Is anyone familiar with Ewings clusters? My little brother was diagnosed with Ewings as were 2 others in their mid-upper 20s that all worked within 10 feet of...
Mine came back after 15 years, which doctors are now seeing a little more. They theorize it was because my original radiation doseage was too much. My my ...
This is randi's husband Jason. My wife wanted me to read what you had to say. I went through 8 total months of chemo and 26 rounds of radiation. each round of...
Hi there, I think we all live with the fear of relapse. I am the mother of a little girl diagnosed at age 8, we are now 12. She will be followed until age 18....
Yeah, I experienced a little of the same thing, but I think mine was due to the fact that my tumor was in my spinal cord, and the five surgeries I had...
HiALL. I have started a site http://www.outofstress.com which describes all aspects of stress and relief.This is the place where everyone relaxes and find...
Hello all! My name is Kaye and I was diagnosed with Ewings in December 2005. (nice holiday present huh?) It was the size of a small orange in my lower leg, but...
Hi, Kaye. I'm Lexi and I had Ewings at age 5...I'm now almost 15. My mom is part of an online support group for parents or patients themselves-children and...
Kaye, you are very brave to be on here. My husband did not want to do any of this support stuff so I did it for us. A great group is www.acor.org for ewings...
Hi, My name is Bobby Silberman and I am 24 years old, diagnosed with metastasized Ewings Sarcoma on March 22nd of this year. I am getting chemotherapy every...
I would get on the www.acor.org group as well. They are wonderful and talk much more frequently than this one. I lost my husband to this disease, but still...
In order to join the ACOR.org list, go to this URL. Click the "join or leave the list" link. In order to keep spammers from sending mail directly to the...
Hi, Bobby, welcome to the list. I'm sorry to say that you were dx the day after my 19-year old stepson Bradley passed away of ES. He had a recurrence during...
Melissa & Elizabeth, Thank you so much for your responses. I will definitely check out acor.org and will pursue as many opionions as I can concerning the BMT....
Hi. I'm a 40 year old male that just had a 2cm tumor removed from my right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI and PET scan show no...
Does anyone else get frustrated when they see all of the publicity for breast cancer or am i alone? I get so frustrated because i feel that they shouldn't just...
Obviously every situation is different. The usual treatment for Ewings is alternating treatments of different types of chemo. My wife had extreme nausea during...
I understand your frustration. I firmly give to St. Jude Children's hospital because I know they are doing continual research on this disease as well as ...
Yes you can beat this, but you have to hit it hard at the beginning. It is very time consuming. I would not say you could have a full time job, but my...
Hey Scott, I am a 36 year old who was diagnosed with Ewings Scarcoma in 2004, I beat it, however my treatment consisted of 3 and 4 day cycles of chemotherapy...
Hi, I had a 2 cm extraskeletal ewing sarcoma removed from cheek 1 month ago. A PET scan 20 days ago was clean and i begin chemo in 3 days to try and keep it...
I would just consult your oncologist immediately. Thats what they are there for. I was paranoid too about every little ache and pain I had, and went to my ...
Right, tell your onc. Tell your onc everything about any new physical symptoms that come up from this day forward. You never know what they'll think is...
Just got done with a visit to the onc and the ortho...I have one more cycle (week) of chemo and I am DONE!!!! I got extremely neutropenic this last week, so...
Hello, I am a student in psychology at The Ohio State University studying under Professor Barbara L. Andersen. I would very much appreciate your help! As...
Hello there all I am a mom with a 7 year old girl that has ewing sarcoma in the spine. She was diagnosed with it in Febuary of this year. This has been a hard...
Dear Amie, Boy does this sound familiar. If you would ever like to talk email me at jazzmbm@.... My daughter was eight when she was dianosed. We were the...
Interesting Article on the side affects and Diagnosing of Mesothelioma. Surviving Mesothelioma, what you can do . Diagnosing mesothelioma is often difficult,...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
