Just joined the group. My son, Adrian, 22, just had a tumor removed from his lower spine. It was a spinal cord tumor, in the dura, along the spinal cord. It...
Renee, Yes, we've been there and done that. First, I would suggest you ask one simple question of the doctor before you begin treatment. Ask him/her what the...
Dear Renee. I am also the parent of a daughter diagnosed with Ewings Sarcoma. My daughter is nine. She had Ewings of the pelvis with the PNET tumor hitting S1...
Gary is back home and has been for quite sometime. For those of you who have read the previous posting of his progress I apologize for not giving you all an...
Kyle, My name is Amanda. My uncle Gary has done lots of work with ES angels. I have not had ES myself but would like to offer my ears. If you ever need to...
Hey Amanda, I am a friend of your Uncle. He has been in my prayers constantly. I am glad to hear a update on him. He has been in my thoughts a lot lately. I...
Hi Kayce, I am so glad that you took time to respond. I will definately tell Gary you are praying and thinking about him, I will also make sure he received...
Hey Amanda, I am sorry that it took me so long to get back with you. To subsribe to the other list you need to go to www.acor.org. Then go to mailing lists...
Hello, My name is Vikki and I am part of a team setting up Post Pals, which securely features children aged between 2 and 18 in the UK with a serious illness,...
Hi Vikki, I am on the ewings sarcoma yahoo group and received your e-mail about Post Pals. I am interested in being involved in this program. Maybe you could...
My 15 year old son was diagnosed with ewings this past august. he will have 49 weeks of chemo he has already finished with radiation. His ewing is in his...
My son was diagnosed in august 2003-with a large tunor in his pelvis he has finished radiation and is continuing with chemo. I have not heard anyone talk about...
This sounds familiar to me. Our son went through a similar pattern of treatment. For more critically imporant Ewing's news including new Clinical Trials, ...
In a message dated 3/11/04 7:32:13 PM, no_reply@yahoogroups.com writes: << I have not heard anyone talk about stem cell replacment. could you tell me more?...
I just wanted to let everyone know that my best friend nikki lost her battle with Ewings. She passed away on feb 28. I know I talk to a few people in this...
My name is Lexi and I am 12. I was diagnosed with ewings at age 5. I underwent high-dose chemo, radiation, surgery, more high-dose chemo, and a stem cell...
I had a stem cell transplant when I was five for my ewings. It was along with radiation and high-dose chemo, but the first week of April will mark my 7th year...
Christina, I believe I may have talked to you before, or remember your posts. So sorry for your loss. Lexi Christina Schaffer <minnie2169@...> wrote: I...
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i had it when i was 5, but would be happy to answer any questions or discuss anything on your mind blshoflich <blshoflich@...> wrote:im having the stem...
Where are you having it done? My wife was going to have one done but her diagnosis wasn't good enough. It will be hard but we're praying for you. blshoflich...
it has been very rough for me every since ive been diagnosed im 21 years old and this is last resort for me. just wanted to see how efective this procedure...
i have now been in remission for 7 years and 1 month. this procedure was my last, after chemo, radiation, and surgery. where is your tumor? mine was in my...
im very happy for you I know first hand how hard this thing is to fight. my tumor started in my right hip and mets to left hip, ribs, skull, lungs, spine,...
i am not sure about graft vs. host- there is a lot of stuff i do not know since i was only 5. there was not a match so my own marrow was taken out, frozen,...
my son was 19 when he had the stem cell and he just worked at keeping a good attitude and doing as much as possible during the transplant-they even brought a ...
Hi. I had four stem cell transplants. My transplant experience is a lot different from other people's experience. I harvested my own stem cells at the...
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