round here as well with Thomas not sleeping through either at the moment. Poor Peter...
OMG I guess it doesn't! You poor guys too. No sleep is such a killer. Carissa's worst hours are between 3 and 6 am too. Sometimes I can get her to settle back...
Good luck Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks, 1 lb. 3 oz. G-button for hydration and meds, Missing right cerebellum, Glasses, Chronic lung ...
Thanks:-) I haven't heard anything back yet. I'm giving them until Monday afternoon unless we have MAJOR issues come up again before then. I'll post with the...
I am soooooo frustrated! I had an inkling this would happen but it’s just so unbelievable! Thomas does NOT qualify for the feeding team. I just wish instead...
Eleanor, This may sound stupid, but I'm sitting here crying from your post. I'm next to ya dear :-( We have the same problem with Carissa. The button has just...
Wow, how bad would you have to be to qualify? For now build him up as much as you can with the supplements then we will help you find the next step. Of course...
You know pear juice is better for constipation than apple jucie which can be a bit constipating on it's own. Also everyone's motility is slower overnight so...
GI nurse said AJ and I didn't even question it, but you're right. I wish I would have thought of that. It would explain why she's doubly constipated today....
Eleanor, How old is your son? Can u get a scale for home so that you can weigh him weekly yourself? That's what I do between pedi appts. He also gets weighed...
I was wondering if any of you have information on the feeding clinic in Omaha at the Monroe-Meyer Institute? My son will be turning 2 and has had trouble since...
OK so I went ahead and got groceries today and picked up pear juice. Finally got 4 oz into her and still no good. She was soooo distended, but didn't seem to...
Thanks. I'll have to try that. Carissa has chronic constipation so it's something we struggle with pretty much daily. It's just that some days get REALLY bad...
I feel like I'm already walking on thin ice with the GI. HE's the only dr we have left that is doing anything at all for Carissa. All the other specialists...
       I am sorry She is having such a hard time. My daughter wakes up screaming several nights a week so i understand how you feel . Luckily i...
That's just it. The only meds. she's even on right now is lactulose for the constipation. That's why we're starting all over with the testing. He never did any...
    I can not believe with her symptoms the GI has not done a gastric emptying study on her.  Of course slow motility not only affects her stomach but...
He has had numerous sleep studies done and what is actually causing him to be so tired is the fact that through the night brain shows frequent spikes and waves...
Thank you for the feedback and welcoming me. The past two days have been insurance nightmare, we are under appeal with the hopsitals attorneys. At this point...
Thank you for the feedback and welcoming me. The past two days have been insurance nightmare, we are under appeal with the hopsitals attorneys. At this point...
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