Only one click, you may know what i memtioned is really true. with the hope of letting you to be a part of my world, I'd like to show how caring, virtuous &...
We just had a GI follow up today. I wanted to know what my son's times were that were used to determine that he has a delay. The doc said that normal would...
Hi, Our GI wants to refer us to a multidisciplinary inpatient feeding program. Since we live in Colorado, we will start with the Children's Hospital in...
I live in Virginia- apparenetly there is a feeding program in Charlottesville that is supposed to be very good. Sonny's case worker mentioned it to me-...
My son Noah just finished the day patient program at Children's Hospital in Richmond, VA. He had 4 feeding sessions a day M-F for 8 weeks. I'm not sure if...
Which Virginia program is he recomending? So far our doctors, therapists and parent contacts have noted 2 big feeding programs. One is associated with UV at...
good to hear you got clear answers Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks, 1 lb. 3 oz. Totally g-button fed Missing right cerebellum Glasses...
there are several programs out of Virginia can you get doc to tell you the specific name. Kluge was the one recommended to us but we did not go. Jennifer...
Hi Greg- I'm not sure which program is in Virginia - I assume it's not hosptial-related or your GI would have mentioned that. It could a program associated...
Hi Everyone, Thanks so much to those who responded to my last post about fundo or no fundo. We had a gastric emptying study done on Wed. and the results were...
The program in Charlottesville is Kluge I believe. There is also a good program at the Richmond Children's Hospital. Other than location why did you choose...
... Can you tell me more about how this works, please? Are you in the room? what happens if the child gags/vomits? Where do you stay? Also what was the cost?...
Thank you. I know both therapists post on this group occasionally. Our GI said he's making phone calls to Children's to ask about getting an evaluation...
HI, I have been researching this subject recently as my son has delayed gastric emptying. There is a surgery called pyloroplasty and there is also a less...
It's a behaviorally based program so they have a feeding protocol based on the child's needs. Noah was on the "non-self feeder protocol" meaning the therapist...
Thanks. We have met our therapists limit already and need something more intensive. It is a stretch to look out of state, but our doc is pushing for it. ...
Beverley, I live in Falls Church, just outside of DC. WE were taking our son to Fairfax Inova for all of his specialists ( GI, dietician, Nephrologist, etc)...
Thank you. He didn't say the name of the program, only that there is a really good one in Virginia that he'd like to try and get my son in. First we have to...
He said he'd phone us after contacting Denver Children's. He's real brief at appointments, but his PA is a good communicator and usually does the phone...
We are suppose to put in a g-tube/button...they haven't clarified with me yet next week for my 6 1/2 month old daughter. What should I expect from this...
Hi! DON'T WORRY....I was so worried when my son had his put in and honestly, it was so much easier than I ever expected. Depending on what kind of button...
Hi. I am using a plug from water wings right now because I tore the plug off by accident. I don't think my son could have torn it off, and he coudn't pull...
Hi. My son is finally getting his Bard replaced on June 7th, and I was just wondering how they do that. Will he be sedated? Will they at least give him...
I think you have about 4 hours before it [the stoma] starts to close... It's less than that, although the time is child-dependant. We were always told that if...
Hi! We haven't had ours replaced yet but my surgeon told me he does it in the office and doesn't put them out. He did say it is more painful than a Mic-Key...
My son got his Bard button last December. Our experience was very similar. He got the button at surgery, no tube at first. He was under anesthesia for just...
Noah turned 2 just after we left the program, but he was the youngest one there. Most of the other kids were 4 or 5 when we were there in the day program, and...
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