Hi sandy, my name is garrett and i was dx with ewings a year and 3 mos ago in my pelvic. I did the chemo, surgery and radiation, and it has met to my lungs....
Garrett, Would you mind letting us know if the vincristine and topotecan is working on controling the tumors. We are looking for any drug to control them so...
I also was diagnosed with Ewing's Sarcoma in my scapula with mets to the spine in November of 2002. I had three months of chemo. Then I had surgery to remove...
Kayce, Last week was spent "harvesting" my stem cells. I can't believe how long each day was. I'm glad that at least that part of it is over. How was the...
Thanks for the information. Our oncologist has never suggested a stem cell transplant. I am unsure as to why. Good luck with your transplant. I will be praying...
my daughter was diagnosed with ewing's july '02 with mets to lungs.primary was on tailbone-removed and radiation. chemotherapy was done wrong prior to surgery...
Jodi, Where is your daughter being treated? Have you talked with MSK out there? Michelle mom to Lexi my daughter was diagnosed with ewing's july '02 with mets...
Hi. I had 4 stem cell transplants. I had them when I receiving my chemo protocol. I have heard that coaral calcium pills are good. Thats all I know about...
Laura, Hey! The chemo side effects I had before the stem cell transplants was just about the same compared to my other chemo's. I was on a really intense...
For anyone that was wanting to know some information about stem cells with ewings her is a good webpage. http://www.cureourchildren.org/stemcell.htm Here is a...
Hello, I am a member of a team we are setting up a website and have been awarded a £12,500 grant from the Princes Trust Millennium Commission (project...
I read your posts about stem cell transplants and you all seem so strong, and determined. Here I am 2x's older than most of you, and you all are able to take ...
You should just be proud of yourself for being able to withstand the stormy weather that faced you. Normalcy is something we all strive for. I know myself,...
Did you have a reccurence? I am trying to find any survivors once it comes back. What worked? ... __________________________________ Do you Yahoo!? Yahoo!...
Melissa, are you a Ewings survivor? Marybeth ... __________________________________ Do you Yahoo!? Yahoo! SiteBuilder - Free, easy-to-use web site design...
No, my fiances has come back and we are trying to find a survivor of a reccurencee. ... __________________________________ Do you Yahoo!? Yahoo! SiteBuilder -...
hi Melissa Why not ring the University of Michigan Health System's Cancer Centre or log on to their Website. Ask for Dr James geiger. He is having good...
u said ur looking for ewings survivors just to talk to? To unsubscribe from this group, send an email to: ewingssarcoma-unsubscribe@yahoogroups.com ... There...
My brother jordy was diagnosed with ewings sarcoma cancer on july 17th 2003. He is 12 years old. I am his older brother shane i am 16. I was just looking for...
Hi my name is Christina and my best friend was found to have Ewing's sarcoma about a year ago. She has it in her pelvic area and it spread to her lungs and...
Hey, i had ewings a few years ago. i am 12 now and had a stem cell, radiation, chemo, and surgery. i can probably help you if you have any questions. u can...
HI Christina! I was not in the exact same situation that your friend is in but I am more than willing to talk and answer any questions. e-mail me separately...
My fiance's has spread to his lungs. What chemo is she on? It is very important to have the right doctors and be doing the correct things at the right ...
Lexi, Hey thank you for e-mailing me back. So what is your situation? What did your doctors do for you? I thought maybe if I could get in touch with some...
Christina, I am always happy to tell my story. I am now 12 years old. I was dx at age 5. My tumor was in my rib cage, taking up the whole right side. When...
I was first diagnosed with Ewing's Sarcoma in Sept. of 1986, and went through all the chemo regimens they had at the time: Cytoxin, Actiniomyacin, Adriomyacin,...
I have a little advice. Think about it this way: If your body could deal with it the first time, why should the second be any different. I have a friend who...
I know attitude is everything, but sometimes it is a little hard when you have to take 18mg. of Dilaudid (Hydromorphone HCL)every 4 hours just to be able to...
Hi I have been reading your emails about ewings coming back say in years down the road but you have to look at it in the context that a cure may be found...
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