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ewingssarcoma · Ewings Sarcoma - A place to talk about Ewings Sarcoma
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New to this group...nice to meet you all   Message List  
Reply | Forward Message #298 of 519 |
Re: New to this group...nice to meet you all

I am glad that you and your husband were able to keep a positive
attitude. I really can't stress the importance of this because it
really helps with the healing process. My family was really freaked
out at first as well, but when they saw that I don't let it get to
me, they were alot better. I listened to that song and he lyrics are
really good. I liked it. how is your husband doing?
Mon Sep 18, 2006 3:43 am

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supa_cop
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Forward 		Message #298 of 519 |
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My name is Frank. I am 35 years old. I was diagnosed with a soft-tissue Ewing's a little over a year ago. The tumor is located off the adrenal gland in my... 		Frank
supa_cop
Offline Send Email 		Sep 15, 2006
3:41 am

I agree with Frank. Being diagnosed alone was the worst part i think, that my husband dealt with- especially with a toddler at home and a baby on the way.We...
Randi
randimcilwain
Offline Send Email 		Sep 15, 2006
4:31 am

I am glad that you and your husband were able to keep a positive attitude. I really can't stress the importance of this because it really helps with the...
Frank
supa_cop
Offline Send Email 		Sep 18, 2006
3:49 am

my husband is doing great so far. he started back to work in january and has his routine scans and so far everything is clear. there's always that fear that...
Randi McIlwain
randimcilwain
Offline Send Email 		Sep 18, 2006
2:10 pm

It's me, Olga, again!!! I'm glad to see new messages in our group. And I'm so glad that everybody is keeping a positive attitude! I agree that this is very ...
katochek13
Offline 		Sep 28, 2006
3:13 am

Hi Olga! Its sounds like you're on the same treatment schedule as my husband was on last year. Just keep that positive attitude b/c i really believe that has...
Randi McIlwain
randimcilwain
Offline Send Email 		Sep 28, 2006
2:31 pm

Thank you , Randi, for your response. I appreciate that!! My diagnoze is Ewing's sarcoma in the low are of my left leg. Thanks God I do have it only in one...
katochek13
Offline 		Sep 28, 2006
5:25 pm

he had it in his spinal area- the tumor had grown on his sciatic nerve, which caused tremendous pain over time, and after numerous physical therapy...
Randi McIlwain
randimcilwain
Offline Send Email 		Sep 28, 2006
5:43 pm

Wow! That sounds almost exactly like my Ewings! Is it in the bone or the soft tissue? With the Ifex/Mesna combo, make sure you drink LOTS of water because it...
kayetexan
Offline Send Email 		Oct 1, 2006
3:29 am

My two year old son was diagnosed with Ewing's Sarcoma in his left fibula in January. His treatment plans sounds similar to yours. He has to have 14 cycles...
THOMAS MAYER
tmayer248
Offline Send Email 		Sep 28, 2006
6:59 pm

That sounds extremely identical to what my husband endure last year- definately the same cycles. I'm so sorry your son has to go through this though- 2 years...
Randi McIlwain
randimcilwain
Offline Send Email 		Sep 29, 2006
1:28 am

He has gotten infections after each of the last two five day treatments and the second one landed us in the ICU for 3 nights. It is taking longer for his blood...
THOMAS MAYER
tmayer248
Offline Send Email 		Sep 29, 2006
1:34 pm

that's how our story was basically. They found jason's tumor right before the thanksgiving holiday and in the middle of my pregnancy w/ our second. He had a...
Randi McIlwain
randimcilwain
Offline Send Email 		Sep 29, 2006
2:02 pm

hello, everybody!! When I was diagnozed with Ewing's sarcoma 2 months ago, I was shoked. And I couldn't understand what did I do wrong in my life that God sent...
katochek13
Offline 		Sep 29, 2006
5:37 pm
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