hi all
    I have started a site   http://www.outofstress.com
which  deals all aspects of stress and relief.This is a place for
everyone to get relax.Our stress expert darla dawald shows a right
path to turn depression  to astonishment.If any of you have stories or
tips to share or any stress depression,anxiety doubts feel free to
post  webmaster@... site covers a junk traffic of
7000/month.You can get a good publicity

bye......kamal and mak  ....webmaster


STRESS ARTICLE
http://www.outofstress.com/stress-stories/darla-stress-story2.php
http://www.outofstress.com/dealing-with-depressed-person.php
http://www.outofstress.com/stress-stories/anxiety-panic-disorders-cure.php

This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis,
Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie,
Pavarotti, Giorgio Armani, Donors, Peace, History, Campaigns and about you if
you care about these words.

Hi there,

I am SAM, an Iraqi refugee living in Lebanon at the moment; I have spent the
last 10 years of my life as a refugee registered with the UNHCR in Beirut. The
last 4 years, I have spent as an activist for peace and human rights (especially
refugees and asylum seekers) on the Internet; I'm also books author and ebooks
publisher. I have launched many campaigns to improve our situation as refugees
in Lebanon and hopefully bring more understanding to our problems worldwide. I
helped make many changes and improvements at the UNHCR office in Beirut; I used
the Internet as the field for my activities (you can read more about that in my
free ebook 'MY CAMPAIGNS'). All my ebooks are free and could be download from my
sites.

This is my newest campaign, it's about the illegal and humiliating actions of
the UNHCR, who using photos of refugees as banners and human-buttons to collect
money. This is an abuse of the dignity and humanity of the refugees and must
stop immediately and a clear public apology present by The United Nations High
Commissioner for Refugees. My friends, I am talking about the pictures you can
see here:
http://k.domaindlx.com/unhcr4

Where you can read the rest of this message as web page.

Also you can read my new campaign 'Urgent, we need smile' here:
http://free.hostdepartment.com/u/unhcrlebanon


For more info about UNHCR and life of refugees you can read my free ebooks. I
invite you as fellow humans and members of the world community to support my
campaign by reading my article on my site and see the human-buttons. The
campaign is to support and improve the UNHCR http://www.unhcr.ch especially
after the last scandals in the UN and UNHCR, just for example:

The refugees allege that UNHCR staff is selling most of the food items they are
supposed to be supplied.
"They aren't supplying sufficient food to us because they sell most of the food
items," they allege: http://allafrica.com/stories/200503140214.html
  Here is another example: Burmese Refugees Withdraw Protest Against UNHCR 
http://www.mizzima.com/archives/news-in-2005/news-in-april/12-April05-22.htm

"We make demonstration and fast because the UNHCR office in Cairo did nothing
for our problem..." http://news.bbc.co.uk/2/hi/africa/4440730.stm

Together we will build better world.

You could reach me fast via this form:
http://members.fortunecity.co.uk/unhcrlebanon/email_me.htm
  and if you like to know more about me, you can google for my name 'osam
altaee'.

Thanks
THE TRUTH WARRIOR
http://www.xmail.net/read

Our son, Joshua, was diagnosed with Ewings sarcoma in Oct. 04. He
was 4 years old. He followed the National Ewings protocol...14
rounds of chemo, 31 days of radiation. The tumor was inoperable.
It was in his c-6 neck vertebra. We opted for proton radiation in
LLUMC (Loma Linda University Medical Center) in CA. The tumor was
gone after 3-4 rounds of chemo, but his c-6 vertebra was near
collapse. At this time, it has been determined that his neck is
stable and he does not need fusion surgery. However, his neck is
closly monitored by 2 specialists.

He's had 2 complications, which started just 6 months post proton
radiation.
1: an esophagel web or stricture which has kept him from being able
to swallow/eat. he's been fed through an ng tube since March 05.
After numerous esophageal dilation procedures (stretching) his
esophagus is now open to approx. 10-11 mm. He has just started
swallowing therapy and is now able to drink liquids. However, it
appears from the swallowing study that the parastolic (spelling?)
function of the esophagus is impaired at this time. Hopefully, it
will improve.

2: Josh's trachea began to swell shut and he had to have a temporary
tracheostomy in Sept. 05. At this time the swelling has become hard
fibrous scar tissue. The airway opening is now the size of a
newborn's airway. The ENT wants to do a surgery called a "cricoid
split" in order to open his trachea and hopefully allow the
tracheostomy to be removed, so he can breath normally again.

So, my question is...Has anyone else dealt with similar problems due
to proton radiation?

Has anyone else chosen proton radiation over photon radiation and
what were the results?

Has anyone else had or known of a child who had a Ewings sarcoma
tumor in the neck vertebra?

Kyle said something about recurrance happening due to too much
radiation...is there a study on that? How much is too much
radiation? Are they speaking of proton or photon radiation?

Thanks,
Joshie's mom,
april




---------------------------------

  What are the most popular cars?  Find out at Yahoo! Autos

[Non-text portions of this message have been removed]

Hi.  I'm a new member to this group.  I've never done a Yahoo group
before, so bare with me...

Our son, Joshua, was diagnosed with Ewings sarcoma in Oct. 04.  He
was 4 years old.  He followed the National Ewings protocol...14
rounds of chemo, 31 days of radiation.  The tumor was inoperable.
It was in his c-6 neck vertebra.  We opted for proton radiation in
LLUMC (Loma Linda University Medical Center) in CA.  The tumor was
gone after 3-4 rounds of chemo, but his c-6 vertebra was near
collapse.  At this time, it has been determined that his neck is
stable and he does not need fusion surgery.  However, his neck is
closly monitored by 2 specialists.

He's had 2 complications, which started just 6 months post proton
radiation.
1: an esophagel web or stricture which has kept him from being able
to swallow/eat.  he's been fed through an ng tube since March 05.
After numerous esophageal dilation procedures (stretching) his
esophagus is now open to approx. 10-11 mm.  He has just started
swallowing therapy and is now able to drink liquids.  However, it
appears from the swallowing study that the parastolic (spelling?)
function of the esophagus is impaired at this time.  Hopefully, it
will improve.

2: Josh's trachea began to swell shut and he had to have a temporary
tracheostomy in Sept. 05.  At this time the swelling has become hard
fibrous scar tissue.  The airway opening is now the size of a
newborn's airway.  The ENT wants to do a surgery called a "cricoid
split" in order to open his trachea and hopefully allow the
tracheostomy to be removed, so he can breath normally again.

So, my question is...Has anyone else dealt with similar problems due
to proton radiation?

Has anyone else chosen proton radiation over photon radiation and
what were the results?

Has anyone else had or known of a child who had a Ewings sarcoma
tumor in the neck vertebra?

Kyle said something about recurrance happening due to too much
radiation...is there a study on that?  How much is too much
radiation?  Are they speaking of proton or photon radiation?

Thanks,
Joshie's mom,
april

Newsletter - Mid-December Issue, 2005

   In December's issue we are going to profile a company involved in the Red Hot
homeland security sector.  This company's st0ck is very much undervalued
considering the potential of the industry and the position of the company.

This small treasure is: VNBL (Vinoble, Inc.)

Stock Symbol: VNBL.OB

   The stock is trading at only O.O4 - O.05
cents and we expect it could hit $0.10 -
$0.14 by early January.

   Huge PR campaign expected this week so grab as much as you can up to $0.10
range. We all know it's the big announcements that make these small gems move.


About the company:

   Vinoble, Inc. is a holding company, which is identifying and acquiring
operational business opportunities in the areas of homeland security, security
information systems, and other security services to provide long term growth for
its shareholders. Vinoble believes that the opportunity to build a successful
business in the security sector is unprecedented.

   The terror attacks on the United States on September 11, 20O1 have changed the
security landscape for the foreseeable future. Both physical and logical
security, have become paramount for all industry segments, specially in the
banking, healthcare and government sectors. While the focus for Vinoble is on
North America, the opportunity for security services is worldwide. According to
Giga, a wholly owned subsidiary of Forrester Research, worldwide demand for
information security products and services is set to eclipse $46B this year.

Why we believe VNBL will give big returns on investment:

* At this time much of VNBL's focus is on RFID (Radio frequency identification)
technology and it's uses in the oil and gas industry.  This is technology which
uses tiny sensors to transmit information about a person or object wirelessly.

* VNBL is developing a form of RFID technology which allows companies and
governments to wirelessly track their assets and resources. Such technology has
huge potential in the protection and transportation of materials designated
"High Risk" were they to fall into the wrong hands.

* VNBL works on integration of the two afore mentioned systems in order to
create "High Security Space" in locales where it is deemed necessary.  Locations
which may take advantage of such systems are airports, sea ports, mines, oil
facilities, and more.

* At this time VNBL is executing a plan which involves making strategic
acquisitions of properties and businesses which will allow the company to more
fully test their technology as well as add to shareholder value.


***N E W S***

9/6 Vinoble to Enter the Oil and Gas Sector

9/9 Vinoble Agrees to Acquire and Interest in an Oil and Gas Prospect

10/13 Vinoble Finalizes Asset Acquisition

11/17 Vinoble Finalizes Second Asset Acquisition


Latest News:

MALIBU, Calif.--(BUSINESS WIRE)--Dec. 9, 2005--
Vinoble, Inc. (OTCBB:VNBL - News), announced today its intention to narrow its
focus in the resource sector. As evidenced by recent acquisition activity, the
Company views asset acquisitions and investments in resources such as gold, oil,
and natural gas as timely and prudent.

While oil prices remain above $60, natural gas at record highs at $15 per
million Btu's, and gold reaching a 24 year high at over $534 per ounce, the
Company is excited about focusing its efforts in these strong markets where
demand is high and additional supply is necessary to satisfy the demand. In
addition to the recently announced acquisitions, Company management over the
last few months has met with and been in negotiations over several additional
acquisition and investment candidates in both the gold and oil and gas
industries. Upon agreeing to terms and reaching definitive agreements, Vinoble
will announce those as they become available.

Vinoble continues to seek other opportunities to add value to its property
holdings through acquisition. Vinoble believes that these additional assets will
provide the Company and its shareholders a much-improved increase in shareholder
value. Further, the Company will be filing the required forms and exhibits with
the SEC and sending notice to shareholders within the next weeks. Terms and
conditions of the transactions will also be provided in the aforementioned
notices.


   We believe that this is great news for VNBL. Just at the time when more
domestic oil operations are starting up, VNBL comes in with a great product and
solid acquisitions.

Go VNBL!!!


Please watch this one trade all week!

D1scla1mer Below:


Information within this email contains "forward looking statements" within the
meaning of Section 27A of the Securities Act of 1933 and Section 21B of the
Securities Exchange Act of 1934. Any statements that express or involve
discussions with respect to predictions, goals, expectations, beliefs, plans,
projections, objectives, assumptions or future events or performance are not
statements of historical fact and may be "forward looking statements." Forward
looking statements are based on expectations, estimates and projections at the
time the statements are made that involve a number of risks and uncertainties
which could cause actual results or events to differ materially from those
presently anticipated. Forward looking statements in this action may be
identified through the use of words such as: "projects", "foresee", "expects",
"estimates," "believes," "understands" "will," "part of: "anticipates," or that
by statements indicating certain actions "may," "could," or "might" occur. All
information provided within this email pertaining to investing, stocks,
securities must be understood as information provided and not investment advice.
We advise all readers and subscribers to seek advice from a registered
professional securities representative before deciding to trade in stocks
featured within this email. None of the material within this report shall be
construed as any kind of investment advice. Please have in mind that the
interpretation of the writer of this newsletter about the news published by the
company does not represent the company official statement and in fact may differ
from the real meaning of what the news release meant to say.  Look at the news
release by yourself and judge by yourself about the details in it.




[Non-text portions of this message have been removed]

>>>I was told that they are seeing relapses in
> the disease due to excessive radiation treatment.

Kyle, thanks for posting.  What kind of radiation did you have, and
when in the treatment was it given?  My stepson is getting ready to
start radiation in a couple of weeks.  He's had 5 rounds of chemo, with
9 to go.  It'll be both lungs and the site of the original tumor in his
rib/chest wall, what they call the tumor bed.  10 days of radiation for
lung + rib area, then 15 more of just the tumor bed.  Does that sound
like a lot?
- Elizabeth

I was diagnosed with Ewings in 1987, and again in 2001.  I am 35, and
in remission once again.  I was told that they are seeing relapses in
the disease due to excessive radiation treatment.  Hopefully this last
time will be the last time I have a port in my chest, and go through
all the bodily changes that occur with treatment.  My tumor is in my
spinal cord, and this time around, I lost the ability to walk for six
months.  Shows how my ability to bounce back has diminished since I
was 16. If anyone has any questions, let me know!

Christine,
Sorry to get back to you so late.

There is a Pilot Study about to open at the University of Michigan.  It is
for relapse/recurrent sarcoma patients.  It is a vaccine study.  The vaccine has
been deveoped to increase the quality and quantity of antigens used to form
the T-cells.  Some details of the study are available at
www.brianmordenfoundation.org

But here is the name of hte doctor.  You can call him directly

James D. Geiger, MD
University of Michigan
Ann Arbor, Michigan

734/764-4151

I don't know if your friend would qualify for the study, but they might know
of another study that might be helpful.  There is a great deal of research
being done at this university.

If you need additional information.  you can reach me at email:
f.morden@...

Fred Morden

Christine, I 2nd Melissa's recommendation that you join the ACOR Ewings
Sarcoma list.  It's at http://listserv.acor.org/archives/e-
sarcoma.html  There's at least one active member in Denmark, as well as
other Europeans, who might be able to offer local recommendations.
- Elizabeth

Christine, I would go to www.acor.org and join the ewings group there.  I can't
believe you guys have gone through so much.  I recently lost my husband to this.
He had it and then relapsed.  We got married anyway and he passed this past Feb.
Good luck and you guys are in my prayers.  Melissa

christine_conrad_denmark <christine_conrad_denmark@...> wrote:Hallo
everybody!
My boyfriend was first diagnosed with ewings 9 years ago.He has since
then been diagnosed with the disease 5 times, 3times in the right
scapula/lung and 2times in the right side of the neck.He has had
surgery several times, radiation and chemotherapy.Last he was
diagnosed, was in dec. 2004 and he has recieved chemo since jan. 2005.
At last months checkup we recived the news that the tumor still
continues to grow, and that the doctors here in Denmark no longer has
any options regarding treatment.The tumor is growing towards the nervs
and his right arm is partually paralised.Does anyone know any other
treatments??Or something alternative??It does not mather were in the
world,we are willing to go everywere.
Thank you...
Christine





SPONSORED LINKS
Ewings sarcoma

---------------------------------
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     Visit your group "ewingssarcoma" on the web.

     To unsubscribe from this group, send an email to:
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---------------------------------




__________________________________________________
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Tired of spam?  Yahoo! Mail has the best spam protection around
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[Non-text portions of this message have been removed]

Hallo everybody!
My boyfriend was first diagnosed with ewings 9 years ago.He has since
then been diagnosed with the disease 5 times, 3times in the right
scapula/lung and 2times in the right side of the neck.He has had
surgery several times, radiation and chemotherapy.Last he was
diagnosed, was in dec. 2004 and he has recieved chemo since jan. 2005.
At last months checkup we recived the news that the tumor still
continues to grow, and that the doctors here in Denmark no longer has
any options regarding treatment.The tumor is growing towards the nervs
and his right arm is partually paralised.Does anyone know any other
treatments??Or something alternative??It does not mather were in the
world,we are willing to go everywere.
Thank you...
Christine

Unfortunately, the clinical trial is only open for patients with
newly diagnosed ES, who haven't had any treatment, and you have to go
to Houston for it.  We didn't find out about it until after Bradley
had started chemo and we live in MD.  Even if we'd known about it, we
knew squat about clinical trials (way back in May, seems like a long
time ago!) and might have turned it down because we didn't want him
used as a guinea pig.  That's the root of the reason the drug ImmTher
isn't being produced anymore - not enough patients in the clinical
trial for the Doc to publish statistically correct findings, which
would eventually give the drug manufacturer a basis to get all the
approvals it needs to produce more for sale/distribution to patients
as a standard treatment option.  So the drug company isn't making any
more, no profit to be seen in the near or distant future.  No $$$, no
ImmTher. That's why the Lance Armstrong foundation is so big on
promoting an understanding of clinical trials, because most people
are like us, and expect to simply to a good doctor and be given the
right medicines, never mind the experiments! - Elizabeth

<virginia_faulk71635@y...> wrote:
>
> Elizabeth  just wanted  to  say  go  for    it  all it  will be
worth it.....
>
> -Elizabeth (step-mom to Bradley, 18, dx 5/27/05 ES/PNET in rib,
left
> lung and chest wall (askin's tumor))
>
>
>
>
> SPONSORED LINKS
> Ewings sarcoma
>
> ---------------------------------
> YAHOO! GROUPS LINKS
>
>
>     Visit your group "ewingssarcoma" on the web.
>
>     To unsubscribe from this group, send an email to:
>  ewingssarcoma-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
>  Yahoo! FareChase - Search multiple travel sites in one click.
>
> [Non-text portions of this message have been removed]
>

Elizabeth  just wanted  to  say  go  for    it  all it  will be  worth it.....

Elizabeth <egr2058@...> wrote:The ImmTher Clinical Trial is offered at MD
Anderson in Houston Texas.
It is No. ID97-198, administered by Dr. Kleinerman.
http://utm-
ext01a.mdacc.tmc.edu/dept/prot/clinicaltrialswp.nsf/Index/ID97-198

-Elizabeth (step-mom to Bradley, 18, dx 5/27/05 ES/PNET in rib, left
lung and chest wall (askin's tumor))




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Ewings sarcoma

---------------------------------
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     Visit your group "ewingssarcoma" on the web.

     To unsubscribe from this group, send an email to:
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---------------------------------





---------------------------------
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[Non-text portions of this message have been removed]

The ImmTher Clinical Trial is offered at MD Anderson in Houston Texas.
It is No. ID97-198, administered by Dr. Kleinerman.
http://utm-
ext01a.mdacc.tmc.edu/dept/prot/clinicaltrialswp.nsf/Index/ID97-198

-Elizabeth (step-mom to Bradley, 18, dx 5/27/05 ES/PNET in rib, left
lung and chest wall (askin's tumor))

i would definitely consult a new doctor. unless  they
have told you everything that elizabeth has said and
then some, you are not being told the truth. my wife
would get 5 day treatment followed by a week or two of
vomiting, hair loss, and weakness. sometimes sores
from her mouth all the way down the GI tract to her
rectum. then she would get ready for the 3 day
treatment whi ch took more out of her body than the 5
day treatment cycle. you really need to prepare
yourself. My wife was eligible for SS Disability.
yours will too. I recently received my license in NY
to sell Life, Health and accident i nsurance
including disability so i had to study the SS system
as well. if your wife's condition will keep her from
working for more than 12 months she will be able to
receive benefits. you may also qualify for state
benefits until the SS benefits kick in. also county
programs are available in every county in the country.
i know that california has to have something that you
can take advantage ofuntil you begin to receive SS.
Also, did they explain to you that your wife will
probably be left sterile because of the chemo? mine
was and we adopted a little boy who is just the joy of
my life. seeing him reminds me of her every day!

--- Elizabeth <egr2058@...> wrote:

> > The doctor did tell her that she
> > should take time off from work but her job does
> not allow it.
>
> Your wife's doctors are correct that she's going to
> need some time
> off work.  I hate to seem harsh and don't want to be
> an alarmist, but
> you should really start looking into other options
> for financial help
> and support in the event your wife isn't able to
> continue working
> during treatment.  www.cureourchildren.org has links
> to resources for
> financial support, or your cancer care center may
> have counsellors
> who can help you find local resources.  We did
> Bradley's chemo as
> outpatient, but he still had to go to the infusion
> center every day
> for 5 days, and for 4 of those days he was there for
> 5 hours.  He
> carried home a "backpack" with saline IV bag, chemo
> chemical bag, and
> 2 digital pumps provided by ahome support agency,
> Medstar.  The
> saline bag had to be changed every 24 hours, which
> we had to do
> ourselves.  The pattern was: a week of chemo,
> followed by a week in
> which counts drop (please tell me they explained the
> impact of low
> WBC, RBC and platelets - if not, ASK NOW!) when the
> patient is
> vulnerable for infection, anemia and poor blood
> clotting ability.  I
> gather your wife works at a school; we were told
> Bradley should limit
> exposure to young childred during this week as they
> are prime
> carriers of bacteria.  The cycle repeats every 21
> days, counting from
> the first day of chemo.  He wasn't too uncomfortable
> for the first 2
> rounds, but had problems with side effects starting
> rounds 3 and 4
> which required hospitalization.  There's no way he
> could have even
> kept his job at the deli counter of the grocery
> store during all
> this.  Many people who have experience with more
> common cancers may
> not realize that the chemo for ES is far more
> aggressive; it's on a
> par with treatment for leukemia, and strips the body
> of it's ability
> to protect itself from common germs.  Not to
> minimize the pain of
> people with other cancers, but we found (from
> talking to others and
> observation at the infusion center and hospital)
> that the ES
> treatment is both more time consuming, has more
> severe side effects
> and requires more caution, than any of them had
> experienced.  This is
> all to say that this isn't the time for heroics,
> it's time to put
> other plans on hold and focus on doing this thing
> right the first
> time so that she'll have a long and full future.
> I'm so sorry you
> both have to deal with this; it's no fun.
> - Elizabeth (step-mom to Bradley, 18, dx 5/27/05
> ES/PNET in rib, left
> lung and chest wall (askin's tumor))
>
>
>
>




__________________________________
Yahoo! Mail - PC Magazine Editors' Choice 2005
http://mail.yahoo.com

I have never heard of simply radiation unless it is
strictly paliative care meaning that it is just for
pain management and not for curative measures. my
first wife went to Mass General Hospital to a doctor
named David Harmon. he was simply the best and
wouldn't take any chances. i wouldn't go strictly with
radiation. the good part about radiation with Ewings
however is that it is very sensitive to radiation
therapy.

--- hello_from_montebello
<hello_from_montebello@...> wrote:

> My recently finished her radiation treatment for
> Ewing. We are still
> waiting for the results. Is it common to just give
> radiation therapy
> without chemotherapy. Her leg and body still hurts
> and the last
> reatment was 3 weeks ago. Please help both of us
> with any information
> as to the treatment. Oh yes, the cancer is in her
> thigh.
>
>
>
>




__________________________________
Yahoo! Mail - PC Magazine Editors' Choice 2005
http://mail.yahoo.com

> The doctor did tell her that she
> should take time off from work but her job does not allow it.

Your wife's doctors are correct that she's going to need some time
off work.  I hate to seem harsh and don't want to be an alarmist, but
you should really start looking into other options for financial help
and support in the event your wife isn't able to continue working
during treatment.  www.cureourchildren.org has links to resources for
financial support, or your cancer care center may have counsellors
who can help you find local resources.  We did Bradley's chemo as
outpatient, but he still had to go to the infusion center every day
for 5 days, and for 4 of those days he was there for 5 hours.  He
carried home a "backpack" with saline IV bag, chemo chemical bag, and
2 digital pumps provided by ahome support agency, Medstar.  The
saline bag had to be changed every 24 hours, which we had to do
ourselves.  The pattern was: a week of chemo, followed by a week in
which counts drop (please tell me they explained the impact of low
WBC, RBC and platelets - if not, ASK NOW!) when the patient is
vulnerable for infection, anemia and poor blood clotting ability.  I
gather your wife works at a school; we were told Bradley should limit
exposure to young childred during this week as they are prime
carriers of bacteria.  The cycle repeats every 21 days, counting from
the first day of chemo.  He wasn't too uncomfortable for the first 2
rounds, but had problems with side effects starting rounds 3 and 4
which required hospitalization.  There's no way he could have even
kept his job at the deli counter of the grocery store during all
this.  Many people who have experience with more common cancers may
not realize that the chemo for ES is far more aggressive; it's on a
par with treatment for leukemia, and strips the body of it's ability
to protect itself from common germs.  Not to minimize the pain of
people with other cancers, but we found (from talking to others and
observation at the infusion center and hospital) that the ES
treatment is both more time consuming, has more severe side effects
and requires more caution, than any of them had experienced.  This is
all to say that this isn't the time for heroics, it's time to put
other plans on hold and focus on doing this thing right the first
time so that she'll have a long and full future.  I'm so sorry you
both have to deal with this; it's no fun.
- Elizabeth (step-mom to Bradley, 18, dx 5/27/05 ES/PNET in rib, left
lung and chest wall (askin's tumor))

I am confused.  I do not see how the treatment if you are getting the right one
can be done after work?  It is usually in hospital for 5 days alternating 3 days
every 2 weeks at the least???  I just want to make sure you are getting the
right treatment.

hello_from_montebello <hello_from_montebello@...> wrote:Thank you all for
your responses. My wife did have her appointment
this past Tuesday. We were informed that the cancer is smaller but
still there. Her chemotherapy treatment will begin shortly. Thank all
of you for your words and prayers. The doctor did tell her that she
should take time off from work but her job does not allow it. The
private school does not put into state disability nor Calif state
unemolyment. As you all know, it's hard on all of us. So the rest she
will receive will be after work and on weekends. I do wish to thank
all of you. My thoughts and prayers are with all of you.




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Thank you all for your responses. My wife did have her appointment
this past Tuesday. We were informed that the cancer is smaller but
still there. Her chemotherapy treatment will begin shortly. Thank all
of you for your words and prayers. The doctor did tell her that she
should take time off from work but her job does not allow it. The
private school does not put into state disability nor Calif state
unemolyment. As you all know, it's hard on all of us. So the rest she
will receive will be after work and on weekends. I do wish to thank
all of you. My thoughts and prayers are with all of you.

a DEFINITE agreement here.  My mom is a member and there are so many wonderful
people that are there just to talk, or to help.

fmorden@... wrote:Absolutely YES      The www.acor.org  Esarc list is
fantastic for having a
nice group of Ewing's people, AND their connection with research is extensive.
Just introduce yourself and you'll see what we mean.


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Absolutely YES      The www.acor.org  Esarc list is fantastic for having a
nice group of Ewing's people, AND their connection with research is extensive.
Just introduce yourself and you'll see what we mean.

Refinance your home now, take 30 seconds and fill out this free form.

http://fastreficdkcik.hotfire.net/


[Non-text portions of this message have been removed]

You need to get to a specialist quick.  You only have one chance to beat this
and YES it does involve extensive chemotherapy.  I would go to www.acor.org and
sign in with the Esarcoma group.  There is a great group with extensive
knowledge on this.  I recently lost my husband to this disease, however, many
have gone into remission, but you have to hit it hard and fast.  Melissa

Sharon Kory <sharonlkory@...> wrote:Hi. My son was 18 years old when he
was diagnosed with ewings. He had a tumor on his spine. He had surgery, chemo
and radiation. Through much research, we learned that these things combined help
the prognosis significantly. He is now 23 and is in remission.          Good
luck and God Bless.

Sharon

shawny christopher <blshoflich@...> wrote:
hi my name is shawn I also have ewings when I was diagnosed I had several tumors
but did alot of research.  the prognosis rate increases alot when chemo is used
with radiation and surgery. that is if there is only one tumor.  I can answer
any questions you may have to the best of my abilities.  I am 24 and have been
recieving treatment for the last 3 years.  I have had chemo radiation and the
stem cell transplant.  feel free to email me at any time.  god bless you.
blshoflich@...


hello_from_montebello <hello_from_montebello@...> wrote:
My recently finished her radiation treatment for Ewing. We are still
waiting for the results. Is it common to just give radiation therapy
without chemotherapy. Her leg and body still hurts and the last
reatment was 3 weeks ago. Please help both of us with any information
as to the treatment. Oh yes, the cancer is in her thigh.





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Radiation is good to relieve pain in most cases.  The standard treatment for
Ewings is both chemotherapy and radiation treatments.  Radiation is effective
within the margins it radiates but micro cells can float throughout the body
and chemotherapy is required to help prevent the cancer from appearing in other
locations.

First of all, I am just a parent, not a medical professional.  When
my son was diagnosed, the research I did indicated that the best
chance for success came from chemo and surgical removal of the tumor.
Radiation was primarly used if the tumor couldn't be removed
completely.  I would ask why only radiation and not chemo and
surgery.  There may be a good reason, but from what little I know,
radiation only is not a very typical treatment.  Good luck.

--- In ewingssarcoma@yahoogroups.com, "hello_from_montebello"
<hello_from_montebello@y...> wrote:
> My recently finished her radiation treatment for Ewing. We are still
> waiting for the results. Is it common to just give radiation therapy
> without chemotherapy. Her leg and body still hurts and the last
> reatment was 3 weeks ago. Please help both of us with any
information
> as to the treatment. Oh yes, the cancer is in her thigh.

Hi. My son was 18 years old when he was diagnosed with ewings. He had a tumor on
his spine. He had surgery, chemo and radiation. Through much research, we
learned that these things combined help the prognosis significantly. He is now
23 and is in remission.          Good luck and God Bless.

Sharon

shawny christopher <blshoflich@...> wrote:
hi my name is shawn I also have ewings when I was diagnosed I had several tumors
but did alot of research.  the prognosis rate increases alot when chemo is used
with radiation and surgery. that is if there is only one tumor.  I can answer
any questions you may have to the best of my abilities.  I am 24 and have been
recieving treatment for the last 3 years.  I have had chemo radiation and the
stem cell transplant.  feel free to email me at any time.  god bless you.
blshoflich@...


hello_from_montebello <hello_from_montebello@...> wrote:
My recently finished her radiation treatment for Ewing. We are still
waiting for the results. Is it common to just give radiation therapy
without chemotherapy. Her leg and body still hurts and the last
reatment was 3 weeks ago. Please help both of us with any information
as to the treatment. Oh yes, the cancer is in her thigh.





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[Non-text portions of this message have been removed]

hi my name is shawn I also have ewings when I was diagnosed I had several tumors
but did alot of research.  the prognosis rate increases alot when chemo is used
with radiation and surgery. that is if there is only one tumor.  I can answer
any questions you may have to the best of my abilities.  I am 24 and have been
recieving treatment for the last 3 years.  I have had chemo radiation and the
stem cell transplant.  feel free to email me at any time.  god bless you.
blshoflich@...


hello_from_montebello <hello_from_montebello@...> wrote:
My recently finished her radiation treatment for Ewing. We are still
waiting for the results. Is it common to just give radiation therapy
without chemotherapy. Her leg and body still hurts and the last
reatment was 3 weeks ago. Please help both of us with any information
as to the treatment. Oh yes, the cancer is in her thigh.





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     To unsubscribe from this group, send an email to:
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I have also never heard of Ewings being treated with radiation
alone.  This site has a lot of information on treatment options,
clinical trials and support groups:
http://www.cureourchildren.org/
- Elizabeth

--- In ewingssarcoma@yahoogroups.com, marybeth adkins <jazzmbm@y...>
wrote:
> Hello,
> my daughter who was eight at the time received both
> radiation and chemotherapy. I have never heard of just
> radiation. Where are you receiving treatment. If this
> is a child, I suggest you go to the St. Jude
> Children's Research hosptial website and there is
> information there.
> Marybeth Adkins
>
> --- hello_from_montebello
> <hello_from_montebello@y...> wrote:
>
> > My recently finished her radiation treatment for
> > Ewing. We are still
> > waiting for the results. Is it common to just give
> > radiation therapy
> > without chemotherapy. Her leg and body still hurts
> > and the last
> > reatment was 3 weeks ago. Please help both of us
> > with any information
> > as to the treatment. Oh yes, the cancer is in her
> > thigh.
> >
> >
> >
> >
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com

Hello,
my daughter who was eight at the time received both
radiation and chemotherapy. I have never heard of just
radiation. Where are you receiving treatment. If this
is a child, I suggest you go to the St. Jude
Children's Research hosptial website and there is
information there.
Marybeth Adkins

--- hello_from_montebello
<hello_from_montebello@...> wrote:

> My recently finished her radiation treatment for
> Ewing. We are still
> waiting for the results. Is it common to just give
> radiation therapy
> without chemotherapy. Her leg and body still hurts
> and the last
> reatment was 3 weeks ago. Please help both of us
> with any information
> as to the treatment. Oh yes, the cancer is in her
> thigh.
>
>
>
>


__________________________________________________
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My recently finished her radiation treatment for Ewing. We are still
waiting for the results. Is it common to just give radiation therapy
without chemotherapy. Her leg and body still hurts and the last
reatment was 3 weeks ago. Please help both of us with any information
as to the treatment. Oh yes, the cancer is in her thigh.