I'm so sorry to hear of your daughter's diagnosis. Since Ewings is
rare and aggressive, they sure do start chemo fast and it can be very
hard to take in everything you need to know so fast.
Here is another forum that is more active than this one where you'll
find awesome support and advice.
http://listserv.acor.org/archives/e-sarcoma.html
The best thing I can think of to say to you is "You can do this!!"
It's going to be a long year, but you just take things one day at a
time, take lots of notes, take care of yourselves (go to your own
doctor for sleeping aids if you need them - we walked around like
zombies for a couple of weeks before we did taht and I think Ambien
saved my life!), get second opinions any time you don't like the
answer you're given and post any and all questions! My own 19-year
old stepson lost his battle to ES this past March. His primary site
was in a rib and it had already spread to his lungs and chest wall
when it was dx. I've heard that younger kids actually tolerate the
chemo better than the older ones. So, hang in there and holler when
yoyou need help! ~ Elizabeth