Hi Chris, My daughter aged 11 has a Ewings Sarcoma in her left iliac bone.she has been on chemo for the past 6 months and was due to have radiotherapy as her...
Veronica, If you want more of an active esarcoma email group go to http://listserv.acor.org/archives/e-sarcoma.html there is a lot of people on that list that...
Gary's made great progress, thanks to all your prayers!!! He is still paralyzed on the right side, but that's his only handicap!!! Yesterday, when we entered...
Well, it worked! You know, if you pull that feeding tube out enough times, they finally quit putting it back in!!! Yep, he did it, again! But the Speech...
Mostly the same yesterday, a little "cloudy". I guess that kind of weather is to be expected after what he's been thru! He has a huge case of hiccups!! So,...
Hi, All, Just wanted to update you on Gary's progress. I visited him this last weekend and was pleased to see him improving, slowly. He was admitted to a...
Hi, Janet here…(Gary's sister) Jenifer & I visited Gary this last weekend and he is slowly improving. He has small movement in his right side, but the left...
... lungs. ... hi Gabe--i'm not a teenager, but i did have ES in my hip area. it started in my left illiac crest to be exact. if you'd like to talk more or...
My name is Garrett, i'm 25, and i found out that i had ewings in May of '02. I came across this support group the other day when i was doing some reseach on...
Hey there.. I didnt catch your name but I'm Amber and i live in sc. I had ewings also in my foot. I finished chemo in june just 5 months ago but i still have...
hey amber, i'm autumn im 21 and a survivor of ppnet. wich is in the ewings family . pretty much the same thing. same treatments ect. ive been in remisson for a...
autumn_18_78605 <no_reply@yahoogroups.com> wrote: hey amber, i'm autumn im 21 and a survivor of ppnet. wich is in the ewings family . pretty much the...
Hey Gabe, Welcome to the site. I am 20 years old and had ewings. If you would like to talk to me I would be more than happy to. Also if you would like to...
Garret, Hi welcome to the list. I also had ewings located in my pelvis. I am glad you are feeling better. If you have any questions feel free to ask me....
Hey Amber, Welcome to the list. Congrats on being done with treatment. I have been of treatment for about a year and half and I have check ups every month....
... what you experienced when you had ewings. Did you have to have surgery also? If so, how did your recovery go? My whole experience so far has been unreal....
Hello everyone, My sister was diagnosed with a primitive neuroectdermal tumor/ewings sarcoma shortly before Christmas. I have been in shock ever since. I keep...
Dear fellows my 27 year old brother was diagoinsed with ewings sarcoma in june 2002 in pelvis. Sunsequent bone scan showed a shadow in left arm humerous which...
Kayce, Thanks for your information, it's really appreciated. I'll be checking out the websites you gave me over the weekend. I hope all is well with you and...
... 2002 found out that i had ewings also in my pelvis. As of this coming weekend this will be my 10 chemo treatment. Also, in september i had hemipelvectomy ...
hi I am 25years old and my soon to be step daughter who is 10 has ewings first it was in her leg to where they had to amputate her leg then a little while ago...
Hi everyone! I'm new to this group. I have been remission for Ewing's since June, 2001 and am doing ok. I have lots of late effects stuff that totally stinks...
... kid but i do have ewings in my pelvic. I'm currently going through chemo, i'm almost done with it. I have 4 more treatments and probably will start...
Visitors to this Group might like to be aware - if they haven't discovered it already - that there is another Group on Ewing's Sarcoma. It is called ...
I am new, my boyfriend of 5 years had just finished with ewing's in his pelvis through chemo and surgery. It has been an unbelievable long year with...
... hello, i also had ewings in my pelvis. i am 5 years out from surgery. once cancer spreads, it doesn't matter if it's ewings or another type, it's going to...