Chris,
How long have you been out of treatment. My daughter
Caitlin had Ewings with her primary site being the
sacrum. She is nine, we finished chemo, radiation, and
surgery in May 2003.
Marybeth
--- chris bonham <chrisbonham@...> wrote:
> wow, i think you are the first person i've ever
> heard of getting
> ewings after the age of 30. i thought i was old
> when i got when
> i was 28.
>
> What bone specifically in your foot was affected.
>
> Are you using a cane or crutches?
>
> My ewings was in my iliac crest (large flat bone in
> the pelvis
> above the hip). it was completely removed, with
> nothing to
> replace it. my muscles in that area were
> re-rerouted
> ingeniously and now it appears i can walk just fine
> (after a lot
> of physical therapy)
>
> Where did you have you treatment. An have you gone
> to an
> orthopedist or two for second opinions on what can
> be done about
> the current state of your foot. i can recommend one
> of the best
> in the nation.
>
> And one thing about any soft tissue cancer, it
> really depends on
> WHERE it is and not WHAT it is. We've all had
> ewings, and
> that's a unifying factor, but post-surgery and
> treatment, it
> really depends on WHERE the cancer was to really get
> good
> advice. hopefully someone out there will have had
> ewings in the
> foot area.
>
> chris
>
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