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ewingssarcoma · Ewings Sarcoma - A place to talk about Ewings Sarcoma
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Messages 198 - 229 of 519   Oldest  |  < Older  |  Newer >  |  Newest
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198
Has anyone ever heard of a "hemipelvicectomy???" Any info would help!!...
Jennifer
jenjared12
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Jan 20, 2005
4:16 am
199
correctly: HEMIPELVECTOMY Links: http://www.amputee-online.com/teresam/hemip.html http://www.hphdhelp.org http://www.hphdhelp.org/HDHPO.pdf external...
bataljkica
Offline
Jan 20, 2005
10:18 am
200
i've have actually had this type of surgery to remove a tumor. need info on it you can email me back asking any questions you would like. garrett bataljkica...
garrett bass
garrettj32
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Jan 21, 2005
3:32 am
201
This is a very serious surgery with great detail involved. If this is for you or a child, let it be know that it will take atleast a year to recover. I spent...
garrettj32
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Jan 21, 2005
4:06 am
202
Hey everyone, my name is Paige and I was diagnosed with Ewings Sarcoma in 2000, I would love to talk to anyone who has been through treatment and compare...
paigegwu
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Feb 4, 2005
2:56 am
203
Hi, my name is Lexi and i was diagnosed in 1996. i would love to chat sometime. paigegwu <paigegwu@...> wrote: Hey everyone, my name is Paige and I was...
Lexi Chopp
smallchopp
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Feb 5, 2005
10:48 pm
204
Dear Paige, My daughter Caitlin was diagnosed in 2002 and is doing great. She did 48 weeks of chemo and 30 radiation treatments and had a tumor resection. She...
marybeth adkins
JAZZMBM
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Feb 6, 2005
2:01 am
205
Paige, My son Vinnie was diagnosed with Ewings Sarcoma in 2000. He had 10 months of Chemo and 3 months of radiation. He is now in remission and is doing very...
Sharon Kory
sharonlkory
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Feb 7, 2005
2:38 am
206
Paige, I would try joining the www.acor.org ewings sarcoma group, there are a ton of ewings surviors, we are personally dealing with relapse right now, but...
Melissa Medley
melimed1232002
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Feb 8, 2005
11:17 pm
207
Hai people. I'm 20 & diagonised with sarcoma on 2002. Evrything goes great after treatment...
venusfunboy
Offline
Feb 24, 2005
4:02 am
208
ChemoAngels Cancer Support Organization is a wonderful resource for people who are battling cancer! Featured in People magazine last summer, in the July 19,...
ChemoAngels Admin
chemoangels
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Mar 7, 2005
12:51 pm
211
My recently finished her radiation treatment for Ewing. We are still waiting for the results. Is it common to just give radiation therapy without chemotherapy....
hello_from_montebello
hello_from_m...
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Sep 11, 2005
8:34 pm
212
Hello, my daughter who was eight at the time received both radiation and chemotherapy. I have never heard of just radiation. Where are you receiving treatment....
marybeth adkins
JAZZMBM
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Sep 11, 2005
9:35 pm
213
I have also never heard of Ewings being treated with radiation alone. This site has a lot of information on treatment options, clinical trials and support...
Elizabeth
egr2058
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Sep 12, 2005
11:23 am
214
hi my name is shawn I also have ewings when I was diagnosed I had several tumors but did alot of research. the prognosis rate increases alot when chemo is...
shawny christopher
blshoflich
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Sep 12, 2005
4:12 pm
215
Hi. My son was 18 years old when he was diagnosed with ewings. He had a tumor on his spine. He had surgery, chemo and radiation. Through much research, we...
Sharon Kory
sharonlkory
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Sep 12, 2005
6:44 pm
216
First of all, I am just a parent, not a medical professional. When my son was diagnosed, the research I did indicated that the best chance for success came...
dave987321
Offline
Sep 12, 2005
7:15 pm
217
Radiation is good to relieve pain in most cases. The standard treatment for Ewings is both chemotherapy and radiation treatments. Radiation is effective ...
fmorden@...
muse17702000
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Sep 13, 2005
1:25 am
218
You need to get to a specialist quick. You only have one chance to beat this and YES it does involve extensive chemotherapy. I would go to www.acor.org and...
Melissa Medley
melimed1232002
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Sep 13, 2005
7:20 pm
219
Refinance your home now, take 30 seconds and fill out this free form. http://fastreficdkcik.hotfire.net/ [Non-text portions of this message have been removed]...
ewingssarcoma@...
Send Email
Sep 13, 2005
9:16 pm
220
Absolutely YES The www.acor.org Esarc list is fantastic for having a nice group of Ewing's people, AND their connection with research is extensive. Just...
fmorden@...
muse17702000
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Sep 13, 2005
10:56 pm
221
a DEFINITE agreement here. My mom is a member and there are so many wonderful people that are there just to talk, or to help. fmorden@... wrote:Absolutely...
Lexi Chopp
smallchopp
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Sep 14, 2005
1:42 am
222
Thank you all for your responses. My wife did have her appointment this past Tuesday. We were informed that the cancer is smaller but still there. Her...
hello_from_montebello
hello_from_m...
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Sep 14, 2005
6:27 pm
223
I am confused. I do not see how the treatment if you are getting the right one can be done after work? It is usually in hospital for 5 days alternating 3...
Melissa Medley
melimed1232002
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Sep 15, 2005
3:20 pm
224
... Your wife's doctors are correct that she's going to need some time off work. I hate to seem harsh and don't want to be an alarmist, but you should really...
Elizabeth
egr2058
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Sep 15, 2005
8:46 pm
225
I have never heard of simply radiation unless it is strictly paliative care meaning that it is just for pain management and not for curative measures. my first...
Daniel McCarty
elliesman2001
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Sep 17, 2005
12:34 pm
226
i would definitely consult a new doctor. unless they have told you everything that elizabeth has said and then some, you are not being told the truth. my wife...
Daniel McCarty
elliesman2001
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Sep 17, 2005
12:45 pm
227
The ImmTher Clinical Trial is offered at MD Anderson in Houston Texas. It is No. ID97-198, administered by Dr. Kleinerman. http://utm- ...
Elizabeth
egr2058
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Sep 21, 2005
12:04 pm
228
Elizabeth just wanted to say go for it all it will be worth it..... Elizabeth <egr2058@...> wrote:The ImmTher Clinical Trial is offered at MD...
virginia faulk
virginia_fau...
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Oct 25, 2005
1:38 am
229
Unfortunately, the clinical trial is only open for patients with newly diagnosed ES, who haven't had any treatment, and you have to go to Houston for it. We...
Elizabeth
egr2058
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Oct 25, 2005
5:48 pm
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