I live in Frankfort, IL. My husband passed away from Ewings about 1 1/2 years
ago. When he was going through his battle, we knew of 3 people in Frankfort
(small town) who had it as well and 1 small girl down the street with
Rhabdomyosarcoma. (similiar).
Always thought that was strange since it is so rare, but the doctor didn't
really say much about it when we mentioned it. Always made me wonder though.
Would love to see more research done on it and for there to be a cure in the
near future. It is an awful disease!

--- On Tue, 2/10/09, JAZZMBM <jazzmbm@...> wrote:

From: JAZZMBM <jazzmbm@...>
Subject: [Ewings Sarcoma] Re: 2 cases of Ewing's in friends, Beverly,
Massachusetts
To: ewingssarcoma@yahoogroups.com
Date: Tuesday, February 10, 2009, 8:53 PM







Hi Bernie,

The cluster is very interesting to me. I live in Norton, Virginia,
our population is 3000 I believe. Yes three thousand. I know of 3
Ewings Sarcoma cases here just in the time that my daughter was
diagnosed. There has been several neuroblastomas too, which according
to our pediatric oncologist has similarities to Ewings. For that
small of a population I think there is something wrong!!!!

Marybeth

--- In ewingssarcoma@ yahoogroups. com, kelly carlton
<johnsmom9983@ ...> wrote:
>
> I pray these cases will unlock the mystery of Ewings and lead to a
cure. I lost my only child to this  terrible disease 2 years ago. Let
me know if there is anything I can do.
>
> --- On Fri, 1/30/09, bjyoung716 <no_reply@yahoogroup s.com> wrote:
>
> From: bjyoung716 <no_reply@yahoogroup s.com>
> Subject: [Ewings Sarcoma] 2 cases of Ewing's in friends, Beverly,
Massachusetts
> To: ewingssarcoma@ yahoogroups. com
> Date: Friday, January 30, 2009, 11:36 PM
>
>
>
>
>
>
>
> Friends:
>
> This program ran on TV a few minutes ago:
>
> http://wbztv. com/health/ ewings.sarcoma. rare.2.923006. html
> <http://wbztv. com/health/ ewings.sarcoma. rare.2.923006. html>
>
> The statistical analysis (average, standard deviation) of the
> Masachusetts Department of Public Heath and Air Force data on the
PAVE
> PAWS was in error. The nature of the error is that average values
are
> under-reported and standard deviation values are unstable and, for
most
> practical purposes, useless.
>
> Anyone who is aware of unusual patterns of cases of Ewing's is
asked to
> report them here. I am preparing a request of out congressional
> reperesentative for federal funding of an independent, dilligent,
> multidisciplinary study of the Ewing's sarcoma cluster on Cape Cod.
I
> have some moral support from epidemiologists at a local university.
> Senators in two other communities have funding for university
> investigations of cancer clusters among their constituents. With no
> known risk factors for this disease, and these peculiar patterns
showing
> up, an investigation seems like a no-brainer.
>
> Bernie
>
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