Good for you for shooting back at the nurse. In my experience the docs are not quite as knowledgable as we think hen it comes to feeding problems (and WHY). ...
Lesley - how long did you daughter stay at Kluge? I'm not terribly far from there....so attending there with my daughter is a possibility ..at least ...
I have dealt with many nurses and doctors in my daughter's 4 years of life as we had private duty night nursing for 2 very long and frustrating years. Many of...
Sharyn Amy Menache
silvermenache@...
Apr 1, 2003 12:50 pm
15271
Since my twins are still refluxing, they would probably need to do the Nissen and because they're not eating, they would need to have a g-tube. From speaking...
Kim, Thanks for sharing that story about the septuplets. When I gave birth to my 23 weekers, I read that the septuplets were born about 10 weeks premature and ...
Just wanted to thank everyone for your responses to my post...along with your support and understanding. AMY---I sure do hope that they GET IT one day and that...
I have only had bad experiences with nutritionists. None of them seem to "get it"! RSS is a growth disorder and they don't "just get the hang" of eating. ...
After going through infertility myself, I don't view stories like this as something to cheer about. Getting pregnant with 7 fetuses is nothing to rejoice about...
Sharyn Amy Menache
silvermenache@...
Apr 1, 2003 6:07 pm
15276
Yes, I do understand all the issues of having a preemie. But I also have been in the shoes of wanting everything to be resolved quickly. I really don't want...
Sharyn Amy Menache
silvermenache@...
Apr 1, 2003 6:16 pm
15277
Jamie... I don't think there is ever a time line when it comes to feeding issues. My daughter had been tube fed from almost day one of her life. She was...
Sharyn Amy Menache
silvermenache@...
Apr 1, 2003 6:22 pm
15278
Amy, Thanks for the email, it's nice to hear others journey. Owen is such and individual and I'm sure your right that in his own time, he'll begin this too......
Hi Mary Lou Some of us are given task that are especially designed for us. I have learned so much through this journey and through the lives of others that...
JJ & Malia are scheduled for a consult next week to get a J-tube put in. I know this question has been asked before on this board, but are there certain ...
Today we went to the Cardiology Clinic to have our annual echocardiogram of Blake's heart. Blake had a AVSD repaired when he was 3 months old. I was a little...
Dear Heather, Since you already have a DS chart have you shown that to your dr.s? They may not have such a chart handy. I assume he is going down the ...
Hi Felice, Thank's for inquiring on how Emma is doing...Since that last e-mail she was
hospitalized for a two week period in February due to not wanting to...
My daughter has a jtube. I've been told that there is a jtube button, like the Mickey gbutton. I don't have any information about this so I can't give you...
Sharyn Amy Menache
silvermenache@...
Apr 2, 2003 2:49 am
15286
If you were directing this email at me there is freedom of speech (as someone on this board pointed out) so I don't have a problem with you voicing your ...
MessageI had it in the back of my mind that the last to points on Blake's chart weren't different. But, I thought maybe a measurement was wrong. For instance...
Huh?? I never said you can't voice an opinion. I was merely trying to point out that *I* don't see much to emulate about this family. I think they are ...
Sharyn Amy Menache
silvermenache@...
Apr 2, 2003 3:09 am
15289
On Tue, 1 Apr 2003 19:09:56 -0800 (PST) Sharyn Amy Menache ... As a mother of 2 1/2 year old boy/girl twins (in addition to a 10 year old boy and my 2 1/2...
Kathleen L Johnson
kathleenjohnson@...
Apr 2, 2003 4:22 am
15290
Hi There, About a month ago I remember reading an article that one of the members
posted regarding cleaning chemicals in infant cereal. Does anyone still
have...
One of the very things that happens due to Sam's syndrome is that every time he gets a cold it sits around for ages and causes spinoff health issues. This...
From the interviews I've seen with this family, I just don't see a struggling family, financially or emotionally. This is why I say that I don't believe they...
Sharyn Amy Menache
silvermenache@...
Apr 2, 2003 1:07 pm
15293
Dear Sarah, It's true most colds don't lead to an upper GI but most people's cold's don't involve any vomiting either. So something must be going on. Of...
I'm forwarding this as is to my feeding groups...it's an update I sent out about going to AZ to work with a feeding specialist. Thought it might give someone...
You mentioned Duke in one of your posts. Do you mean the one in Durham? That is where we go for Katy. We see Dr. Treem, but we have met all the other Pediatric...
Yes, Durham. We have met Dr. Treem when JJ & Malia were admitted earlier this year. We see Dr. Berman. Did Katy go to Duke's Special Infant Care Clinic for ...
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