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Our Nikki has Ewings   Message List  
Reply | Forward Message #340 of 519 |
Re: Our Nikki has Ewings

I'm so sorry to hear of your daughter's diagnosis. Since Ewings is
rare and aggressive, they sure do start chemo fast and it can be very
hard to take in everything you need to know so fast.

Here is another forum that is more active than this one where you'll
find awesome support and advice.
http://listserv.acor.org/archives/e-sarcoma.html

The best thing I can think of to say to you is "You can do this!!"
It's going to be a long year, but you just take things one day at a
time, take lots of notes, take care of yourselves (go to your own
doctor for sleeping aids if you need them - we walked around like
zombies for a couple of weeks before we did taht and I think Ambien
saved my life!), get second opinions any time you don't like the
answer you're given and post any and all questions! My own 19-year
old stepson lost his battle to ES this past March. His primary site
was in a rib and it had already spread to his lungs and chest wall
when it was dx. I've heard that younger kids actually tolerate the
chemo better than the older ones. So, hang in there and holler when
yoyou need help! ~ Elizabeth





Mon Feb 12, 2007 9:20 pm

egr2058
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Message #340 of 519 |
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Last thursaday our 15 yr old daughter had a sore back,after what seems so sureal, she starts her treatments this thursday. We all wake up every morning hoping...
gonikki501
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Feb 11, 2007
9:25 pm

where are you from and what hospital/dr.s are you going through? i know this is a horrible experience for you.. we've all been there and we KNOW what you're...
Randi McIlwain
randimcilwain
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Feb 11, 2007
9:38 pm

We are in the Chicago metro area and we are being treated at Children's Memorial in Chicago. Where was your husband treated and what treatment did he have? ......
gonikki501
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Feb 12, 2007
4:18 am

My heart goes out to you and your family.. I to had ewings sarcoma and have been in remision for several years. I will be praying for you all, if there is any...
mdplumbdoc
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Feb 11, 2007
11:00 pm

We as well are in the Chicago area. North burbs. Childrens is a great hospital. My six year old son is currently going through treatments for Ewings there....
Rita Maki
sportybungee
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Feb 12, 2007
5:22 pm

I'm so sorry to hear of your daughter's diagnosis. Since Ewings is rare and aggressive, they sure do start chemo fast and it can be very hard to take in...
Elizabeth
egr2058
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Feb 12, 2007
9:23 pm
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