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Cape Cod Ewing's Sarcoma Cluster   Message List  
Reply | Forward Message #469 of 519 |
Friends:

Here on Cape Cod we have a cluster of Ewing's sarcoma with a
standardized incidence ratio of 3.84 (Massachusetts Department of
Public Health figure)or 6.67 (my figure). We should see one case every
6.7 years, and had (in children) 2 in 2002. 3 in 2003, 2 in 2004, and
one in 2005. There are cses in 1996 and 1996. There are also adult
cases. A pair were diagnosed the same day; the 2 in 2004 the same
month. A pair are 1.75 miles apart; another pair 1/4 mile apart.
There is an ensemble of 3 cases in the Mid-Cape, but most cases are
from the Upper Cape. THere is a 13 mile gap between these two
ensembles.

I am suspicious of a particularly high incidence in athletes or
athletically active individuals, although I recognize we are becoming a
more active society.

Anyone have any observations or concerns to offer to this discussion?

Bernie




Tue Aug 5, 2008 4:39 am

bjyoung716
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Message #469 of 519 |
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Friends: Here on Cape Cod we have a cluster of Ewing's sarcoma with a standardized incidence ratio of 3.84 (Massachusetts Department of Public Health figure)or...
bjyoung716
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Aug 5, 2008
4:39 am

Hi Bernie, I'm a Ewing's patient and an American living in Belgium (just 10 million people) and have been anecdotally surprised at the number of cases just...
Scott and Bernice Alc...
scottbernice1
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Aug 5, 2008
8:38 am

Scott Thank you for your comments. I have just posted three files on this blog (which I think are visible only to members) which answer most of the points you...
bjyoung716
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Aug 5, 2008
4:13 pm

Hi I wonder could you post the information, I live in the republic of ireland and we have a population of 3500,000million yet where I live and near by three...
patricia smith
milly_cat2001
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Aug 5, 2008
4:51 pm

Hi,     My name is Fawad and I am a Pakistani, I lost my younger brother (Umar) to ewings sarcoma of pelvic bone in Feb 2004. Although we don't have...
Fawad
fawadejaz
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Aug 5, 2008
9:22 pm

Patricia Maine West High School in DesPlaines, Illinois, had cases of Ewing's sarcoma in 2003 and 2004 (the latter being a recent graduate). It's a big...
bjyoung716
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Aug 5, 2008
11:56 pm

My son, now 26 years old, was diagnosed at age 18 with Ewings Sarcoma.  We live in a suburb of Detroit, called Bloomfield Hills. There were at least three...
Sharon Kory
sharonlkory
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Aug 6, 2008
12:44 am

Sharon & Fawad This site had been dormant for a month and all of sudden it's a whirlwind. If you follow the same message I left with Patricia and read the...
bjyoung716
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Aug 6, 2008
1:27 am

Bernie,   My son was diagnosed during his first semester at Michigan, my daughter will be a sophmore there this fall. Interesting to hear your're an alumni. ...
Sharon Kory
sharonlkory
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Aug 6, 2008
3:21 pm

My daughter was diagnosed in 2002 at age eight, she was involved in some sports, but not much at that age. However, another child at the same school was...
marybeth adkins
JAZZMBM
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Aug 6, 2008
10:01 pm

Hi There have been clusters in south of england in a school, as I said it has been something \i have been very interested in, as I said on my own I got from...
patricia smith
milly_cat2001
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Aug 6, 2008
9:12 am

I have been reading all of this and I'd like to add my 2 cents. JT broke his leg Dec.31,04 wasn't diagnosed with Ewings until Nov. 15,07. For at least two...
stamplifter@...
stamplifter
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Aug 6, 2008
10:06 pm

Hi Shauna,   I too am interested in the clusters. I can completely associate with you on the growing pains. That is all I heard for two years on my daughter....
marybeth adkins
JAZZMBM
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Aug 7, 2008
12:05 am

Marybeth, I think alot of the ER diagnosis depends on what kind of doctor they are, we just weren't lucky enough to get an orthopedic oncology doctor. JT...
stamplifter@...
stamplifter
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Aug 7, 2008
1:25 am

Shauna, and other friends out there in the blogosphere: This has been a busy 24 hours. I'd like to offer some observations of what's on people's minds. 1)...
bjyoung716
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Aug 7, 2008
3:28 am

Hi Shauna,   We were diagnosed at St. Jude Childrens Research Hospital after our local ER found the tumor, we were sent there immediately. I remind myself...
marybeth adkins
JAZZMBM
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Aug 7, 2008
12:34 pm

My son Mike was a high school athlete who played football. When he was a senior he began having pain in his foot-he thought it was related with his running and...
teresa alvarez
alvteresa
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Aug 7, 2008
2:21 pm

Hi my daughter Krystle in the February 2001 was playing rackettball in the local leisure centre she was a tall young girl of 17 years old she tripped and fell...
patricia smith
milly_cat2001
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Aug 7, 2008
9:41 am

... From: marybeth adkins To: ewingssarcoma@yahoogroups.com Sent: Thursday, August 07, 2008 5:34 AM Subject: Re: [Ewings Sarcoma] Cape Cod Ewing's Sarcoma...
patricia smith
milly_cat2001
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Aug 7, 2008
2:18 pm

Hi I was just thinking about something Krystle was left handed and I go to a meeting of Bone Cancer research trust in the Uk every 10 weeks and I was asking...
patricia smith
milly_cat2001
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Aug 7, 2008
2:22 pm

Marybeth, I had to laugh at your posting... in the beginning I didn't know his bowel activity but I sure do now! Have a great Day and thanks for making me...
stamplifter@...
stamplifter
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Aug 7, 2008
8:17 pm

Bernie, Thanks for all the info, I'm saving that to reflect on from time to time. Yes, we were in the Air Force at Keesler AFB in Biloxi, MS. or at least...
stamplifter@...
stamplifter
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Aug 7, 2008
8:32 pm

Shauna, I actually prepared this response last night. My email records seem to suggest it was sent to a wastebasket instead of this group site. I belong to 4...
bjyoung716
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Aug 8, 2008
1:51 pm

Teresa, That is what makes me so mad. I took JT to the ER on five different occassions all we EVER got was an xray which should a broken bone that healed...
stamplifter@...
stamplifter
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Aug 7, 2008
8:45 pm
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