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ewingssarcoma · Ewings Sarcoma - A place to talk about Ewings Sarcoma
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Reply | Forward Message #461 of 519 |
Re: new to the group

Hi,
My 16 year old daughter just finished her treatment for Ewing's
sarcoma. Hers was located in the sacrum. They were not able to operate
due to the location and size of the mass. She had chemo and radiation.
You can find many kids with Ewing's on www.carepages.com and look in
the directory. Put in ewings sarcoma and there are 23 right now that
have a carepage. I have learned so much by talking with other parents
about treatments, side effects, and different medications for the
chemo side effects. It was a life saver!

Also sign in and visit my daughters page the name is nikkiweinberg
If you don't have a page it is easy to start and it helps keep
everyone informed with what's going on without all the phone calls.
Hope this helps and let us know what your page name is!

Karen





Fri Mar 28, 2008 1:56 pm

gonikki501
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Message #461 of 519 |
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I'm so glad to have found this site. My son is 16 and was diagnosed with Ewings in Nov.07. We have only met two people with our type of cancer. He is doing...
stamplifter@...
stamplifter
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Mar 26, 2008
7:55 pm

Hi Shauna My daughter was diagnosed with Ewings in 1993 at age 9. Her tumor was in her left femur bone. Plans were to amputate theleg at the hip...But a new...
rileyswish
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Mar 27, 2008
9:10 pm

... with Ewings in Nov.07. We have only met two people with our type of cancer. He is doing really well with the chemo and has recently had an above the knee...
gonikki501
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Mar 28, 2008
1:53 pm

Hi, My 16 year old daughter just finished her treatment for Ewing's sarcoma. Hers was located in the sacrum. They were not able to operate due to the location...
gonikki501
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Mar 28, 2008
1:57 pm

Karen, Thanks for your reply. It's nice to know I am not alone. We have a carepage (JTScott2007) But I must confess I'm not very good at updating it. :( I...
stamplifter@...
stamplifter
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Mar 28, 2008
4:17 pm

Hi there, I am 25 years old, from New Zealand and had Ewing's in my left femur at aged 13. I had a year of chemo and 3 months of radio. My tumour did not bulge...
Rachel Hogg
manukaflower
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Apr 2, 2008
2:20 pm

Rachel, I'm glad to hear your doing well. JT's tumor was so huge 7.2"x9"x13" we didn't have alot of choices. Our doctor said his muscle was so damaged if...
stamplifter@...
stamplifter
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Apr 2, 2008
6:53 pm
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