I know some are dealing with Asthma / COPD Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks, 1 lb. 3 oz. G-button for hydration and meds Missing right...
hope none of you are using this. I know my dd loves pizza Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks, 1 lb. 3 oz. G-button for hydration and meds...
One other thought - Hanna Andersson has PJs up to 90cm (3T) that are one piece without feet. Although expensive, they last a really long time. Also, LL Bean...
I like the halo sleep blankets as the zip goes down, not up, so all the wires/tubes come out at the bottom. I also found that it makes climbing out of the crib...
Thank you. I will check them out if we ever get away from the apena monitor. ... From: susie_lh_curry <susie_lh_curry@...> To: feeding@yahoogroups.com ...
I'm at a loss and completely frustrated. I have a 2 1/2 year old son who has GERD, gastroparesis, cyclic vomiting syndrome and a g-tube. We recently went to...
Karen, How frustrating. Gosh, I thought Kennedy Krieger is supposed to be tops in the field of feeding disorders. So sorry to hear that things aren't going...
Hi All, I am informing you about the details of a wonderful website which helped me to maintaining proper health, please visit this site. The only way to seek...
Real Families Real Answers, the documentary we are going to be on has a blog here. They have updated their site and put us on their blog. Also read my blog...
Korbyn is 8 and has always been on a continuous feed at night. Changes are in order and I need your help. Where do I start in getting the schools to help with...
What changes are in order? The school nurse feeds Katy, but she is bolus fed. They follow a drs order. Jenny Stay at home mom to 3 Sean-6-6-02-autism ...
I can only speak from my experience - our daughter Hanna is 4 and in preschool (run and paid for by our local school district). For a long while we were...
Sarah.Hinman@...
Nov 5, 2007 1:41 pm
48696
is he mobile? then he would do better with a backpack pump for day feeds where ever they take place. if he is in a wheel chair it can hang on the back of the...
there are many changes...some of us dont know EVERYTHING and thats why we ask...Dosia..i would ask your pediatrician your questions and contact your childs...
has he been check by biopsy for eosinophilic esophagitis? thinking of you Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks, 1 lb. 3 oz. G-button for...
My son vomited after almost every feed for his first many months of life. We would then have to start over and then all would be well. He could never take...
First of all does Korbyn have an IEP and/or 504 plan with the school system? If not, this is step one. If yes, take a close look at what's in the current...
Glad your son is doing well but I want to give a warning out to those that are reading your comments about cisapride. My daughter is on cisapride under the...
Has anyone found a daycare that has done g-tube feedings in the Chicagoland area? I'm looking for a daycare for my 3 year old son from 11 a.m. -6 p.m....
We also had a tremendous turn around after having tonsils and adenoids taken out. They were both so large that the sleep apnea test done before surgery stated...
I have lots of Q's My son has an NG tube inplace I have been reading some of your q's but have noticed most are about babies and toddlers where would one go to...
don't think you will need to worry about clothes. at 6 he can probably learn not to pull on the tubing. ultimately he will be more comfortable than with the...
My son has Arnold chiari malformation, Severe asthma, gerd, Slow gastric emptying, Mitochondrial disease ( not sure which on is having muscel biopsy under the...
thanks for the info my dd has some developmental delays and just toilet trained at age 9 so it can happen. she is missing the right side of her cerebellum but...
He is currently on neocate Jr as that seems to be the only thing he can tolerate if it weren't for him being on SSI I don't know how we would afford it at $64...
Hi. My son also has Arnold Chiari malformation. He had brain surgery last April, at 18 months. He is very developmentally delayed, has GERD, toilet training...
Oh my gosh! I understand exactly what you mean. I would love to get a decent nights sleep without having to run into his room to see why the alarm is going...
I can't believe how much he sounds like my son Aarononly the fever thing my son runs 97 all the time except when he gets a fever it goes to 104 never "normal"...
I think they know when we leave !!LOL! I wish I had the thing the nurses have where they can see what is going on in his room ( monitor wise) from the nurses...
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