My name is Martha Austin and I have an 8 yr. old daughter who had Ewings in her right arm. Her last chemo was in April and we go back for more tests in a...
Dear Martha, I'm scott. 40 years old with soft tissue EWS. I have an 8 year old and a 6 year old so I understand the pain and strain of all of this from the ...
Thank you very much for your information. I have been terrible through all of this and I want to know RIGHT NOW whether or not it is going to come back. I know...
Hello, everybody!! First of all, I would like to say thank you very much, Scott, for all your explanations. It was very interesting to read, and it aslo ...
Hello to you all and sorry we have to meet like this, but we have to make the best of what we have, and here we are. My name is Mary Lynne I am 41 years young...
Hello, Mary! How are you? My name is Olga. I'm 28years old, actually will turn 29 on Thanksgiving Eve. I'm sorry to hear that your cancer got back. sorry!!!...
Has anyone heard of a demineralized glenoid? My 8 yr. old daughter had her tumor removed from her right humerus in August of 2005 and now the doctors say that...
Try this link http://www.ejbjs.org/cgi/content/abstract/87/10/2253. Try not to get worked up over this stuff. I have decided I am not going to stress out over...
To a conventional physician, the tumor is the enemy. Cancer is viewed as a local disease, namely the tumor. By cutting out the tumor, irradiating it, or...
Last thursaday our 15 yr old daughter had a sore back,after what seems so sureal, she starts her treatments this thursday. We all wake up every morning hoping...
where are you from and what hospital/dr.s are you going through? i know this is a horrible experience for you.. we've all been there and we KNOW what you're...
My heart goes out to you and your family.. I to had ewings sarcoma and have been in remision for several years. I will be praying for you all, if there is any...
We are in the Chicago metro area and we are being treated at Children's Memorial in Chicago. Where was your husband treated and what treatment did he have? ......
We as well are in the Chicago area. North burbs. Childrens is a great hospital. My six year old son is currently going through treatments for Ewings there....
I'm so sorry to hear of your daughter's diagnosis. Since Ewings is rare and aggressive, they sure do start chemo fast and it can be very hard to take in...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the ewingssarcoma group. File :...
ewingssarcoma@yahoogr...
Feb 14, 2007 11:50 am
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I posted a few days ago as a desperate parent looking for information. Wow you guys are so great for reaching out to someone you never met. What I am realizing...
Unfortunately we are all part of a club we had no interest in joining. Nikki will be in my family's prayers. My son Joseph was diagnosed a little over a year...
None of us here is alone! I've added some links to the Links page with more support resources. I like to go to the ABC site from time to time just to remind...
Hi Tom, It's fantastic that your scans were clean and we'll pray they stay that way. My heart goes out to you for what you have been through. Nikki started...
Hi Jamie and Karen, That is fantastic news that this is localized and not in the bone. Thank God for that. She will feel bad but this will get better. The kids...
I've been reading all of your emails over the past years and have never written in. My son, now 25, was diagnosed with Ewings Sarcoma in his spine almost seven...
That is great news that the cancer is localized. It sounds like Nikki is on the same chemotherapy regimin Joseph had. He would have a one night hospital stay...
It's great to hear that some patients handle the 5 day better than the 5 day treatment. We figured the 5 day would be allot worse because it's a longer...
Hello, everybody! It's so good to see new messages and supportive letters in our group. My name is Olga. I'm 29. I was diagnozed with Ewing's sarcoma in lower...
Hi Olga, With all that you have gone through mentally, dealing with the disease, treatment, family issues, and everything else it can make you depressed, it...
I agree with Marybeth that you should consider the anti-depressants. The new meds do NOT have the same personality-altering effects as the old-time drugs like...
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