I've been reading all of your emails over the past years and have never written
in. My son, now 25, was diagnosed with Ewings Sarcoma in his spine almost seven
years ago. He was starting his first semester in college and started to feel
excruciating back pain. After surgery, radiation, 11 months of chemo and
physical rehab (he couldn't walk after surgery due to the tumor on his spine), I
can happily say that he is doing well and has since finished college and is
holding down a great job in Chicago. Not a day goes by, til today, that we don't
think about the long, hard fight we had before us and how we conquered in the
end. You must have faith, as many of you already know. I didn't find this group
until after my son finished his treatment, but I still read and feel for all
those who have been touched by this awful disease. For those of you starting
out, you wll get through it. Low blood counts, no appetite, sadness, self
pity...its all part of the process. My one piece of
advice is to try and maintain a good diet. The doctors don't tell you this, but
eating right is a big part of the treatment. God Bless all of you and keep
believing!

Sharon







s <jazzmbm@...> wrote:
Hi Jamie and Karen,
That is fantastic news that this is localized and not
in the bone. Thank God for that. She will feel bad but
this will get better. The kids handle it so much
better. Yes this is a terrible group to have to belong
to but this is where you find your strength and your
hope. I never thought I would need words of wisdom
from people in a support group because I was a strong
person, but this is how I survived my pain going
through it with my 8 year old daughter Caitlin. May
God continue to bless you and your entire family.
Nikki will find her strength in all this. It wasn't
until Caitlin met and talked to an older teenage girl
in the hospital who gave her the fight she needed that
I saw her deal with this disease. Please know all of
us on this website are always here for you even though
we are strangers. We all share a bond that lasts
forever. It is still early for Nikki she has to deal
with the physical part of it right now and then the
emotional part will come and then she will find her
strength.

God Bless
Marybeth (parent of Caitlin Adkins survivor)
--- gonikki501 <gonikki501@...> wrote:

> Hi Tom,
>
> It's fantastic that your scans were clean and we'll
> pray they stay
> that way. My heart goes out to you for what you have
> been through.
>
>
> Nikki started her treatments three days ago, she's
> feeling pretty bad
> but won't admit it to us. We have found out over the
> past few days
> that her bone scan is clear and her marrow is also
> clean. They have
> said the cancer is localized, thank God for that
> news.
> Nikki will be home now for a couple of weeks and
> then we have a 5-6
> day treatment, I suppose that will be a little
> tougher on her.
>
> Thank you for all the thoughts, well wishes and
> prayers.
>
> Jamie and Karen Weinberg
>
>
>
>
> --- In ewingssarcoma@yahoogroups.com, "THOMAS MAYER"
> <tmayer@...>
> wrote:
> >
> > Unfortunately we are all part of a club we had no
> interest in
> joining.
> > Nikki will be in my family's prayers. My son
> Joseph was diagnosed a
> > little over a year ago when he was 18 months old.
> He had ewing's
> > localized in his fibula. He made it through the
> surgery and 14
> rounds
> > of chemo like a trooper. We finished up the chemo
> in December. He
> had
> > his first set of post treatment scans in January
> and all was
> clear. Now
> > we just have to hold our breath that the cancer
> stays away.
> >
> > This is a stubborn cancer but it can definitely be
> beat. They have
> > made some great strides lately with the
> effectiveness of the
> treatments.
> > My biggest advice would be to learn everything
> you can about
> ewing's
> > and the treatments and just try to get through
> everything day by
> day.
> > If you have people around you who are looking to
> help, take as much
> help
> > as you can get. Unfortunately this process is a
> marathon not a
> sprint.
> >
> >
> > >>> gonikki501@... 02/14/07 7:01 AM >>>
> > I posted a few days ago as a desperate parent
> looking for
> information.
> > Wow you guys are so great for reaching out to
> someone you never met.
> > What I am realizing is that there are life
> occurances that link all
> of
> > us and the human spirit is an amazing thing. Our
> family and friends
> > have been amazing through our dark times and all
> of you that have
> > contacted us have touched a part in us that we
> didn't know was
> there.
> > Nikki had her bone scan and it came up clear, she
> starts her chemo
> > tommorrow. I want to thank everyone that has
> contacted us, we now
> know
> > that we are not alone in this fight. I have posted
> in files an essay
> > that Nikki's sister wrote for an assignment for
> school, I'm sorry if
> > it upsets anyone, but I read it everyday before I
> start my day, I
> get
> > the tears out of the way and I know as a father of
> four girls, why I
> > must stay strong through out our fight.
> >
>
>
>

__________________________________________________________
TV dinner still cooling?
Check out "Tonight's Picks" on Yahoo! TV.
http://tv.yahoo.com/





Sharon Kory

Sharon Kory Interiors Inc
29000 Inkster Rd. Suite 120
Southfield, MI 48034
phone: 248.357.3600 ext 203
fax: 248.357.3646


---------------------------------
Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

[Non-text portions of this message have been removed]