The Bicentennial Walk: Cancer Free Starting 2003 www.roadoflife.org From September 4-20, 2003, Road of Life, a non-profit organization supporting cancer...
I have searched the web for Ewing's support groups, bu this is one of the only one's I have found. I am 38 and was diagnosed 7/3/02 with Ewings in my foot. I...
Hi, and welcome to the group. I am 12 years old and was diagnosed with Ewings to my right rib cage, mets to my lungs, at age 5. A good thing to do may be to...
Hi, and welcome to the group, My name is Marybeth and I am the parent of a nine year old diagnosed with Ewings of the pelvis in 2002. You will find that the...
wow, i think you are the first person i've ever heard of getting ewings after the age of 30. i thought i was old when i got when i was 28. What bone...
Chris, How long have you been out of treatment. My daughter Caitlin had Ewings with her primary site being the sacrum. She is nine, we finished chemo,...
Yes I know I am a freaky rare ES speciman. My cancer was/is in my calcaneous...heel bone. The tumor took up over 2/3'rds of the bone. The rareity is I am...
I have a question for everyone on the list. Has anyone ever used Lupron? please let me know any info you have. I would really appreciate it. Lexi ... Do you...
Hi Beth, my name is Garrett. I also have ewings, mine was in the pelvic. I had gone throught the chemo, the surgery, and the radiation as well. It was a...
Garret you sound like you have this thing licked already. I give you a lot of credit. I had given up in December, Even tried to run my car into a pole to make...
Hi Beth, I know exactly how you feel about being in the hospital. I was the same way, i hated being there, the five days would go by so slow, and i hate to...
Hi everyone! I'm a 29-year-old female that was diagnosed with Ewing's Sarcoma a year ago last November. I had a large mass on my left scapula (shoulder...
Hi, Laura! My name is Lexi and I'm 12. I was dx at age 5. Part of my protocol was a stem cell transplant. None of family members were a match, so my own...
Lexi, With my stem cell transplant, they will be using my own stem cells as well. I have about a zillion questions to ask you. I hope you don't mind. How...
See that is what I am afraid of. Relapsing. I keep hearing that happens too much. I have ben on a mission lately Seems our water is contaminated and is know to...
I don't know how you managed to read or watch tv. My vision during the whole year was so off, I couldn't even have the TV on becasue it made me dizzy. Forget...
Would you mind telling me what you are using for your relapse? My fiance has relapsed and we are on exatecan mesylate. We have done two trials and they have...
hi there, i know things seem gloomy right now hearing about relapses, but you have to think positive all the time and keep high spirits. Ya, i was afraid of...
Laura, During transplant I was in the hospital about a total of one month. I do not mind at all. This is one thing I am good at giving advice about. I had...
I still have problems eating a full meal a day. During my chemo/radiation I slept 80% of the time. And food was the last thing I ever wanted. I learned I could...
Hi Laura, Welcome to the list! I have had 4 stem cell transplants. If there is anything you would like to know about the procedure I would be glad to help you....
Hi! I would like to welcome the new members to list. Thanks for joining! I am sorry I haven't been able to keep up much this summer. I should be getting...
My daughter Kelsey was first diagnosed with Ewings in the scapula in December of 1999. The protocol was a year of chemo and surgery to remove her scapula. She...
Hi sandy, my name is garrett and i was dx with ewings a year and 3 mos ago in my pelvic. I did the chemo, surgery and radiation, and it has met to my lungs....
Garrett, Would you mind letting us know if the vincristine and topotecan is working on controling the tumors. We are looking for any drug to control them so...
I also was diagnosed with Ewing's Sarcoma in my scapula with mets to the spine in November of 2002. I had three months of chemo. Then I had surgery to remove...
Kayce, Last week was spent "harvesting" my stem cells. I can't believe how long each day was. I'm glad that at least that part of it is over. How was the...
Thanks for the information. Our oncologist has never suggested a stem cell transplant. I am unsure as to why. Good luck with your transplant. I will be praying...
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