To provide news and updates on the FD Village web site (www.fdvillage.org), a site devoted to support of research and individuals with familial dysautonomia.
Urgent! Action Alert THE PRESIDENT’S COUNCIL ON BIOETHICS ISSUED REPORT CALL THE WHITE HOUSE AND YOUR SENATORS The President’s Council on Bioethics
Please note the correction in the following article from our current newsletter: FROM THE TRENCHES: TWO THERAPEUTIC CONSIDERATIONS FOR INDIVIDUALS WITH
FAMILIAL DYSAUTONOMIA HOPE NEWSLETTER JANUARY 2002 LETTER FROM THE EDITOR by Mavis Feinberg As we enter a new calendar year, FD Hope sincerely wishes all of
Familial Dysautonomia, Inc. Special Bulletin October, 2001 FAMILIAL DYSAUTONOMIA TESTING REACHES THE NATIONAL LEVEL --Genzyme to offer testing for familial
FAMILIAL DYSAUTONOMIA HOPE Newsletter of September 2001 Dear Friends, A tremendous tragedy befell the world on Tuesday morning. Who of us has not cried for