Lexi, Hi congrats on being a survivor!!! I am sorry that I haven't written back sooner. I had surgery in March and one of the lung nodules they took out was...
Hi Kayce, Congrats on doing great right now! Have a wonderful time in Hawaii. My name is Marybeth and I am the mother of a nine year old Ewings survivor! ...
... We are dealing with Ewing's and I look on here everyday for people to write. No one has in so long. Would you mind telling what treatments you did to ...
Dear Melissa, Hi, my name is Marybeth. I am the parent of a Ewings child who is nine. Her's started in the pelvis area also. Actually the sacrum. Her treatment...
Melissa, Hi my treatment protocol contained chemo, radiation to lungs head and pelvis. I also had surgery to my pelvis and 4 stem cell transplants. I would...
I think you emailed this to the wrong email address there is no melissa here ... __________________________________ Do you Yahoo!? SBC Yahoo! DSL - Now only...
... Hi my treatment protocol contained chemo, radiation to lungs head and pelvis. I also had surgery to my pelvis and 4 stem cell transplants. I would...
Dear Marybeth, My name is Lexi and I am 12 years old. I am a survivor of Ewings in my ribs, mets to my entire chest cavity (especially my lungs). I was...
Kayce, hope all is well now. have fun in Hawaii!! :) i read your story on a e-sarc group that my mom is on, that's how i got curious. (just FYI) my summer...
The Bicentennial Walk: Cancer Free Starting 2003 www.roadoflife.org From September 4-20, 2003, Road of Life, a non-profit organization supporting cancer...
I have searched the web for Ewing's support groups, bu this is one of the only one's I have found. I am 38 and was diagnosed 7/3/02 with Ewings in my foot. I...
Hi, and welcome to the group. I am 12 years old and was diagnosed with Ewings to my right rib cage, mets to my lungs, at age 5. A good thing to do may be to...
Hi, and welcome to the group, My name is Marybeth and I am the parent of a nine year old diagnosed with Ewings of the pelvis in 2002. You will find that the...
wow, i think you are the first person i've ever heard of getting ewings after the age of 30. i thought i was old when i got when i was 28. What bone...
Chris, How long have you been out of treatment. My daughter Caitlin had Ewings with her primary site being the sacrum. She is nine, we finished chemo,...
Yes I know I am a freaky rare ES speciman. My cancer was/is in my calcaneous...heel bone. The tumor took up over 2/3'rds of the bone. The rareity is I am...
I have a question for everyone on the list. Has anyone ever used Lupron? please let me know any info you have. I would really appreciate it. Lexi ... Do you...
Hi Beth, my name is Garrett. I also have ewings, mine was in the pelvic. I had gone throught the chemo, the surgery, and the radiation as well. It was a...
Garret you sound like you have this thing licked already. I give you a lot of credit. I had given up in December, Even tried to run my car into a pole to make...
Hi Beth, I know exactly how you feel about being in the hospital. I was the same way, i hated being there, the five days would go by so slow, and i hate to...
Hi everyone! I'm a 29-year-old female that was diagnosed with Ewing's Sarcoma a year ago last November. I had a large mass on my left scapula (shoulder...
Hi, Laura! My name is Lexi and I'm 12. I was dx at age 5. Part of my protocol was a stem cell transplant. None of family members were a match, so my own...
Lexi, With my stem cell transplant, they will be using my own stem cells as well. I have about a zillion questions to ask you. I hope you don't mind. How...
See that is what I am afraid of. Relapsing. I keep hearing that happens too much. I have ben on a mission lately Seems our water is contaminated and is know to...
I don't know how you managed to read or watch tv. My vision during the whole year was so off, I couldn't even have the TV on becasue it made me dizzy. Forget...
Would you mind telling me what you are using for your relapse? My fiance has relapsed and we are on exatecan mesylate. We have done two trials and they have...
hi there, i know things seem gloomy right now hearing about relapses, but you have to think positive all the time and keep high spirits. Ya, i was afraid of...
Laura, During transplant I was in the hospital about a total of one month. I do not mind at all. This is one thing I am good at giving advice about. I had...
I still have problems eating a full meal a day. During my chemo/radiation I slept 80% of the time. And food was the last thing I ever wanted. I learned I could...
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