I am so with you on this!! Every night when I am hooking Madeline up I think of all the Moms who are doing the same thing. It is not easy I tell My "normal"...
Hi, Do any of you know how long a child can have a Gtube and when it is taken out (on purpose or accidentally) it still completely closes on its own? Bobby...
Hey Trish, I am not sure on this subject - Jon had his j-tube for a bit over 7 months or so and had it removed and it did not close on it's own - I am not sure...
Stephanie- Mt son has been tube dependant since he was one - he is now 3 1/2 - he also does not have "conversational" language skills but has many words - I am...
Jennifer, I just leave the drops on. When we were told about the product, they told us about sprays and stuff too. We got them but ended up only using the...
Hi Laura, When this happened to us, the trick to getting the button back in was to stiffen it up. Do you any of those one-sided hospital q-tips around? Try ...
Speech and language delays are not the same thing as apraxia. Apraxia is a very specifically defined neurological disorder of speech in which the child has...
Trish, In Isaiah's case, his stoma needed to be closed surgically. It drained for 6 weeks before the surgery, but somehow I was able to keep it clear of...
Hi Everyone, My son Aaron is now 6.5 months old, and has been undergoing therapy for his oral defensiveness and sensory integration problem since he was 3...
Suzanne explained apraxia much better than I could. But here's what we were told: Nathaniel has overall motor planning difficulties (gross and fine motor) and...
I also meant to add, maybe a neuropsych Dr could help you with more information? From: Jennifer Bishop <jabish@...> Reply-To: feeding@yahoogroups.com...
Hi, I understand your frustration and I am a firm believer that venting helps a lot. I have a 13 month old and my daughters story seems similar to your ...
My son had his g-tube for 2 1/2 years. He had it placed when he was less than a month old. When it was removed, it never closed fully. We waited 6 months and...
Hi Laura, I would suggest making the appt to see the surgeon immediatly. They will see her and stretch it for you most likely right at the appt. Ours do it for...
Hi I forgot to mention.. we have a little trick that was shown to us by the surgeons for getting the buttons back in when having problems. First use KY jellly...
Hi- I am new to this group. I have 13 mo old twins born at 25 weeks. My son has had a g-tube for 7 mos.- still severe reflux and feeding aversion. We have...
welcome, I know some people buy pumps on eBay but be cautious. there are parent boards that sell things too. Jennifer Hisrich, mom to Rebecca 9/18/98, 27...
Teresa, have you tried looking on Ebay? Also there are usually charities for these types of things like "Children's Miracle Network". We have a case worker...
When kids have overall motor planning difficulties, they often have motor planning (apraxia) issues in the mouth that affects their speech. But there are ...
Trish, My daughter is 32 months old and just got rid of her g-tube in September. She had it for 21 months. It leaked a little for 2-3 days, but hasn't since....
Thanks, Suzanne; it's great to have you on this list!!! Jennifer, N's mom From: SuzMorris@... Reply-To: feeding@yahoogroups.com Date: Fri, 2 Jan 2004...
Maria, I'm so sorry I lost your message in my inbox here are the documents now email me back with questions Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks,...
Hi just wanting to know if any one has used losec(prilosec)MUPS (multiple units pellet system) for reflux.Currently we are having a suspension made every 2...
If any of you are interested, this is the recipe that I got from our GI doctor to mix Prilosec or Nexium into a liquid. I think it works for Prevacid as well,...
I think this has been discussed before but I need to ask again. My son flushed his last medic alert bracelet down the toilet. Cute, huh? He has a serious heart...
Shelly, Try this site... http://www.missbrooke.com/index.html Be Blessed Abundantly, Renee, wife to Michael Mom to Mikayla and Rilea (struggling with LD's -...
This site looks pretty good. They've got quite a selection for kids--lots of charms and bracelet styles. http://www.lifejewelry.com/ruthieskids.html Stacie ...
