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[Ewings Sarcoma] Re: new to the group



Hi there,

I am 25 years old, from New Zealand and had Ewing's in my left femur at
aged 13. I had a year of chemo and 3 months of radio. My tumour did not
bulge outwards but stretched about 15cms inside my femur, so a bone
replacement wasn't an option.

I asked my oncologist recently why my leg was not amputated (the normal
treatment at that time, when bone replacement is not possible) and he said
he just took a big gamble!!

So now I have two healthy legs - my 'bad' one has a little muscle wastage
from radiotherapy and aches a little when I stand for too long, but
otherwise I can run, jump etc no problem. I have no other significant long
term effects.

All the best for your cancer journey - it will challenge and shape you,
and cancer will always be a part of your life. Personally, I'm extremely
grateful for everything I learnt through having cancer, and being involved
in CanTeen NZ (www.canteen.org.nz). Remember to laugh often!

Best wishes, Rachel.



Wed Apr 2, 2008 2:17 pm

manukaflower
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Message #463 of 519 |
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I'm so glad to have found this site. My son is 16 and was diagnosed with Ewings in Nov.07. We have only met two people with our type of cancer. He is doing...
stamplifter@...
stamplifter
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Mar 26, 2008
7:55 pm

Hi Shauna My daughter was diagnosed with Ewings in 1993 at age 9. Her tumor was in her left femur bone. Plans were to amputate theleg at the hip...But a new...
rileyswish
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Mar 27, 2008
9:10 pm

... with Ewings in Nov.07. We have only met two people with our type of cancer. He is doing really well with the chemo and has recently had an above the knee...
gonikki501
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Mar 28, 2008
1:53 pm

Hi, My 16 year old daughter just finished her treatment for Ewing's sarcoma. Hers was located in the sacrum. They were not able to operate due to the location...
gonikki501
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Mar 28, 2008
1:57 pm

Karen, Thanks for your reply. It's nice to know I am not alone. We have a carepage (JTScott2007) But I must confess I'm not very good at updating it. :( I...
stamplifter@...
stamplifter
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Mar 28, 2008
4:17 pm

Hi there, I am 25 years old, from New Zealand and had Ewing's in my left femur at aged 13. I had a year of chemo and 3 months of radio. My tumour did not bulge...
Rachel Hogg
manukaflower
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Apr 2, 2008
2:20 pm

Rachel, I'm glad to hear your doing well. JT's tumor was so huge 7.2"x9"x13" we didn't have alot of choices. Our doctor said his muscle was so damaged if...
stamplifter@...
stamplifter
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Apr 2, 2008
6:53 pm
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