Karen,

Thanks for your reply. It's nice to know I am not alone. We have a carepage
(JTScott2007) But I must confess I'm not very good at updating it. :( I guess I
feel I have plenty of time to do that later. LOL. I did go to your daughters
site what a beautiful young lady she is! It sure is amazing what they can
handle. I had e-mailed a couple of the carepages sites with ewings but I have
never heard back from them. I'm so glad to have found this group.

Shauna Scott

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From: "gonikki501" <gonikki501@...>
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Hi,
My 16 year old daughter just finished her treatment for Ewing's
sarcoma. Hers was located in the sacrum. They were not able to operate
due to the location and size of the mass. She had chemo and radiation.
You can find many kids with Ewing's on www.carepages.com and look in
the directory. Put in ewings sarcoma and there are 23 right now that
have a carepage. I have learned so much by talking with other parents
about treatments, side effects, and different medications for the
chemo side effects. It was a life saver!

Also sign in and visit my daughters page the name is nikkiweinberg
If you don't have a page it is easy to start and it helps keep
everyone informed with what's going on without all the phone calls.
Hope this helps and let us know what your page name is!

Karen




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