Michelle, How is Carissa doing now? Lillian does kind of the same thing. She will throw up with tube feeds but if you put the same thing through her mouth, she...
I wouldn't try to wash off the treated areas, that will expose fresh flesh that may be extra tender and could develop granulation as well. Just keep the area...
I wasn't really trying to clean off the treated part. That is kind of peeling away on its own and it is red and raw looking underneath. She was messing with it...
They only thing I can think of is to cover it with a bandade and put A&D on it. That skin was cortisone and eventually this will peel away and will hurt,...
Angie One of the reasons why I went with a g-tube was because my dd sneezed out her weighted NG-tube after a night time tub. We were in ER until 3:00 in the...
Donna, I'm so happy for you and for Natalie. Justin has passed a feeding study without any aspiration (I know, that doesn't mean he doesn't do it), and can...
OH OUCH!!!!!! So I guess we just have to wait for her nails to grow out then huh? Poor baby....I guess next time I will have to tape sock on her busy hands!...
Glad to hear Natalie is doing so well!!!! Carissa always sneezed out the tubes when she was in the hospital and drove the nurses crazy. She had at least a...
Sounds a bit like my son, aged 2. He also chews on his tongue regularly, and he prefers dry and crunchy almost all the time. (He refuses purees altogether)....
Pediatric Therapy Tools for Children with Sensory Disorders! The Miracle Belt is a pediatric therapy tool which promotes self-calming, balance, and increased...
It has been recommended to us to try these with Parker. We brush his teeth 1-2 times per day (and have been for over a year now) and he still screams and...
Hello, Does anyone have any experience with the inpatient feeding program at Children's Hopsital Boston? My son is 7 months old and is on the decline with...
Hi Courtney, Thanks for responding! That's exactly what I imagined about the NG tube. It can't be comfortable and my son is so sensitive as it is that I know...
hi there, sorry to but into the post, but am wondering how your docs came to the conclusion of delayed gastric emptying.... my son's upper GI showed that he...
So I took Silas into the feeding clinic to have the nurse look at the G-tube. She had concerns that he was screaming when she touched it, although she can't...
Amanda Marshall
amandamarshall@...
Jun 2, 2008 10:29 pm
50668
Hello, I received the below recall information from the FDA and though I would pass it along: Abbott notified consumers and healthcare professionals of the...
Amanda, around Christmas time, my son had the same problem with his button. He wouldn't let me touch it and I could never take off the extension because he...
Hi- We use Children's Hospital Boston for their GI docs and Aero-Digestive Clinic, but not their feeding program. I am not sure about their inpatient program...
Autumn, Thanks for the info. I'm going to check in about the other tube. Also see what the doc has to say tomorrow. How did you figure out the amount of...
Amanda Marshall
amandamarshall@...
Jun 3, 2008 4:14 am
50672
Eva, These are just my thoughts, opinions,experience and things I've either seen, heard, or read, and I hope that if I'm wrong someone will jump in and say so....
Amanda, I am so sorry to hear that Silas has lost so much weight. I know that heart sinking feeling to get that kind of a report, but I am praying that now...
Ami, Welcome to the group. I'm Nicole mom to dylan 8yrs old developmentally delayed, adhd,odd, gerd, very picky eater, mood swings, mr, ld and...
I have not tired this before, but I do know that dylan used to have a weighted vest weather or not they still use it with him I don't think so. ...
Amanda, Hi, Prays coming your way to hope you find out what's going on. Now with phoebe she has no issues besides her pooping problems. She...
i bought one for Silas..it has a 30 day money back policy so thats good and i was reading and this sounds good to... Do you offer a Refurb Program? Yes. Our...
Hi Eva, I'm sorry to be the bearer of bad news, but our experience with the feeding team at Chilren's Hospital Boston was not good. My son was admitted...
well, calorie counting is easy for us because my son gets 90% of his nutrition from formula (via tube). He gets 26-30 ounces/day at 30 cals per ounce. I...
Hi, My daughter has done all the rounds with Children's Hospital Boston regarding the feeding team. Unless things have changed in the last 3 months, there is...
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