Hello everyone, My sister was diagnosed with a primitive neuroectdermal tumor/ewings sarcoma shortly before Christmas. I have been in shock ever since. I keep...
Dear fellows my 27 year old brother was diagoinsed with ewings sarcoma in june 2002 in pelvis. Sunsequent bone scan showed a shadow in left arm humerous which...
Kayce, Thanks for your information, it's really appreciated. I'll be checking out the websites you gave me over the weekend. I hope all is well with you and...
... 2002 found out that i had ewings also in my pelvis. As of this coming weekend this will be my 10 chemo treatment. Also, in september i had hemipelvectomy ...
hi I am 25years old and my soon to be step daughter who is 10 has ewings first it was in her leg to where they had to amputate her leg then a little while ago...
Hi everyone! I'm new to this group. I have been remission for Ewing's since June, 2001 and am doing ok. I have lots of late effects stuff that totally stinks...
... kid but i do have ewings in my pelvic. I'm currently going through chemo, i'm almost done with it. I have 4 more treatments and probably will start...
Visitors to this Group might like to be aware - if they haven't discovered it already - that there is another Group on Ewing's Sarcoma. It is called ...
I am new, my boyfriend of 5 years had just finished with ewing's in his pelvis through chemo and surgery. It has been an unbelievable long year with...
... hello, i also had ewings in my pelvis. i am 5 years out from surgery. once cancer spreads, it doesn't matter if it's ewings or another type, it's going to...
... kid but i do have ewings in my pelvic. I'm currently going through chemo, i'm almost done with it. I have 4 more treatments and probably will start...
... kid but i do have ewings in my pelvic. I'm currently going through chemo, i'm almost done with it. I have 4 more treatments and probably will start...
Hi! my name is Lexi and i am almost 12. i was diagnosed with ewings at age five in my fifth rib on the right side of my chest. (mets to my entire chest...
i am new to this group. read my post- i'm a survivor- to learn mmore about me. but i was wondering if anyone has heard from kayce lately. if anyone has-...
good for you Lexi- you sound like a fighter- hope you are feeling good- my son had the same although it was in his foot which met to his lungs- hope all...
Lexi, Would you mind sharring what drugs you took and your procedures? My fiance had it in his pelvis and it has now come back in his lungs. Just curious...
Melissa, I did high dose chemo, had surgery, total body radiation, more chemo, then a stem cell transplant in which my own cells were frozen, then placed back...
... back, and the last i had heard from her was that she was having surgery done on her lungs. That was maybe 2 or 3 mos ago. I have tried to email her,...
HI. Kayce did have surgery a couple months ago, and she is doing fine now. Just so you aren't worried about her. I don't know specifics, just that things are...
Lexi, Hi congrats on being a survivor!!! I am sorry that I haven't written back sooner. I had surgery in March and one of the lung nodules they took out was...
Hi Kayce, Congrats on doing great right now! Have a wonderful time in Hawaii. My name is Marybeth and I am the mother of a nine year old Ewings survivor! ...
... We are dealing with Ewing's and I look on here everyday for people to write. No one has in so long. Would you mind telling what treatments you did to ...
Dear Melissa, Hi, my name is Marybeth. I am the parent of a Ewings child who is nine. Her's started in the pelvis area also. Actually the sacrum. Her treatment...
Melissa, Hi my treatment protocol contained chemo, radiation to lungs head and pelvis. I also had surgery to my pelvis and 4 stem cell transplants. I would...
I think you emailed this to the wrong email address there is no melissa here ... __________________________________ Do you Yahoo!? SBC Yahoo! DSL - Now only...
... Hi my treatment protocol contained chemo, radiation to lungs head and pelvis. I also had surgery to my pelvis and 4 stem cell transplants. I would...
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