Hi Tom,

It's fantastic that your scans were clean and we'll pray they stay
that way. My heart goes out to you for what you have been through.


Nikki started her treatments three days ago, she's feeling pretty bad
but won't admit it to us. We have found out over the past few days
that her bone scan is clear and her marrow is also clean. They have
said the cancer is localized, thank God for that news.
Nikki will be home now for a couple of weeks and then we have a 5-6
day treatment, I suppose that will be a little tougher on her.

Thank you for all the thoughts, well wishes and prayers.

Jamie and Karen Weinberg




--- In ewingssarcoma@yahoogroups.com, "THOMAS MAYER" <tmayer@...>
wrote:
>
> Unfortunately we are all part of a club we had no interest in
joining.
> Nikki will be in my family's prayers. My son Joseph was diagnosed a
> little over a year ago when he was 18 months old. He had ewing's
> localized in his fibula. He made it through the surgery and 14
rounds
> of chemo like a trooper. We finished up the chemo in December. He
had
> his first set of post treatment scans in January and all was
clear. Now
> we just have to hold our breath that the cancer stays away.
>
> This is a stubborn cancer but it can definitely be beat. They have
> made some great strides lately with the effectiveness of the
treatments.
> My biggest advice would be to learn everything you can about
ewing's
> and the treatments and just try to get through everything day by
day.
> If you have people around you who are looking to help, take as much
help
> as you can get. Unfortunately this process is a marathon not a
sprint.
>
>
> >>> gonikki501@... 02/14/07 7:01 AM >>>
> I posted a few days ago as a desperate parent looking for
information.
> Wow you guys are so great for reaching out to someone you never met.
> What I am realizing is that there are life occurances that link all
of
> us and the human spirit is an amazing thing. Our family and friends
> have been amazing through our dark times and all of you that have
> contacted us have touched a part in us that we didn't know was
there.
> Nikki had her bone scan and it came up clear, she starts her chemo
> tommorrow. I want to thank everyone that has contacted us, we now
know
> that we are not alone in this fight. I have posted in files an essay
> that Nikki's sister wrote for an assignment for school, I'm sorry if
> it upsets anyone, but I read it everyday before I start my day, I
get
> the tears out of the way and I know as a father of four girls, why I
> must stay strong through out our fight.
>