Rachel,

I'm glad to hear your doing well. JT's tumor was so huge 7.2"x9"x13" we didn't
have alot of choices. Our doctor said his muscle was so damaged if left alone
it would be dead weight and eventually would need to be amputated anyway. I was
sad to see this happen to him but when they pathology report cames back it
confrimed the damage and also showed almost 100% tumor kill! I guess we did the
right thing. This group is a wonderful place to find info and hear stories of
survirors. It helps me to know others make it out the other side. Thank you so
much for sharing your story with us.

Shauna Scott
expecting mircles

-------------- Original message --------------
From: Rachel Hogg <hogra306@...>


Hi there,

I am 25 years old, from New Zealand and had Ewing's in my left femur at
aged 13. I had a year of chemo and 3 months of radio. My tumour did not
bulge outwards but stretched about 15cms inside my femur, so a bone
replacement wasn't an option.

I asked my oncologist recently why my leg was not amputated (the normal
treatment at that time, when bone replacement is not possible) and he said
he just took a big gamble!!

So now I have two healthy legs - my 'bad' one has a little muscle wastage
from radiotherapy and aches a little when I stand for too long, but
otherwise I can run, jump etc no problem. I have no other significant long
term effects.

All the best for your cancer journey - it will challenge and shape you,
and cancer will always be a part of your life. Personally, I'm extremely
grateful for everything I learnt through having cancer, and being involved
in CanTeen NZ (www.canteen.org.nz). Remember to laugh often!

Best wishes, Rachel.



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