Hi -

I'm new to this group.  I have a 2 year old with almost total
unwillingness to eat.  He has a g tube because of another medical
diagnosis, and we are looking for a feeding clinic.  I've researched
them on the net, and there don't appear to be any in our area, so if
we attend one, we expect to travel.

We are expecting to go to one that treats daily for several weeks.
Does anyone have any experience with this type of clinics?  Any
recommendations, or "DON'T" recommendations?

Thanks,
-Karen

I'm guessing overall cals. but too bad she is hungry.  And I
wouldn't be a good mother letting her be hungry.

She is doing better with the change now.  I have upped her fruits
and veggies even added oatmeal to all meals to help slow up her
tummy just a bit.

I plan on trying cream of wheat next.

I can't really tell if she has gained much weight but she seems to
be a bit more tired after school now.  But who knows if it is the
food or just being a hard working 1st. grader.

--- In feeding@yahoogroups.com, "Jennifer Hisrich" <jhisrich@m...>
wrote:
>  I'm a bit confused...does the dietician want you to reduce her
> overall cals or just those through her formula????****
>

Hi everyone. I am new to the group and would like to share my little
ones feeding problems. My daughters name is Ashley and is a 25weeker,
twin girl, weighing only 1 lb 10oz at birth. She has been battling
with feeding problems since her discharge from the NICU at about 3
1/2 months old. She was diagnosed with GERD at 4 months old showing
all the classic signs, refusing to eat her bottle and arching her
back with feedings. She was tried on many different medications and a
couple different formulas. She continued to gain wt until march 04,
10 months old. At that time we made a tough decision and she had a
nissen and g tube placed. The most important thing, she starting
gaining wt again but many problems came along. After the sx she
started gagging and wretching but bringing nothing up. About a month
later she started bringing a little bit of mucous up. Now, 6 months
after the fundo she constantly coughs, gags, and vomits tons of
mucous. She is now 100% tube fed and refuses to take anything by
mouth. It is so disappointing and aggrevating trying to figure out
what is going on. She is on continuous feedings at night and every
time she wakes up, in the middle of the night or in the morning, she
starts coughing which leads to her gagging and then vomiting mucous.
After every bolus during the day she gags and brings up mucous. She
has seen many different dr.s including a couple gi dr.s,
pulmonolgist, allergist, neurologist, and ENT. She is on neocate
formula. Her meds include prevacid, zantac, and emycin. She recently
had an endoscopy done which showed loosening of the fundo and GERD
with esophogitis and gastritis. She has feeding therapy 3 times a
week. She is very willing to try to eat but when she does it triggers
her to gag and bring up mucous. I am just wondering if her GI issues
are causing some pulmonary issues that is causing all this mucous
production. Given her hx, she was a 25 weeker on the vent for about 1
1/2 months. We have an appt with the GI dr. and pulmonologist this
week so I am hoping they can answer some of my questions. The
therapists feel she will not eat by mouth until her medical issues
are resolved. She doesn't feel safe to eat. I am not sure if there
are any pulmonary meds that can help with her problem. Sorry so long
and that you for your help.
Nicole

We never knew about the flavor packets until we were off of the
Neocate. So we ended up using Splenda to sweeten the formula
(recommended by the GI). It worked. It still tasted pretty nasty,
but it helps.

Best wishes,
Nicole

--- In feeding@yahoogroups.com, "smithouser" <eksmith@p...> wrote:
>
> Thanks, KJ.
>
> We've taken your advice and switched him over to the Neocate.  The
> only problem is now - he hates the taset so much that he won't eat
> it.  I have noticed less mucus in his vomit so that is a releif -
> but how do you get your child to take the neocate?  Any flavoring
> ideas?
>
> Thanks!
> Erin
>
> --- In feeding@yahoogroups.com, kristenmjoyce@c... wrote:
> > OMG Erin - I felt like I was reading a passage from this is your
> life....
> >
> > After going through these stages with my son a former 28 weeker:
> on BM to 3.5 mos, then screaming, vomiting, switched to Alimentum,
> vomiting to 12 mos, put on zantac at 4 mos, then prilosec at 10
mos,
> then Neocate at 12 mos....
> >
> > Here's my recommendation, if the zantac isn't working, just stop
> it.  Try just the change in formula, you may be surprised to find
> out that's all it is.  Turned out, Coley was reacting to the soy &
> milk protiens in the Alimentum.  Too bad we didn't figure that
out,
> 10 months of vomiting and lord only knows how many scripts,
> earlier!  If you find after being on the Neocate for a couple
weeks
> that his vomiting/reflux hasn't improved, then add the meds.
> >
> > GOOD LUCK!!!
> >
> > In my thoughts!
> > KJ
> > -------------- Original message --------------
> >
> > Hi,
> >
> > My son Jack is a now 10 month, 14 lb former 26 week 1.5 lb
> preemie.
> > He developed reflux in his 4th month right after he got home and
> it
> > has been getting worse ever since. I fed him mostly breastmilk
for
> > 6 months - breastfeeding was basically impossible since he would
> > throw up when layed on his back being fed. Also his wt was so
> small
> > that I had to concentrate the breastmilk to 24 calories. He went
> to
> > Alimentum after that - his colic improved but the throwing up
got
> > worse. Now he is to the point of gaining no weight and even
losing
> > a little. We are going to CHOP (childrens hosp of philly) for
GI.
> > They recommended putting him on Neocate and MCT oil to start
with
> > along with Prilosec (he was on Zantac and it was doing
nothing...).
> >
> > We started with the MCT oil and Prilosec but can't start the
> Neocate
> > until next week. Here are my questions:
> >
> > 1. What is your experience like on Neocate? Did it help the
reflux?
> > 2. Did your insurance co. help you with the cost?
> > 3. How did you flavor the formula?
> > 4. How is it different from Elecare? Do you like it better?
> >
> > CHOP is giving us until early Dec. to try these non-invasive
> > solutions before a possible NG tube of night feedings or even
> > surgery. Really hoping not to have to go there - he was on an ng
> > tube in the hospital for nearly 8 weeks due to constant
infections
> > and bad bpd.
> >
> > Thanks for any info you have to offer!
> >
> > Blessings,
> > Erin
> > Mom to Jack - 26 week 1.5 lb preemie, now 10 months.
> >
> >
> >
> >
> >
> > Community email addresses:
> > Post message: feeding@onelist.com
> > Subscribe: feeding-subscribe@onelist.com
> > Unsubscribe: feeding-unsubscribe@onelist.com
> > List owner: feeding-owner@onelist.com
> >
> > Shortcut URL to this page:
> > http://www.onelist.com/community/feeding
> >
> >
> >
> > Yahoo! Groups Sponsor
> > ADVERTISEMENT
> >
> >
> >
> >
> >
> >
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> >
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> >
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> >
> > Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.

Thanks, KJ.

We've taken your advice and switched him over to the Neocate.  The
only problem is now - he hates the taset so much that he won't eat
it.  I have noticed less mucus in his vomit so that is a releif -
but how do you get your child to take the neocate?  Any flavoring
ideas?

Thanks!
Erin

--- In feeding@yahoogroups.com, kristenmjoyce@c... wrote:
> OMG Erin - I felt like I was reading a passage from this is your
life....
>
> After going through these stages with my son a former 28 weeker:
on BM to 3.5 mos, then screaming, vomiting, switched to Alimentum,
vomiting to 12 mos, put on zantac at 4 mos, then prilosec at 10 mos,
then Neocate at 12 mos....
>
> Here's my recommendation, if the zantac isn't working, just stop
it.  Try just the change in formula, you may be surprised to find
out that's all it is.  Turned out, Coley was reacting to the soy &
milk protiens in the Alimentum.  Too bad we didn't figure that out,
10 months of vomiting and lord only knows how many scripts,
earlier!  If you find after being on the Neocate for a couple weeks
that his vomiting/reflux hasn't improved, then add the meds.
>
> GOOD LUCK!!!
>
> In my thoughts!
> KJ
> -------------- Original message --------------
>
> Hi,
>
> My son Jack is a now 10 month, 14 lb former 26 week 1.5 lb
preemie.
> He developed reflux in his 4th month right after he got home and
it
> has been getting worse ever since. I fed him mostly breastmilk for
> 6 months - breastfeeding was basically impossible since he would
> throw up when layed on his back being fed. Also his wt was so
small
> that I had to concentrate the breastmilk to 24 calories. He went
to
> Alimentum after that - his colic improved but the throwing up got
> worse. Now he is to the point of gaining no weight and even losing
> a little. We are going to CHOP (childrens hosp of philly) for GI.
> They recommended putting him on Neocate and MCT oil to start with
> along with Prilosec (he was on Zantac and it was doing nothing...).
>
> We started with the MCT oil and Prilosec but can't start the
Neocate
> until next week. Here are my questions:
>
> 1. What is your experience like on Neocate? Did it help the reflux?
> 2. Did your insurance co. help you with the cost?
> 3. How did you flavor the formula?
> 4. How is it different from Elecare? Do you like it better?
>
> CHOP is giving us until early Dec. to try these non-invasive
> solutions before a possible NG tube of night feedings or even
> surgery. Really hoping not to have to go there - he was on an ng
> tube in the hospital for nearly 8 weeks due to constant infections
> and bad bpd.
>
> Thanks for any info you have to offer!
>
> Blessings,
> Erin
> Mom to Jack - 26 week 1.5 lb preemie, now 10 months.
>
>
>
>
>
> Community email addresses:
> Post message: feeding@onelist.com
> Subscribe: feeding-subscribe@onelist.com
> Unsubscribe: feeding-unsubscribe@onelist.com
> List owner: feeding-owner@onelist.com
>
> Shortcut URL to this page:
> http://www.onelist.com/community/feeding
>
>
>
> Yahoo! Groups Sponsor
> ADVERTISEMENT
>
>
>
>
>
>
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/feeding/
>
> To unsubscribe from this group, send an email to:
> feeding-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.

On Nov 1, 2004, at 12:02 PM, preemiemom0703 wrote:

>
>  I don't know of a "natural" appetite stimulant but if you find one,
>  please post

Ginger is supposed to be one though I don't know if it is effective
jennifer, Nathaniel's mom

--- In feeding@yahoogroups.com, SuzMorris@a... wrote:
> Many families have found that running the feeding tube through
corrugated
> split plastic tubing works very well.   It is available in 1/2
inch and 1 inch
> diameters and lengths up to 20 feet. 
> The cable tubing  allows you to slide the feeding tube in at the
vertical
> split in the tube.  It is stiff but also quite flexible.  It
moves
easily but
> protects the cables/tubes.  It also makes interesting sounds
when
the child moves
> his fingers along the corrugated tube, so this is often more
satisfying to
> children than trying to pull on the tube. 


We use this with our son who is night tube fed.  It works great.  If
he does wrap up in it, since it is stiff, it doesn't wrap tight (we
also run the tube down the end of his pajamas so it will wrap is
legs and not his head). He also loves to play with it.  Our recent
problem is that he has figured out how to take it off.  So, we just
put a little tape on either end of the cable loom and a piece in the
middle so he can't remove it (fortunately he hasn't figured out how
to remove the tape yet).  We found ours at Wal-mart for less than $3
(at Wal-mart I think it is called flexi-tube and if I remember right
it was in the automotive section).

Good luck.  Wrapping himself up in the tube is always a big worry of
mine.

Krys
Mom to Emilee (3) and Austin (20 months)

-------------- Original message --------------

>
>
> Seems like you're d&$ned if you do and d*&ned if you don't when it
> comes to calories and weight. Andrew throws up so much that we have
> him taking 37cal/oz. But of a 5oz feeding, he only keeps about 3oz in
> him so the only way we can keep him growing is to bulk up his
> calories as much as possible. (We do see a dietitian.) So his potty
> diapers don't exactly smell great which makes me worry about his
> kidneys.
>
> We do a blenderized diet, which his doctor is adamantly opposed to.
> However, Andrew no longer writhes in pain or puts himself into a
> zombie-like state to get through a feeding the way he did with
> formula. We try to pump 8oz of water in him/day but he throws up a
> good portion of that, as well.
>
> Dana
>
> --- In feeding@yahoogroups.com, 26wkrmom@c... wrote:
> > Mike from what I know from emily's nutritionist and dietician
> exceeding 30 calories per ounce puts the child at risk for renal
> failure not from the calories but the concentration of vitamins and
> minerals in them??? Emily is extremem failure to thrive at 15 lbs 4
> oz at age 21 months but 30 cals per opunce is all we can get form
> formula(we have added duocal and benecalorie) which is not vitamin
> enriched but basically her nutritionist described it like this to me,
> most kids before age three have a built in mechanism to avoid over
> eating and over consumption of calories, emily must have a calorie
> counter in her LOL she hits a certain amount and BAM her body dumps
> the rest undigested and not absorbed, ust thought i would throw in my
> 2 cents as we have a lot of feeding issues in this house!
> > Niki
> >
> > -------------- Original message --------------
> >
> > >
> > >
> > > One of our doctors told us not to increase the calories past 32.
> I
> > > don't remember why though.
> > >
> > > Mike
> > >
> > >
> > > --- In feeding@yahoogroups.com, Melissa The Mighty
> > > wrote:
> > > > It depends on how high you want to go. I know that to get 27
> cal
> > > formula you
> > > > have to add one scoup of the powder to 6oz of the ready made.
> Any
> > > more or less
> > > > than that I have no idea and it would be wise to talk to
> someone
> > > before going
> > > > ahead with this on your own.
> > > >
> > > > --- tracy wrote:
> > > >
> > > > >
> > > > > Hi All,
> > > > >
> > > > > Haven't posted for awhile, and we are still looking for ways
> to
> > > boost
> > > > > calories for Cameron. She is still a peanut.
> > > > >
> > > > > Does anyone know how much powdered formula you add to already
> > > made
> > > > > formula to boost calories???? She takes approximately 4 oz at
> a
> > > > > time, and if I could give that 4 oz the caloric value of say
> 6
> > > oz,
> > > > > that could help.
> > > > >
> > > > > Any help is appreciated as always.
> > > > >
> > > > > Tracy and Cameron
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > >
> > > >
> > > > =====
> > > > Melissa R
> > > > Eper for Evan 3-3-04, SV, COA, PA banded, pacemaker
> > > > www.caringbridge.org/ca/evan
> > > >
> > > >
> > > >
> > > > __________________________________
> > > > Do you Yahoo!?
> > > > Yahoo! Mail Address AutoComplete - You start. We finish.
> > > > http://promotions.yahoo.com/new_mail
> > >
> > >
> > >
> > >
> > >
> > >
> > > Community email addresses:
> > > Post message: feeding@onelist.com
> > > Subscribe: feeding-subscribe@onelist.com
> > > Unsubscribe: feeding-unsubscribe@onelist.com
> > > List owner: feeding-owner@onelist.com
> > >
> > > Shortcut URL to this page:
> > > http://www.onelist.com/community/feeding
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >
> > >
> > >
> > >
>
>
>
>
>
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> http://docs.yahoo.com/info/terms/
>
>
>
>

-----Original Message-----
From: Estella [mailto:estella@...]
Sent: Sunday, October 31, 2004 1:42 PM
To: feeding@yahoogroups.com
Subject: [feeding] Re: New to Group!

Hi Jennifer and thanks for the welcome!

Kristy was eating a variety of foods; however, about four weeks ago,
she got an ear infection.  Since then, the foods that she will eat
have dwindled greatly.  She now eats crackers, french fries,
pretzels, and mashed potatoes. The problem though is that she only
eats 2 or 3 of one thing and starts chewing up the food and spitting
it back out.  She refuses to swallow it.  She also has a milk allergy
and is on formula; however, as of recently, she has decided not to
drink formula.  She was born with one kidney; therefore, she can't
have much juice, so the things she can drink are limited. 

She currently gets Occupational Therapy, Vision Therapy as she also
has vision processing problems, has myopia, and strabismus  She also
has limited lower vision.  And she also gets Physical Therapy. 

My current concerns are that she only eats a select number of foods
and in very small quantities.  Also, that she mostly chews up food,
but only to spit it back out.  She also is very limited as to what
she can drink and is refusing her formula.

Estella
Mom to
Kimmy (1-14-01)
Kristy (5-9-03 w/CP, SID, GERD, milk allergy, oral hypersensitivity,
myopia, strabismus, feeding difficulties, one kidney, SMO's, and
questionable PDD)








Community email addresses:
  Post message: feeding@onelist.com
  Subscribe:    feeding-subscribe@onelist.com
  Unsubscribe:  feeding-unsubscribe@onelist.com
  List owner:   feeding-owner@onelist.com

Shortcut URL to this page:
  http://www.onelist.com/community/feeding

Seems like you're d&$ned if you do and d*&ned if you don't when it
comes to calories and weight. Andrew throws up so much that we have
him taking 37cal/oz. But of a 5oz feeding, he only keeps about 3oz in
him so the only way we can keep him growing is to bulk up his
calories as much as possible. (We do see a dietitian.) So his potty
diapers don't exactly smell great which makes me worry about his
kidneys.

We do a blenderized diet, which his doctor is adamantly opposed to.
However, Andrew no longer writhes in pain or puts himself into a
zombie-like state to get through a feeding the way he did with
formula. We try to pump 8oz of water in him/day but he throws up a
good portion of that, as well.

Dana

--- In feeding@yahoogroups.com, 26wkrmom@c... wrote:
> Mike from what I know from emily's nutritionist and dietician
exceeding 30 calories per ounce puts the child at risk for renal
failure not from the calories but the concentration of vitamins and
minerals in them???  Emily is extremem failure to thrive at 15 lbs 4
oz at age 21 months but 30 cals per opunce is all we can get form
formula(we have added duocal and benecalorie) which is not vitamin
enriched but basically her nutritionist described it like this to me,
most kids before age three have a built in mechanism to avoid over
eating and over consumption of calories, emily must have a calorie
counter in her LOL she hits a certain amount and BAM her body dumps
the rest undigested and not absorbed, ust thought i would throw in my
2 cents as we have a lot of feeding issues in this house!
> Niki
>
> -------------- Original message --------------
>
> >
> >
> > One of our doctors told us not to increase the calories past 32.
I
> > don't remember why though.
> >
> > Mike
> >
> >
> > --- In feeding@yahoogroups.com, Melissa The Mighty
> > wrote:
> > > It depends on how high you want to go. I know that to get 27
cal
> > formula you
> > > have to add one scoup of the powder to 6oz of the ready made.
Any
> > more or less
> > > than that I have no idea and it would be wise to talk to
someone
> > before going
> > > ahead with this on your own.
> > >
> > > --- tracy wrote:
> > >
> > > >
> > > > Hi All,
> > > >
> > > > Haven't posted for awhile, and we are still looking for ways
to
> > boost
> > > > calories for Cameron. She is still a peanut.
> > > >
> > > > Does anyone know how much powdered formula you add to already
> > made
> > > > formula to boost calories???? She takes approximately 4 oz at
a
> > > > time, and if I could give that 4 oz the caloric value of say
6
> > oz,
> > > > that could help.
> > > >
> > > > Any help is appreciated as always.
> > > >
> > > > Tracy and Cameron
> > > >
> > > >
> > > >
> > > >
> > > >
> > >
> > >
> > > =====
> > > Melissa R
> > > Eper for Evan 3-3-04, SV, COA, PA banded, pacemaker
> > > www.caringbridge.org/ca/evan
> > >
> > >
> > >
> > > __________________________________
> > > Do you Yahoo!?
> > > Yahoo! Mail Address AutoComplete - You start. We finish.
> > > http://promotions.yahoo.com/new_mail
> >
> >
> >
> >
> >
> >
> > Community email addresses:
> > Post message: feeding@onelist.com
> > Subscribe: feeding-subscribe@onelist.com
> > Unsubscribe: feeding-unsubscribe@onelist.com
> > List owner: feeding-owner@onelist.com
> >
> > Shortcut URL to this page:
> > http://www.onelist.com/community/feeding
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >

Hi Mike -

Papaya enzyme helps with the digestion of protein. I tried it on my
son without much success (evidently digesting protein isn't what is
causing his motility issues) but I know other people have said it
worked for them. The brand we used was "Papayazyme" made by "Arise
and Shine" and I believe you can purchase it directly through their
web site.

I don't know of a "natural" appetite stimulant but if you find one,
please post. I would like to have Andrew try it. Periactin is a
prescription appetite stimulant and several people on this site use
it. For faster digestion, erythromycin is commonly used. It's an
antibiotic but one of the side effects is that it causes the stomach
to contract stronger so it's frequently used in very small doses for
motility. (Andrew takes .5ML 4x/day.) Reglan is another motility
drug, but it can have negative side effects so I believe more doctors
are turning to e-mycin. If you use e-mycin, you may want to try to
feed Brandon baby yogurt or use a probiotic to replace the "good"
bacteria the antibiotic will kill.

A few other thoughts... does Brandon have a weak suck? If so, have
you tried a Haberman feeder? It's designed for infants with
difficulties sucking. His swallow study may have been normal, but
they may not have looked at the actual suck. Also, a swallow study
is "a moment in time" and may not be a true indicator of what is
actually happening.

Another thought, it sounds as if Brandon may be eating just enough to
become satiated (sp?). Does he act like he's in pain when he's eating
or if he becomes overly full? If so, his lack of desire to eat may be
more than behavioral. These little guys commonly have GI issues. Have
you seen a pediatric GI doctor? Does your feeding therapist think
it's entirely behavioral?

You mentioned in your previous post that you were thinking of
changing peds. I am just now learning how important it is to trust
your gut instinct. If you feel there's a problem, chances are there
is. Just because your doctor isn't concerned doesn't mean everything
is hunky dory. We saw one ped GI who instantly decided my son needed
a repeat fundo (long story). I was not pleased with the diagnosis and
sought a 2nd opinion. Our new ped GI not only thinks Andrew does NOT
need a repeat fundo, he also believes his first surgery may have been
the root cause of many of his GI issues. It makes me sick to think
that my son's problems eating may be compounded by the fact that I
trusted blindly every doctor in the NICU instead of researching and
exploring my options.

Good luck and keep us posted!
Dana, mom to Andrew, b. 7/03, 25-wkr, 16.7oz bw, PDA, ROP, BPD,
double inguinal hernias, g-tube (100%), fundo (non-functioning),
paralyzed left vocal cord, texture sensitivity/aversion, dyspepsia,
low tone, global delays, strabismus; Bradley, b/d. 7/03, 25-wkr, 1lb,
9oz bw; and a little girl on the way, due 12/31/04



   --- In feeding@yahoogroups.com, "MCOF" <mcof@y...> wrote:
>
> My twin sons were born last October 2.5 months early. They were in
> the NICU approx. 50 days. One of my sons, Brandon, while deveolping
> normally in everything except his weight and length. He has had
> feeding problems (not eating enough) ever since he came home from
the
> hospital. In the NICU he would often times have residual milk in
his
> stomach before the next feeding. I believe that he sometimes still
> digests his food slow because when he makes himself vomit, you can
> see the few bites of baby food that he had 4 hours ago (he makes
> himself vomit when he absolutely doesn't want anymore food).
>
> He was on zantac for about 6 months when he first came home but is
> off it now.  He has had a few tests and everthing has come out ok
(ph
> probe and swallow test). The doctors now think that the problem is
> behavioral.
>
> Usually, he has 4oz breastmilk mixed with 1oz of heavy whipping
cream
> and sometimes 2tbsp of rice cereal. This is to add calories to his
> diet. Out of this he will usually take only about 2 - 2.5 oz before
> he doesn't want anymore. He takes this very slow about 30min -
1hr .
> He eats/drinks extremely poorly in the morning where he only takes
> about 1oz at 6am and just a little better at 10am.  He does much
> better at his 6pm feed.
>
> We started adding the heavy whipping cream about 3 weeks ago to add
> extra calories to his diet. He did extremely well the first 2 weeks
> but this last week he has dropped from drinking 28 - 30oz per day
to
> 18-20oz per day. He has refused any baby food where he was starting
> to progress in this area too.  He does seem to be putting on more
> weight now but it is such a struggle to feed him.
>
> He was taking babyfood at around 6-7 months.  He could eat about
1/2
> a jar at a feeding but then he stopped altogether after about a
month
> to a month and a half..  He starting eating babyfood again after we
> starting going to his feeding therapy but now he totally refuses to
> eat again (after about 2 weeks), ok may two or three bites
> (unwillingly).  I think that
>
> I would like to find something to increse his appetite as well as
> help him empty his stomach more quickly.
>
> Mike
>
>
> --- In feeding@yahoogroups.com, "preemiemom0703"
> <preemiemom0703@y...> wrote:
> >
> > My son is a 25-wkr now 15mos and 18lbs, 10oz (maybe less - it's
> been
> > a bad week.) I understand your frustration with doctors and am
> > currently considering changing pediatricians myself.
> >
> > When you say Ryan is eating "poorly" what exactly do you mean?
Does
> > he suffer from reflux? Does he vomit? Does he have a problem with
> > textures? Does he seem to have oral aversion?
> >
> > Please let us know more specifically what the problem is and what
> > kind of homeopathic help you are looking for and we'll do our
best
> to
> > provide some suggestions.
> >
> > Good luck!
> > Dana, mom to Andrew, b. 7/03, 25-wkr, 16.7oz bw, PDA, ROP, BPD,
> > double inguinal hernias, g-tube (100%), fundo (non-functioning),
> > texture sensitivity/aversion, paralyzed left vocal cord, low
tone,
> > global delays; Bradley, b/d. 7/03, 25-wkr 1lb, 9oz bw; and a
little
> > girl on the way, due 12/31/04.
> >
> >
> >
> > --- In feeding@yahoogroups.com, "MCOF" <mcof@y...> wrote:
> > >
> > > I am new to this group.  I am the father of twins boys (Ryan
and
> > > Brandon) born at 30 weeks.  Ryan is doing fine while Brandon
has
> > > always eaten poorly since coming home from the NICU and is only
> > > 15.25lbs on his first birthday.  In every other way the doctors
> say
> > > he is fine.  I am about going crazy with our pediatrician and
> other
> > > doctors. Our pediatrician doesn't even think there is a problem
> (we
> > > are changing soon) and other doctors don't seem very helpful.
> Only
> > > help we have recieved is from our developmental doctor (little
> but
> > at
> > > least she tries) plus whatever I can find on the internet.  Has
> > > anyone tried any homeopathic remedies/doctors?  Have they
> helped?
> > I
> > > don't know what else to try?

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Thank you.

Armen Hareyan
Hickory, NC

-------------- Original message --------------

>
>
> One of our doctors told us not to increase the calories past 32. I
> don't remember why though.
>
> Mike
>
>
> --- In feeding@yahoogroups.com, Melissa The Mighty
> wrote:
> > It depends on how high you want to go. I know that to get 27 cal
> formula you
> > have to add one scoup of the powder to 6oz of the ready made. Any
> more or less
> > than that I have no idea and it would be wise to talk to someone
> before going
> > ahead with this on your own.
> >
> > --- tracy wrote:
> >
> > >
> > > Hi All,
> > >
> > > Haven't posted for awhile, and we are still looking for ways to
> boost
> > > calories for Cameron. She is still a peanut.
> > >
> > > Does anyone know how much powdered formula you add to already
> made
> > > formula to boost calories???? She takes approximately 4 oz at a
> > > time, and if I could give that 4 oz the caloric value of say 6
> oz,
> > > that could help.
> > >
> > > Any help is appreciated as always.
> > >
> > > Tracy and Cameron
> > >
> > >
> > >
> > >
> > >
> >
> >
> > =====
> > Melissa R
> > Eper for Evan 3-3-04, SV, COA, PA banded, pacemaker
> > www.caringbridge.org/ca/evan
> >
> >
> >
> > __________________________________
> > Do you Yahoo!?
> > Yahoo! Mail Address AutoComplete - You start. We finish.
> > http://promotions.yahoo.com/new_mail
>
>
>
>
>
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>
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>
> <*> To visit your group on the web, go to:
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>
>
>

You might want to look into papayazyme to increase stomach motility.
I'm not sure about this but it may be of some help--there will be
information about it in the archives.  I believe Suzanne Morris
posted about it.  Susan

My twin sons were born last October 2.5 months early. They were in
the NICU approx. 50 days. One of my sons, Brandon, while deveolping
normally in everything except his weight and length. He has had
feeding problems (not eating enough) ever since he came home from the
hospital. In the NICU he would often times have residual milk in his
stomach before the next feeding. I believe that he sometimes still
digests his food slow because when he makes himself vomit, you can
see the few bites of baby food that he had 4 hours ago (he makes
himself vomit when he absolutely doesn't want anymore food).

He was on zantac for about 6 months when he first came home but is
off it now.  He has had a few tests and everthing has come out ok (ph
probe and swallow test). The doctors now think that the problem is
behavioral.

Usually, he has 4oz breastmilk mixed with 1oz of heavy whipping cream
and sometimes 2tbsp of rice cereal. This is to add calories to his
diet. Out of this he will usually take only about 2 - 2.5 oz before
he doesn't want anymore. He takes this very slow about 30min - 1hr .
He eats/drinks extremely poorly in the morning where he only takes
about 1oz at 6am and just a little better at 10am.  He does much
better at his 6pm feed.

We started adding the heavy whipping cream about 3 weeks ago to add
extra calories to his diet. He did extremely well the first 2 weeks
but this last week he has dropped from drinking 28 - 30oz per day to
18-20oz per day. He has refused any baby food where he was starting
to progress in this area too.  He does seem to be putting on more
weight now but it is such a struggle to feed him.

He was taking babyfood at around 6-7 months.  He could eat about 1/2
a jar at a feeding but then he stopped altogether after about a month
to a month and a half..  He starting eating babyfood again after we
starting going to his feeding therapy but now he totally refuses to
eat again (after about 2 weeks), ok may two or three bites
(unwillingly).  I think that

I would like to find something to increse his appetite as well as
help him empty his stomach more quickly.

Mike


--- In feeding@yahoogroups.com, "preemiemom0703"
<preemiemom0703@y...> wrote:
>
> My son is a 25-wkr now 15mos and 18lbs, 10oz (maybe less - it's
been
> a bad week.) I understand your frustration with doctors and am
> currently considering changing pediatricians myself.
>
> When you say Ryan is eating "poorly" what exactly do you mean? Does
> he suffer from reflux? Does he vomit? Does he have a problem with
> textures? Does he seem to have oral aversion?
>
> Please let us know more specifically what the problem is and what
> kind of homeopathic help you are looking for and we'll do our best
to
> provide some suggestions.
>
> Good luck!
> Dana, mom to Andrew, b. 7/03, 25-wkr, 16.7oz bw, PDA, ROP, BPD,
> double inguinal hernias, g-tube (100%), fundo (non-functioning),
> texture sensitivity/aversion, paralyzed left vocal cord, low tone,
> global delays; Bradley, b/d. 7/03, 25-wkr 1lb, 9oz bw; and a little
> girl on the way, due 12/31/04.
>
>
>
> --- In feeding@yahoogroups.com, "MCOF" <mcof@y...> wrote:
> >
> > I am new to this group.  I am the father of twins boys (Ryan and
> > Brandon) born at 30 weeks.  Ryan is doing fine while Brandon has
> > always eaten poorly since coming home from the NICU and is only
> > 15.25lbs on his first birthday.  In every other way the doctors
say
> > he is fine.  I am about going crazy with our pediatrician and
other
> > doctors. Our pediatrician doesn't even think there is a problem
(we
> > are changing soon) and other doctors don't seem very helpful.
Only
> > help we have recieved is from our developmental doctor (little
but
> at
> > least she tries) plus whatever I can find on the internet.  Has
> > anyone tried any homeopathic remedies/doctors?  Have they
helped?
> I
> > don't know what else to try?

----- Original Message -----

From: Charlotte, Matthew's Ganny

To: microcephaly@yahoogroups.com ; infantilespasms@yahoogroups.com ; feeding@yahoogroups.com ; Grace Shonts ; sandy.duckworth@... ; lissencephaly@yahoogroups.com ; polymicrogyria@yahoogroups.com ; magic-sod-onh@yahoogroups.com

Sent: Sunday, October 31, 2004 8:11 PM

Subject: [feeding] Matthew was Biker Dude For Halloween, pic link below

Matthew was a biker dude for halloween, you gotta see. complete with earrings and ponytail.

Ganny Charlotte

 

Here's the link and please leave comments!

 

http://www.myownjournal.com/journal.php?u_mem=lil_oddyssey

Matthew's New WebSite With Web Cam and Music http://www.geocities.com/secretadmirer021802   Age  2 years to present:  http://babiesonline.com/babies/m/matthewsothercribb/  Age 4 mos. to 2 years  http://www.babiesonline.com/babies/m/matthewscrib/

 

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  http://www.onelist.com/community/feeding

One of our doctors told us not to increase the calories past 32.  I
don't remember why though.

Mike


--- In feeding@yahoogroups.com, Melissa The Mighty <cat2261@y...>
wrote:
> It depends on how high you want to go.  I know that to get 27 cal
formula you
> have to add one scoup of the powder to 6oz of the ready made.  Any
more or less
> than that I have no idea and it would be wise to talk to someone
before going
> ahead with this on your own.
>
> --- tracy <mommyisonecam@y...> wrote:
>
> >
> > Hi All,
> >
> > Haven't posted for awhile, and we are still looking for ways to
boost
> > calories for Cameron.  She is still a peanut.
> >
> > Does anyone know how much powdered formula you add to already
made
> > formula to boost calories????  She takes approximately 4 oz at a
> > time, and if I could give that 4 oz the caloric value of say 6
oz,
> > that could help.
> >
> > Any help is appreciated as always.
> >
> > Tracy and Cameron
> >
> >
> >
> >
> >
>
>
> =====
> Melissa R
> Eper for Evan 3-3-04, SV, COA, PA banded, pacemaker
> www.caringbridge.org/ca/evan
>
>
>
> __________________________________
> Do you Yahoo!?
> Yahoo! Mail Address AutoComplete - You start. We finish.
> http://promotions.yahoo.com/new_mail