Vee,
Hi welcome to the site. I am glad to hear that your daughter is in
remission!!! I do not know of anyone who has had an hemipelvectomy.
A good email/support list is on acor. It's a lot more active then
this list is. I hope the rest of her therapy goes great!
Here is the addy for the website.
http://listserv.acor.org/archives/e-sarcoma.html
If anyone one else on here would like to join its a great support
list. There is a lot more members and it is a lot more active.
Also here is another good website about ewings sarcoma.
www.cureourchildren.org
I hope that helps.
Kayce

> Hi
>
> Its Debbies mum here..Debbie is almost 12 years old, and was
diagnosed with Ewings in January of this year. She had a primary
tumour on her left iliac bone which was removed in August, along with
chemotherapy and radiation to 2 other sites that were suspect.She
didnt have an allograft, as the surgeon felt that she would do just
as well without any graft or replacement for her bone. She is still
on chemo, and will be until April next, but she has gone into
remission ( yay!!!). She has phsiotherapy 3 times a week and has a
hard time with it all at times.She has had to grow up very
quickly.She told her surgeon that it would help her greatly if she
could talk to someone else who had a hemipelvectomy, but
unfortunately she is the only person in Australia to have had her
type of operation. If anyone out there would like to talk, please
email us at thake@c...
>
> Hope everything continues to go well for all of you guys. Chin up
>
> Vee
>
>
>
> ---------------------------------
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> - What's on at your local cinema?
>
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