Oh, you poor poor things - I was filling up just reading your post, remembering how horrible it all is the first few days. Here's my tuppence worth: I would...
Jane Barker
barker_jane@...
Mar 1, 2003 10:21 am
14753
I did call the zevex company and the rep for our state is useless (sorry) - he has given me several companies that carry it and would be able to help me - and...
Renee, We had the same problem here in WV. I had three DME providers saying, nope wont sell it. I called the Zevex rep, and the Main Office and they hooked...
Hi, Can someone help me work through a NO FOOD error on my new (just two days old) entralit pump. I followed the steps in the manual, cleaned the sensors per...
Hi, When I get a no food error sometimes it is that the formula is cold. I always warm Maura's formula. The formula can get thicker when it is too cold. I...
... Did they test him on the pump at the hospital? Katie was tested on the pump for a couple of days before we were sent home. It takes a while to recover ...
sometimes if part of the tubing is kinked or if it is twisted even just slightly we get this errror too. i just make sure that it isn't kinked, and that aiden...
Angela, Sorry you and Keagan are going through this...wish it could be easier on him...and you. I don't know anything about the G-tube but can comment on the...
For years my son threw up, spit up and was constipated on the canned formulas. Thickening the food and giving bolus feeds, in small more frequent quantities is...
Dear Steph, I apologize for this very delayed response but I don't get on the internet very often due to the involvement of our son's medical condition. Our...
In a message dated 3/1/03 12:58:13 PM US Eastern Standard Time, ... Logan is eight. He had the nissan g tube surgery when he was almost two. It becomes...
hi angela.....i dont know what to say about all the puking???? but maybe he hasn't pooped because didn't he need to be fasted for a little while before the...
Sorry for posting this here, but is there anyone on this list living in Hawaii. There is a possibility that we are moving there in the near future so I would...
Call your nurse or GI, ASAP. Does he need a NISSAN wrap? Get as many people as possible to pray for you all.I will. Projectile vomiting is scarry. My first...
EAGLE3JESU@...
Mar 3, 2003 1:30 am
14767
It been a while we had some posts about cyclic episodes and I told you our doctors wanted to do some test during one of Maxine's episodes. Finally after having...
Jennifer, I am so glad for you and Roman. If I were you I would give it a little more time. Dop not worry about the weight chart, but by Roman's own growth ...
Rob an Felice
robfeliz@...
Mar 3, 2003 2:39 am
14769
I've been a pediatric RN for ten years (!) and never once heard of this syndrome, specifically the one referred to as "DiGeorge". Well, I've learned a lot in a...
kathleenjohnson@...
Mar 3, 2003 3:44 am
14770
Hi everyone My 16 month old daughter is starting to swallow a bit more regularly - great news, eh? But she is swallowing absolutely bucket-loads of air all...
Jane Barker
barker_jane@...
Mar 3, 2003 10:05 am
14771
Angela- Did they show you how to vent the tube in the hospital? This helped Camryn a lot that first week. Your Bard booklet should tell you how to do this. I...
Kathi, I just wanted to comment on thickening the breastmilk with rice cereal. My twins both have reflux and while they were in the NICU, they thickened my...
Can an infant/child go swimming with a G-tube? I hope this isn't a stupid question. My twins are still on the D-tube...no G-tube yet but I was just curious ...
My son goes swimming with his Gtube almost daily, either in the tub or in our pool. Actually, his site looks better with the swim than for the times he goes...
Hi- Yes, infants/children can go swimming with a g-tube. I asked this same questions to my g-tube nurse and she told me that the chlorine in the pool can help...
I know in the recent past there was a fairly extensive thread about the Kluge Clinic and the people associated with it. To be honest I ignored the thread,...
Bronwyn Graves
bronwyngraves@...
Mar 4, 2003 1:00 am
14777
Hi Kathy, I have just started receiving emails from this group. As a speech-language pathologist working in early intervention, I see lots of kids with feeding...
DMantione@...
Mar 4, 2003 2:02 am
14778
Sorry--I made a typo! Should have read to "thicken breastmilk"......
DMantione@...
Mar 4, 2003 2:09 am
14779
Hi everyone. I have just joined the group and am diving in feet first without my usual wait and read approach as I am so desperate for some help and...
I've been thickening breastmilk with rice cereal and all kinds of food for years now. I never had a problem. I use it right after I mix it, though. I'm not...
