Dear Melissa,
Hi, my name is Marybeth. I am the parent of a Ewings
child who is nine. Her's started in the pelvis area
also. Actually the sacrum. Her treatment was 48 weeks
of chemo, surgery, and radiation. I understand the
need to hear survivors stories. My daughter is
currently in complete remission. I don't know if there
is a difference in the treatment because of age. What
are they doing about his lungs right now. How long was
it between the relapse?

Marybeth
--- Melissa Medley <melimed1232002@...> wrote:
> --- kayce_terrill <no_reply@yahoogroups.com> wrote:
> > Marybeth,
> > Hi! I am really glad to hear that your daughter
> is
> > a survivior! I
> > am going try not to have to much fun in Hawawii.
> ;)
> > Thanks,
> > Kayce
> >
> >
> >
> We are dealing with Ewing's and I look on here
> everyday for people to write. No one has in so
> long.
> Would you mind telling what treatments you did to
> become a survivor. My fiances ewing's has relapsed
> and it is back in his lungs. It was in in pelvis at
> first. Anything will be helpful. Also, how was the
> surgery of the lungs. If this new chemo is working
> that is probally the next step. Also, has anyone
> heard of Gemzar? I wish more survivors would speak
> up to help others have a good out look like you
> guys.
>
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