Hello all! My name is Kaye and I was diagnosed with Ewings in December 2005. (nice holiday present huh?) It was the size of a small orange in my lower leg, but...
Hi, Kaye. I'm Lexi and I had Ewings at age 5...I'm now almost 15. My mom is part of an online support group for parents or patients themselves-children and...
Kaye, you are very brave to be on here. My husband did not want to do any of this support stuff so I did it for us. A great group is www.acor.org for ewings...
Hi, My name is Bobby Silberman and I am 24 years old, diagnosed with metastasized Ewings Sarcoma on March 22nd of this year. I am getting chemotherapy every...
I would get on the www.acor.org group as well. They are wonderful and talk much more frequently than this one. I lost my husband to this disease, but still...
In order to join the ACOR.org list, go to this URL. Click the "join or leave the list" link. In order to keep spammers from sending mail directly to the...
Hi, Bobby, welcome to the list. I'm sorry to say that you were dx the day after my 19-year old stepson Bradley passed away of ES. He had a recurrence during...
Melissa & Elizabeth, Thank you so much for your responses. I will definitely check out acor.org and will pursue as many opionions as I can concerning the BMT....
Hi. I'm a 40 year old male that just had a 2cm tumor removed from my right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI and PET scan show no...
Does anyone else get frustrated when they see all of the publicity for breast cancer or am i alone? I get so frustrated because i feel that they shouldn't just...
Obviously every situation is different. The usual treatment for Ewings is alternating treatments of different types of chemo. My wife had extreme nausea during...
I understand your frustration. I firmly give to St. Jude Children's hospital because I know they are doing continual research on this disease as well as ...
Yes you can beat this, but you have to hit it hard at the beginning. It is very time consuming. I would not say you could have a full time job, but my...
Hey Scott, I am a 36 year old who was diagnosed with Ewings Scarcoma in 2004, I beat it, however my treatment consisted of 3 and 4 day cycles of chemotherapy...
Hi, I had a 2 cm extraskeletal ewing sarcoma removed from cheek 1 month ago. A PET scan 20 days ago was clean and i begin chemo in 3 days to try and keep it...
I would just consult your oncologist immediately. Thats what they are there for. I was paranoid too about every little ache and pain I had, and went to my ...
Right, tell your onc. Tell your onc everything about any new physical symptoms that come up from this day forward. You never know what they'll think is...
Just got done with a visit to the onc and the ortho...I have one more cycle (week) of chemo and I am DONE!!!! I got extremely neutropenic this last week, so...
Hello, I am a student in psychology at The Ohio State University studying under Professor Barbara L. Andersen. I would very much appreciate your help! As...
Hello there all I am a mom with a 7 year old girl that has ewing sarcoma in the spine. She was diagnosed with it in Febuary of this year. This has been a hard...
Dear Amie, Boy does this sound familiar. If you would ever like to talk email me at jazzmbm@.... My daughter was eight when she was dianosed. We were the...
Interesting Article on the side affects and Diagnosing of Mesothelioma. Surviving Mesothelioma, what you can do . Diagnosing mesothelioma is often difficult,...
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THIS INFORMATION COULD SAVE YOUR LIFE ... any Cancer. DISCOVER OVER 350 GENTLE & NON-TOXIC CANCER TREATMENTS THAT NO-ONE ELSE WILL TELL YOU ABOUT! Your doctor...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are suffering...
Hi, My name is Olga. And I'm 28 years old. I'm diagnosed with Ewing's cancer just 2 days ago. Of course I'm shoked, and what I know that I'll have chemo,...
hello, Kaye! How are you? My name is Olga. I was diagnosed with Ewings two days ago!:(( and it's also in the lower leg area, and be honest with you I even...
OK i was catching up on some of the posts in here and there was one (can't remember who from) that was talking a little bit about constipation and how that can...
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