Familial Dysautonomia Village Newsletter: Familial dysautonomia –FD Village www.fdvillage.org Vol. 1, No. 1 June 25, 2000 Table of contents: 1. What's New at...
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speltzer2@...
Jun 26, 2000 4:58 am
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Dear Dr. Rubin, Let me add my words of congratulations and thanks for what your department has accomplished. Many of us have heard that the mutation will be...
speltzer2@...
Jan 11, 2001 3:17 am
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NEWSLETTER OF FD HOPE June 2001 Introduction by Editor, Mavis Feinberg: Last month we began this monthly newsletter with a general welcome, an ...
speltzer2@...
Jun 26, 2001 7:17 pm
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FAMILIAL DYSAUTONOMIA HOPE Newsletter of September 2001 Dear Friends, A tremendous tragedy befell the world on Tuesday morning. Who of us has not cried for...
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Sep 18, 2001 7:10 pm
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Familial Dysautonomia, Inc. Special Bulletin October, 2001 FAMILIAL DYSAUTONOMIA TESTING REACHES THE NATIONAL LEVEL --Genzyme to offer testing for familial...
FAMILIAL DYSAUTONOMIA HOPE NEWSLETTER JANUARY 2002 LETTER FROM THE EDITOR by Mavis Feinberg As we enter a new calendar year, FD Hope sincerely wishes all of...
Please note the correction in the following article from our current newsletter: FROM THE TRENCHES: TWO THERAPEUTIC CONSIDERATIONS FOR INDIVIDUALS WITH ...
Urgent! Action Alert THE PRESIDENT’S COUNCIL ON BIOETHICS ISSUED REPORT CALL THE WHITE HOUSE AND YOUR SENATORS The President’s Council on Bioethics...