Hello, I am a member of a team we are setting up a website and have been awarded a £12,500 grant from the Princes Trust Millennium Commission (project...
Hi everyone! I'm a 29-year-old female that was diagnosed with Ewing's Sarcoma a year ago last November. I had a large mass on my left scapula (shoulder...
My daughter Kelsey was first diagnosed with Ewings in the scapula in December of 1999. The protocol was a year of chemo and surgery to remove her scapula. She...
Hi! I would like to welcome the new members to list. Thanks for joining! I am sorry I haven't been able to keep up much this summer. I should be getting...
I still have problems eating a full meal a day. During my chemo/radiation I slept 80% of the time. And food was the last thing I ever wanted. I learned I could...
I don't know how you managed to read or watch tv. My vision during the whole year was so off, I couldn't even have the TV on becasue it made me dizzy. Forget...
Garret you sound like you have this thing licked already. I give you a lot of credit. I had given up in December, Even tried to run my car into a pole to make...
Yes I know I am a freaky rare ES speciman. My cancer was/is in my calcaneous...heel bone. The tumor took up over 2/3'rds of the bone. The rareity is I am...
I have a question for everyone on the list. Has anyone ever used Lupron? please let me know any info you have. I would really appreciate it. Lexi ... Do you...
I have searched the web for Ewing's support groups, bu this is one of the only one's I have found. I am 38 and was diagnosed 7/3/02 with Ewings in my foot. I...
The Bicentennial Walk: Cancer Free Starting 2003 www.roadoflife.org From September 4-20, 2003, Road of Life, a non-profit organization supporting cancer...
i am new to this group. read my post- i'm a survivor- to learn mmore about me. but i was wondering if anyone has heard from kayce lately. if anyone has-...
Dear Marybeth, My name is Lexi and I am 12 years old. I am a survivor of Ewings in my ribs, mets to my entire chest cavity (especially my lungs). I was...
Hi! my name is Lexi and i am almost 12. i was diagnosed with ewings at age five in my fifth rib on the right side of my chest. (mets to my entire chest...
Hi everyone! I'm new to this group. I have been remission for Ewing's since June, 2001 and am doing ok. I have lots of late effects stuff that totally stinks...
I am new, my boyfriend of 5 years had just finished with ewing's in his pelvis through chemo and surgery. It has been an unbelievable long year with...
Visitors to this Group might like to be aware - if they haven't discovered it already - that there is another Group on Ewing's Sarcoma. It is called ...
Dear fellows my 27 year old brother was diagoinsed with ewings sarcoma in june 2002 in pelvis. Sunsequent bone scan showed a shadow in left arm humerous which...
Hello everyone, My sister was diagnosed with a primitive neuroectdermal tumor/ewings sarcoma shortly before Christmas. I have been in shock ever since. I keep...
Hey there.. I didnt catch your name but I'm Amber and i live in sc. I had ewings also in my foot. I finished chemo in june just 5 months ago but i still have...
Mostly the same yesterday, a little "cloudy". I guess that kind of weather is to be expected after what he's been thru! He has a huge case of hiccups!! So,...
Hi, All, Just wanted to update you on Gary's progress. I visited him this last weekend and was pleased to see him improving, slowly. He was admitted to a...
Well, it worked! You know, if you pull that feeding tube out enough times, they finally quit putting it back in!!! Yep, he did it, again! But the Speech...
Gary's made great progress, thanks to all your prayers!!! He is still paralyzed on the right side, but that's his only handicap!!! Yesterday, when we entered...
Hi, I am a youth director of a Catholic Youth Group in Naples Florida. I just had one of our kids diognoised with this form of cancer. I am looking for any ...
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