Hello, I have posted a few posts this week. and they have mostly been about my frustrations and unsureness of what to do. so the question I pose this morning.....
Amanda Marshall
amandamarshall@...
Mar 1, 2008 3:34 pm
49548
hi if i were you i would feed him through his tube since he has lost weight and wants not much to drink. Regardless of whatyour bad ped. says , that is the...
I say go with your gut. Your instincts are almost always right. Dana ... From: Amanda Marshall <amandamarshall@...> Hello, I have posted a few posts this...
Hello Amanda, I havent been keeping up with posts much but noticed this one. We have four tube fed children for various reasons. First, the fight and pressure...
Unfortunately whether to feed through the tube must be a doctors order. You can get in a lot of trouble for doing it without one. I would call your GI and...
I am sorry, but this statement angered me. If my child has a tube and is not eating enough to sustain growth, I am gonna use it no matter what some quack dr...
I agree with you Jennifer. If my son had a feeding tube I would definitely be using it. But the law states that you can not make those types of medical...
What law states that? I have never heard of such as thing as a dr ordering you not to nourish your child when you have the capability of safely doing so. ...
So glad to hear things went well in the end -how very brave you were. Love from Fiona and Mary in the Isle of Man, British Isles. ... From: Jackie Hafter To:...
G C Haywood
gchaywood@...
Mar 1, 2008 9:04 pm
49556
Hello everyone, I have not posted for a long time.We have been busy with our daughter feeding therapy. We chose not to go with feeding clinics. We did receive...
I would love more infor about hirsprungs. as to follow up with GI we have it booked for the last week of march! I will be tubing Silas. and tellung the GI...
Amanda Marshall
amandamarshall@...
Mar 1, 2008 11:09 pm
49558
FWIW I have been giving my dd water through her g-tube since August. We haven't given her any pedisure through the tube since then. I was told that before they...
Please excuse me, but if he was given a tube for failure to thrive, then why is it used only for med's. My dd has a failure to thrive diagnoses and we were...
Wow - great news! When you have time (LOL), would you post some of the practices that worked for Stacie? Do you have books or research you could recommend? ...
I think it is time to change ped's. I would not tolerate a ped telling me they hate me because they had to make a special trip to the hospital to help you. I...
I agree. That is a very horrible thing for ANYONE to say, let alone your PED!!!!!!!!! Canada is supposed to have great medical coverage so if possible, I...
We are in the process of finding a new PED. The one we have been referred to by our pulmunologist (who is awesome) is back in on Monday. So I will call both...
Amanda Marshall
amandamarshall@...
Mar 2, 2008 5:47 am
49566
Althought I have not researched it I have nerver heard of such a law. I have a doctor's order for the pump and supplies. That order is good for one year and...
The law is under the child protection act. It says you cannot do medical procedures without the consent of a doctor. This includes a very wide spectrum of...
Hello! My name is Courtney and I live in Tennessee. I have 3 children with their own sets of problems. My 3 year old has recently been diagnosed with ADHD. We...
CONGRATULATIONS!!!!! My daughter is only 19 months old, but I so wish we were at the point that we could remove her Mic-Key. We are going to switch it to a...
Has anyone used a feeding program/clinic or taken their child to a feeding program? Which one did you use? What type of results did you get from it??? We are...
Tawnia, Congrats. You did it. It is alot of work like you have said. To this day I am still having problems with dylan who isn't on a feeding tube with...
Courtney, Welcome to the group. I'm nicole mom to dylan 8yrs old developmentally delayed, adhd,odd, gerd, very picky eater and more and mom to phoebe 3yrs...
Hi Courtney, You sure are a busy mommy. I'm Michelle, mom of Bryce age 10 with g-tube and ADHD and Analeah 5, small, but no problems. It's hard enough for me...
Courtney, Hi. Welcome. I'm Angie. I have a six year old, Emily. She is very strong willed, energetic, and sometimes makes me want to pull my hair out, but...
Hi Courtney, Welcome to the group. I am not here much anymore as my son's problems have been resolved, thankfully, since he was 6 years old, he is currently 9...
Darla, Thank you so much for writing me and it is wonderful to meet you. A trache has been mentioned with my youngest child, but we are trying to avoid that....
Angie, Could you explain the G-J Tube??? My daughter Lillian has had tons of problems tolerating her feeds. Does the G-J Tube help with this? My daughter and...
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