Parents, friends, surviviors, and struglling souls... I promise there is hope. My name is Alex, I'm a 19 year old college student, and I beat a terminal case...
I will totally take the time to talk with any of you via chat or emails about how to beat this. It's not hard but it's not easy. But it can be beaten. Luck has...
you are truly amazing- I find such faith and strength in you and in your recovery process- your story is similiar to my sons he was diagnosed 4 months after hs...
Hi Alex Yours is a wonderful story, would you mind letting us know what was the extent of the ewings when you went for your first treatment? as there are...
Alex you are remarkable. This disease has made you a better perrson. I am sure that you were already a wonderful person and that is exactly why God makes good...
Its been a long time since i've even log in or even read some of the messages that people sent. Why, because at times it is dis- hearting to read them, whether...
Have you ever considered a stem cell transplant? I had Ewing's that spread to my lungs. After surgery, chemo, and radiation i had a stem cell. nobody in my...
Garrett, I tell you both as a minister/counselor and one who has helped a spouse go through this: tell your wife how you feel. I am not sure if you already...
Hi all, My son Tom, has returned with with ewings and had it found in his eye socket, two in pelvis, and a few in lung. He first had it in femur and lung and...
David, Where does Tom go for his treatments. My wife had ewings and went to Massachusetts General Hospital in Boston. Her Dr. was David C. Harmon. He was great...
The etopside, with ifosimide, I have heard has worked, also, for my husband who has recurrent ewing's he did the topotecan/cytoxn/vincristine and that worked...
Well, i am a little more than one year out from my second bout with this...and so far so good.I can finally drive again, and i had a really good summer. I hope...
what do you mean? You had Ewing's 2 times and have been in remission for a year? Please let me know more, my husband is dealing with this for his second time...
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hey all I thought I would post this because they damn near took away almost all my bills. I think its worth at least checking out if you have too many bills......
i've have actually had this type of surgery to remove a tumor. need info on it you can email me back asking any questions you would like. garrett bataljkica...
This is a very serious surgery with great detail involved. If this is for you or a child, let it be know that it will take atleast a year to recover. I spent...
Hey everyone, my name is Paige and I was diagnosed with Ewings Sarcoma in 2000, I would love to talk to anyone who has been through treatment and compare...
Hi, my name is Lexi and i was diagnosed in 1996. i would love to chat sometime. paigegwu <paigegwu@...> wrote: Hey everyone, my name is Paige and I was...
Dear Paige, My daughter Caitlin was diagnosed in 2002 and is doing great. She did 48 weeks of chemo and 30 radiation treatments and had a tumor resection. She...
Paige, My son Vinnie was diagnosed with Ewings Sarcoma in 2000. He had 10 months of Chemo and 3 months of radiation. He is now in remission and is doing very...
Paige, I would try joining the www.acor.org ewings sarcoma group, there are a ton of ewings surviors, we are personally dealing with relapse right now, but...
ChemoAngels Cancer Support Organization is a wonderful resource for people who are battling cancer! Featured in People magazine last summer, in the July 19,...
My recently finished her radiation treatment for Ewing. We are still waiting for the results. Is it common to just give radiation therapy without chemotherapy....
Hello, my daughter who was eight at the time received both radiation and chemotherapy. I have never heard of just radiation. Where are you receiving treatment....
I have also never heard of Ewings being treated with radiation alone. This site has a lot of information on treatment options, clinical trials and support...
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