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Thomas Update   Message List  
Reply | Forward Message #51695 of 54714 |
RE: [feeding] Re: Thomas Update

Thanks Robin,

 

Sadly, we’re in New Zealand and we only have the choice of the solution (in a sodium bicarb base – so really bitter!) or the capsules which you have to open and scatter on his food. They taint the taste of the food and he stopped eating bananas (I’d hollow out a bit and put it in and reseal it), he stopped eating pureed fruit, he stopped eating cornflakes and even stopped eating bread after I used the soft part to make a ball around the granules! He still won’t eat purees or bananas since all of that.

 

We’re currently mixing the 5mls of solution (10mg med) with about 6mls of fruit juice in a syringe. He was reasonably compliant this morning – although we’re still not giving him much choice in the matter as one holds him down and the other squirts it in!

 

I sooo wish we could get the solutabs but have discovered that if you import medications which are not on the official list then they will get stopped at the border and sent back – and you get hit with a whopping fine. I asked my brother who works with the Ministry of Health if there was any way round it since the DRUG is on the list, just not in that form but apparently not.

 

Eleanor, mummy to -
William, 33 weeker 10 years,
Nicholas, 36 weeker 7 years,
Thomas, 36 weeker now 3.

 


From: feeding@yahoogroups.com [mailto:feeding@yahoogroups.com] On Behalf Of robin_mln
Sent: Sunday, 3 August 2008 1:23 a.m.
To: feeding@yahoogroups.com
Subject: [feeding] Re: Thomas Update

 

Hi Eleanor,

You might want to try Prevacid solutabs instead of the Prilosec. They
work the same way, but the Prevacid solutabs are MUCH better tasting.
They are a little tablet that you dissolve in water and it has a sweet
taste. Much easier to get down!

Best of luck!

Robin


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Sun Aug 3, 2008 1:52 am

eleanormdyne
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Message #51695 of 54714 |
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Well, we saw the GP yesterday – no weight change and she was off with her last height measurements by a cm so there’s only a possible increase of half a cm...
Eleanor
eleanormdyne
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Aug 1, 2008
9:39 pm

Hi Eleanor, You might want to try Prevacid solutabs instead of the Prilosec. They work the same way, but the Prevacid solutabs are MUCH better tasting. They...
robin_mln
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Aug 2, 2008
1:23 pm

Thanks Robin, Sadly, we're in New Zealand and we only have the choice of the solution (in a sodium bicarb base - so really bitter!) or the capsules which you...
Eleanor
eleanormdyne
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Aug 3, 2008
1:52 am

Wow, that really stinks. Don't take it personal, but your country sounds a little messed up when it comes to the meds :-( Then again all countries have...
itsnopicnic
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Aug 3, 2008
2:19 am

Thanks Michelle, Thomas had an amazing day eating yesterday and was soooo much happier - if only he could put the two together! It's too soon for it to be the...
Eleanor
eleanormdyne
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Aug 3, 2008
11:42 pm

We sprinkle Silas' previcid on yoghurt or pudding and I think that because it is very thick he doesn't notice. although since he has stopped eating again, I am...
Amanda Marshall
amandamarshall@...
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Aug 3, 2008
4:04 am

Thanks - but Thomas is cow's milk protein and soy allergic - so no yogurt, puddings are hard, no icecream etc. We used pureed fruit until he rejected that -...
Eleanor
eleanormdyne
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Aug 3, 2008
7:35 am

Eleanor, Is there a reason you have to give the iron and previcid at different times??? Silas was just started on an iron supplement and they didn't tell me...
Amanda Marshall
amandamarshall@...
Send Email
Aug 3, 2008
2:27 pm

The iron comes with a note not to give with various things including antacids (ironically it also says not to be given with iron but I’m not quite sure how...
Eleanor
eleanormdyne
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Aug 3, 2008
11:22 pm

There is a rice yogurt that is dairy and soy free. It is called Ricera. Also you can make pudding from rice milk. You just take some rice milk and dissolve...
Jennifer Bussey
seanandkaty
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Aug 3, 2008
7:31 pm

Thanks Jenny, Unfortunately as I live in a country with a very small population (4 million TOTAL population) those products are not available here. I have...
Eleanor
eleanormdyne
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Aug 3, 2008
11:31 pm

Our rice milk is fortified with calcium to have the same amount as cow's milk. And if you are using it to make pudding it isn't replacing the formula, it is a...
Jennifer Bussey
seanandkaty
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Aug 4, 2008
2:21 pm

Well, we had our appointment today. Acc to their scales Thomas had gained a bit from their last weight which was way out on the last one from the GP. So we...
Eleanor
eleanormdyne
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Aug 26, 2008
3:14 am

I am glad to hear you got a new dietician to work with him. It is a very long process. I had a few nutritionist come to my house before I found one that was...
Wolf-Zeolla, Donna
dwolf23
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Aug 31, 2008
1:23 am

Hopefully I'll post properly tomorrow - Nicholas is being a pain tonight! But Thomas saw the paed today and he is being referred back to the surgeon for a...
Eleanor
eleanormdyne
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Nov 27, 2008
7:40 am

Good having some answer Jennifer Hisrich, mom to Rebecca 9/18/98, 27 weeks, 1 lb. 3 oz. G-button for hydration and meds, Missing right cerebellum, Glasses,...
Jennifer Hisrich
hisrichzions
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Dec 2, 2008
12:26 am

Thanks! It's a step in the right direction anyway! We see the surgeon on the 16th - it was either then or wait to see him in the middle of Feb.but I can't see...
Eleanor
eleanormdyne
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Dec 2, 2008
12:36 am

Okay, Just home from the surgeon and loads of questions for those of you who have a g-tube kid. Thomas will be having the fundo surgery on 3 Feb. The surgeon...
Eleanor
eleanormdyne
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Dec 15, 2008
10:08 pm

Eleanor, I am glad someone finally took you serious and did something about Thomas's need for nutrition. I am a little confused as to why you have to figure...
Marilyn Kurman
moekurm
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Dec 16, 2008
4:57 am

Thanks Marilyn! We see a dietician on Tuesday so I'll be firing all sorts of questions at her about how to manage his feeds. The surgeon basically is the...
Eleanor
eleanormdyne
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Dec 16, 2008
6:04 am

Eleanor, The tube feeding is pretty simple and to be honest with you a Godsend. I can't imagine going through what you and many others in this group have gone...
Marilyn Kurman
moekurm
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Dec 16, 2008
3:08 pm
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