Hi there, I am 25 years old, from New Zealand and had Ewing's in my left femur at aged 13. I had a year of chemo and 3 months of radio. My tumour did not bulge...
Rachel, I'm glad to hear your doing well. JT's tumor was so huge 7.2"x9"x13" we didn't have alot of choices. Our doctor said his muscle was so damaged if...
Friends: Here on Cape Cod we have a cluster of Ewing's sarcoma with a standardized incidence ratio of 3.84 (Massachusetts Department of Public Health figure)or...
Hi Bernie, I'm a Ewing's patient and an American living in Belgium (just 10 million people) and have been anecdotally surprised at the number of cases just...
Scott Thank you for your comments. I have just posted three files on this blog (which I think are visible only to members) which answer most of the points you...
Hi I wonder could you post the information, I live in the republic of ireland and we have a population of 3500,000million yet where I live and near by three...
Hi, Â Â Â My name is Fawad and I am a Pakistani, I lost my younger brother (Umar) to ewings sarcoma of pelvic bone in Feb 2004. Although we don't have...
Patricia Maine West High School in DesPlaines, Illinois, had cases of Ewing's sarcoma in 2003 and 2004 (the latter being a recent graduate). It's a big...
My son, now 26 years old, was diagnosed at age 18 with Ewings Sarcoma. We live in a suburb of Detroit, called Bloomfield Hills. There were at least three...
Sharon & Fawad This site had been dormant for a month and all of sudden it's a whirlwind. If you follow the same message I left with Patricia and read the...
Hi There have been clusters in south of england in a school, as I said it has been something \i have been very interested in, as I said on my own I got from...
Bernie, My son was diagnosed during his first semester at Michigan, my daughter will be a sophmore there this fall. Interesting to hear your're an alumni. ...
My daughter was diagnosed in 2002 at age eight, she was involved in some sports, but not much at that age. However, another child at the same school was...
I have been reading all of this and I'd like to add my 2 cents. JT broke his leg Dec.31,04 wasn't diagnosed with Ewings until Nov. 15,07. For at least two...
Hi Shauna, I too am interested in the clusters. I can completely associate with you on the growing pains. That is all I heard for two years on my daughter....
Marybeth, I think alot of the ER diagnosis depends on what kind of doctor they are, we just weren't lucky enough to get an orthopedic oncology doctor. JT...
Shauna, and other friends out there in the blogosphere: This has been a busy 24 hours. I'd like to offer some observations of what's on people's minds. 1)...
Hi my daughter Krystle in the February 2001 was playing rackettball in the local leisure centre she was a tall young girl of 17 years old she tripped and fell...
Hi Shauna, We were diagnosed at St. Jude Childrens Research Hospital after our local ER found the tumor, we were sent there immediately. I remind myself...
My son Mike was a high school athlete who played football. When he was a senior he began having pain in his foot-he thought it was related with his running and...
Hi I was just thinking about something Krystle was left handed and I go to a meeting of Bone Cancer research trust in the Uk every 10 weeks and I was asking...
Marybeth, I had to laugh at your posting... in the beginning I didn't know his bowel activity but I sure do now! Have a great Day and thanks for making me...
Bernie, Thanks for all the info, I'm saving that to reflect on from time to time. Yes, we were in the Air Force at Keesler AFB in Biloxi, MS. or at least...
Teresa, That is what makes me so mad. I took JT to the ER on five different occassions all we EVER got was an xray which should a broken bone that healed...
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