Melissa,

Hi my treatment protocol contained chemo, radiation to lungs head
and pelvis. I also had surgery to my pelvis and 4 stem cell
transplants. I would recommend you to go www.cureourchildren.org it
is a very helpful ewings resource. It has tons of info on it.
Also, you might want to check out www.acor.org and sign up for the
ewings email list it is a lot more active then list. I am going on
vacation tomorrow so if you have any other questions I will get back
to them when I get back because I am not sure if I will have
internet access. I hope this helps you.
God Bless,

Kayce
--- In ewingssarcoma@yahoogroups.com, Melissa Medley
<melimed1232002@y...> wrote:
> --- kayce_terrill <no_reply@yahoogroups.com> wrote:
> > Marybeth,
> > Hi! I am really glad to hear that your daughter is
> > a survivior! I
> > am going try not to have to much fun in Hawawii. ;)
> > Thanks,
> > Kayce
> >
> >
> >
> We are dealing with Ewing's and I look on here
> everyday for people to write. No one has in so long.
> Would you mind telling what treatments you did to
> become a survivor. My fiances ewing's has relapsed
> and it is back in his lungs. It was in in pelvis at
> first. Anything will be helpful. Also, how was the
> surgery of the lungs. If this new chemo is working
> that is probally the next step. Also, has anyone
> heard of Gemzar? I wish more survivors would speak
> up to help others have a good out look like you guys.
>
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