Hallo everybody! My boyfriend was first diagnosed with ewings 9 years ago.He has since then been diagnosed with the disease 5 times, 3times in the right ...
Christine, I would go to www.acor.org and join the ewings group there. I can't believe you guys have gone through so much. I recently lost my husband to...
Christine, I 2nd Melissa's recommendation that you join the ACOR Ewings Sarcoma list. It's at http://listserv.acor.org/archives/e- sarcoma.html There's at...
Christine, Sorry to get back to you so late. There is a Pilot Study about to open at the University of Michigan. It is for relapse/recurrent sarcoma patients....
I was diagnosed with Ewings in 1987, and again in 2001. I am 35, and in remission once again. I was told that they are seeing relapses in the disease due to...
... Kyle, thanks for posting. What kind of radiation did you have, and when in the treatment was it given? My stepson is getting ready to start radiation in...
Newsletter - Mid-December Issue, 2005 In December's issue we are going to profile a company involved in the Red Hot homeland security sector. This company's...
ewingssarcoma@...
Dec 12, 2005 9:35 pm
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Hi. I'm a new member to this group. I've never done a Yahoo group before, so bare with me... Our son, Joshua, was diagnosed with Ewings sarcoma in Oct. 04....
Our son, Joshua, was diagnosed with Ewings sarcoma in Oct. 04. He was 4 years old. He followed the National Ewings protocol...14 rounds of chemo, 31 days of...
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
CFSGrowthHormoneInjec...
Feb 5, 2006 11:25 am
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hi all I have started a site http://www.outofstress.com which deals all aspects of stress and relief.This is a place for everyone to get relax.Our stress...
My husband was diagnosed in 2004 and did chemo and radiation all last year. i have to say that since i've read your post i'm soo worried about a relapse! how...
Randi My sons recurred with a lump ob his head where he had bumped heads with someone. He then got another in his eyesocket, they radiated both. It comes back...
Is anyone familiar with Ewings clusters? My little brother was diagnosed with Ewings as were 2 others in their mid-upper 20s that all worked within 10 feet of...
Mine came back after 15 years, which doctors are now seeing a little more. They theorize it was because my original radiation doseage was too much. My my ...
This is randi's husband Jason. My wife wanted me to read what you had to say. I went through 8 total months of chemo and 26 rounds of radiation. each round of...
Hi there, I think we all live with the fear of relapse. I am the mother of a little girl diagnosed at age 8, we are now 12. She will be followed until age 18....
Yeah, I experienced a little of the same thing, but I think mine was due to the fact that my tumor was in my spinal cord, and the five surgeries I had...
HiALL. I have started a site http://www.outofstress.com which describes all aspects of stress and relief.This is the place where everyone relaxes and find...
Hello all! My name is Kaye and I was diagnosed with Ewings in December 2005. (nice holiday present huh?) It was the size of a small orange in my lower leg, but...
Hi, Kaye. I'm Lexi and I had Ewings at age 5...I'm now almost 15. My mom is part of an online support group for parents or patients themselves-children and...
Kaye, you are very brave to be on here. My husband did not want to do any of this support stuff so I did it for us. A great group is www.acor.org for ewings...
Hi, My name is Bobby Silberman and I am 24 years old, diagnosed with metastasized Ewings Sarcoma on March 22nd of this year. I am getting chemotherapy every...
I would get on the www.acor.org group as well. They are wonderful and talk much more frequently than this one. I lost my husband to this disease, but still...
In order to join the ACOR.org list, go to this URL. Click the "join or leave the list" link. In order to keep spammers from sending mail directly to the...
Hi, Bobby, welcome to the list. I'm sorry to say that you were dx the day after my 19-year old stepson Bradley passed away of ES. He had a recurrence during...
Melissa & Elizabeth, Thank you so much for your responses. I will definitely check out acor.org and will pursue as many opionions as I can concerning the BMT....
Hi. I'm a 40 year old male that just had a 2cm tumor removed from my right cheek that pathology says is a soft tissue Ewing Sarcoma. MRI and PET scan show no...
Does anyone else get frustrated when they see all of the publicity for breast cancer or am i alone? I get so frustrated because i feel that they shouldn't just...
Obviously every situation is different. The usual treatment for Ewings is alternating treatments of different types of chemo. My wife had extreme nausea during...
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