I pray these cases will unlock the mystery of Ewings and lead to a cure. I lost
my only child to this  terrible disease 2 years ago. Let me know if there is
anything I can do.

--- On Fri, 1/30/09, bjyoung716 <no_reply@yahoogroups.com> wrote:

From: bjyoung716 <no_reply@yahoogroups.com>
Subject: [Ewings Sarcoma] 2 cases of Ewing's in friends, Beverly, Massachusetts
To: ewingssarcoma@yahoogroups.com
Date: Friday, January 30, 2009, 11:36 PM







Friends:

This program ran on TV a few minutes ago:

http://wbztv. com/health/ ewings.sarcoma. rare.2.923006. html
<http://wbztv. com/health/ ewings.sarcoma. rare.2.923006. html>

The statistical analysis (average, standard deviation) of the
Masachusetts Department of Public Heath and Air Force data on the PAVE
PAWS was in error. The nature of the error is that average values are
under-reported and standard deviation values are unstable and, for most
practical purposes, useless.

Anyone who is aware of unusual patterns of cases of Ewing's is asked to
report them here. I am preparing a request of out congressional
reperesentative for federal funding of an independent, dilligent,
multidisciplinary study of the Ewing's sarcoma cluster on Cape Cod. I
have some moral support from epidemiologists at a local university.
Senators in two other communities have funding for university
investigations of cancer clusters among their constituents. With no
known risk factors for this disease, and these peculiar patterns showing
up, an investigation seems like a no-brainer.

Bernie

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