I was first diagnosed with Ewing's Sarcoma in Sept. of 1986, and went through all the chemo regimens they had at the time: Cytoxin, Actiniomyacin, Adriomyacin,...
I have a little advice. Think about it this way: If your body could deal with it the first time, why should the second be any different. I have a friend who...
I know attitude is everything, but sometimes it is a little hard when you have to take 18mg. of Dilaudid (Hydromorphone HCL)every 4 hours just to be able to...
Hi I have been reading your emails about ewings coming back say in years down the road but you have to look at it in the context that a cure may be found...
You have to trust me on this one: i know how you feel. i went through my ewings at age 5. i had no idea whatsoever what was going on, and had so many things...
My son was diagnosed with Ewing's in Dec '02. He had three months of chemo, surgery, and then more chemo for a total of 11 months of treatment. He just...
Dear Dave, How old is your son? how well did he respond to the chemo? why no radiation? My daughter is nine and was treated at St. Jude's and her tumor was...
I wish other treatment options had been mentioned to us as they are to you. We did the exact same thing you did basically and were told we were finished. Then...
Hello dave.. i dont know that i really know how to help you. I was always told it is just a risk and u dont know if u will get it back. but if hte chemo worked...
Hi All, I belong to the other ESARC listing at ACOR, but found out there is another group here. So, I'm just sticking my nose in to say "HI" and to let you...
Hi Fred, My name is Lexi. You may know me because my mom is in the same group as you. She is Michelle C., doesn't post too often. Just thought it was kind...
Hi Lexi, Sorry to be so late getting back to you. I've been out of town. There are a lot of people who don't post but read others' mail. That's cool because...
Just joined the group. My son, Adrian, 22, just had a tumor removed from his lower spine. It was a spinal cord tumor, in the dura, along the spinal cord. It...
Renee, Yes, we've been there and done that. First, I would suggest you ask one simple question of the doctor before you begin treatment. Ask him/her what the...
Dear Renee. I am also the parent of a daughter diagnosed with Ewings Sarcoma. My daughter is nine. She had Ewings of the pelvis with the PNET tumor hitting S1...
Gary is back home and has been for quite sometime. For those of you who have read the previous posting of his progress I apologize for not giving you all an...
Kyle, My name is Amanda. My uncle Gary has done lots of work with ES angels. I have not had ES myself but would like to offer my ears. If you ever need to...
Hey Amanda, I am a friend of your Uncle. He has been in my prayers constantly. I am glad to hear a update on him. He has been in my thoughts a lot lately. I...
Hi Kayce, I am so glad that you took time to respond. I will definately tell Gary you are praying and thinking about him, I will also make sure he received...
Hey Amanda, I am sorry that it took me so long to get back with you. To subsribe to the other list you need to go to www.acor.org. Then go to mailing lists...
Hello, My name is Vikki and I am part of a team setting up Post Pals, which securely features children aged between 2 and 18 in the UK with a serious illness,...
Hi Vikki, I am on the ewings sarcoma yahoo group and received your e-mail about Post Pals. I am interested in being involved in this program. Maybe you could...
My 15 year old son was diagnosed with ewings this past august. he will have 49 weeks of chemo he has already finished with radiation. His ewing is in his...
My son was diagnosed in august 2003-with a large tunor in his pelvis he has finished radiation and is continuing with chemo. I have not heard anyone talk about...
This sounds familiar to me. Our son went through a similar pattern of treatment. For more critically imporant Ewing's news including new Clinical Trials, ...
In a message dated 3/11/04 7:32:13 PM, no_reply@yahoogroups.com writes: << I have not heard anyone talk about stem cell replacment. could you tell me more?...
I just wanted to let everyone know that my best friend nikki lost her battle with Ewings. She passed away on feb 28. I know I talk to a few people in this...
My name is Lexi and I am 12. I was diagnosed with ewings at age 5. I underwent high-dose chemo, radiation, surgery, more high-dose chemo, and a stem cell...
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