Look in the Bible on asking in prayer. I will be praying for you and your child. It will all work out. Dori...
EAGLE3JESU@...
Jun 1, 2003 8:06 am
16431
I am sooooo good at the appeals process. On e would think that when they see stuff for Mikey they would just push it through because they know I always win and...
Shelley Bautista
ShelleyBautista@...
Jun 1, 2003 2:12 pm
16432
Thanks Laura. I hadn't thought about going public. I am so very tired of haveing to appeal everything at the insurance level and then at the state level just...
Shelley Bautista
ShelleyBautista@...
Jun 1, 2003 2:14 pm
16433
I have tried asking for a case manager and am told we have one at the medical group. Of course this is whooey, but I can't get an answer from anyone about...
Shelley Bautista
ShelleyBautista@...
Jun 1, 2003 2:19 pm
16434
Heather, You had asked about excess mucous production a while ago. I don't know if this response is a repeat, but we used Zyrtec for my son. He always had...
Shannon- Again, I don't know whether this is a repeat to anyone who has already responded to your question regarding the Nissen Fundoplication. My son had...
Hi Amy, we're in Baltimore City and the daycare I'm thinking of is PACT's "World of Care" program in Woodlawn. That would be pretty far for you I imagine, but...
WAY TO GO BOBBY! Justin still takes one little lick or just looks at it and changes his mind, but at least he's showing interest. Hearing about Bobby's ...
Hi Sherri, Not to discount the sensory issues, because they are real and must be worked through, but regarding medical issues - is Gabriel taking anything for...
I found a few things today that we no longer use-brand new-and are free to a good home. Dozen 4 ft. Kangaroo extension sets 3 Kangaroo 1000 ml pump sets 2...
Great news, Trish! Good for Bobby! Sam ate a Pedialyte pop for the first time this week when he ahd the stomach flu. He was also so thirsty that he took...
Hi everyone... Kellee just got her g-tube placed last Tuesday and we've been slowly adjusting to it. I'm just wondering if you all find it easier to...
Yes,Gabriel takes Zyrtec as needed for his allergies(per allergist instructions).If he were better about taking it(gags and sometimes vomits)I would give it...
ssperry
ssperry@...
Jun 2, 2003 1:05 am
16444
Stephanie, My son gets 4 bottles a day about 4 hours apart - plus 3 boluses of water. I have found for him - even though he has had the tube for over 2 years...
It gets easier unhooking the more you do it - kinda like unhooking a bra! You're better at it now than you were when you first got one! LOL We use to keep...
In a message dated 6/1/2003 9:24:28 PM Eastern Daylight Time, ... Renee, are you saying you have extension tubing? I tried what you said about bring it...
In a message dated 6/1/2003 9:39:23 PM Eastern Daylight Time, wheelmk@... ... Thanks Kath :) I think I will try to keep it hooked up, I'm just worried that...
Stephanie- It sounds like you still have the long g-tube that they use when the tube is first done. After a while (6-8 weeks I think) they will usually switch...
Amy, Does your daughter with Turner Syndrome have feeding issues as well? Would you be interested in corresponding about Turner Syndrome issues? My email...
Hi, My son Ricky was born premature, he was diagnosed with "Aspiration" if he drinks thin liquids and severe reflux...Ricky is now 10 mths old and at his last...
Stephanie, What kind of button do you have? We have a Mic-key and they come with right angle y port extensions that are 12 and 24 inches long. We prefer the...
Thanks Kath :) I think I will try to keep it hooked up, I'm just worried that if we wanted to put another feeding in there, there would be a whole lot of air,...
Stephanie - If you go to the yahoo pictures - there are several of us that have pictures posted of our children's buttons and pegs. Jon Jon is on there and he...
to offer him 3rd foods but he gags terribly...Any-one else experience this? Dee, My daughter would do this for a long time - she had some sensory issues - she...
There are always many questions about nutrient values of foods that we give our kids. . .especially if we are trying to choose foods with high nutritional ...
Hi Heather- ... some ... I ... By the time our son completed the feeding program at KKI (100% tube fed when beginning) he left with a significant reduction in...
Hi Kris, Thanks for the information on finding a SLP. Very helpful. Regarding behavioral feeding programs, I believe they do have a place. We did a lot of...
My son has all of the characteristics that you described. His is due to the fact that he had Down Syndrome. High arched palates, aspiration and dysphagia are...
