My name is Garrett, i'm 25, and i found out that i had ewings in
May of '02. I came across this support group the other day when i
was doing some reseach on ewings. I thought that it would be nice to
talk with other people who have had ewings or have it now. Mostly
because i get treated by a peds oncologist and there isn't really
anyone my age that has ewings.
So i've been going through chemo since june,3, i have tolerated it
very well and have had no real side effects from it, besides the
usual hair lose. Well my tumor was located in my right pelvic area.
I had surgery in september to remove it an also my pelvic bone, that
was replaced with an allegraft. Since the surgery its been an up and
down. The surgery took a lot out of me, i lost 20 plus pounds and
had some kidney problems. But, at this time i'm feeling good, and
have resumed my chemo schedule, and i believe that i will have to
start radiation after a couple more treatments.
I guess that's all, i look forward to hearing from others.